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09:41 AM
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I have cancer
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[quote:calin:MV8yMjA2ODYzXzM3NzE1NjE3X0VGNzQ3ODBB] [quote:FatalW1shes:MV8yMjA2ODYzXzM3NjgwMzIxX0RBNjMwREYx] This fucking sucks. I got my final Pathology and Pet Scan results... It's bad. The PET scan showed more than just the big tumor, it's everywhere in my abdomen...mesenteric lymphnodes,...several loops of the small intestine ....pancreas,.. It's also the most aggressive called Burkitt's http://en.wikipedia.org/wiki/Burkitt's_lymphoma It's still curable but the RCHOP Chemo is out. I have to take the most aggressive dose they have and it has to be done in the hospital. So starting May 6 I go back to Harris Hospital for Chemo for a week a time It's a new Treatment developed at MD Anderson called Hyper CVAD. I just want to curse and say "this sucks" and throw a pity party but it won't do any good. I'm still curable it's just gonna suck. I have to do 8 treatments. http://emedicine.medscape.com/article/1447602-treatment They are talking about bone marrow transfusions and blood transfusions and I'm like this is just insane. I would rather not do a bone marrow transfusion if I don't have to but it's on the table and we have to consult with a specialist. This sucks. It's all I can say. [/quote] Happy belated birthday! I was just reading through your updates. I am so sorry to hear of the news... was hoping it was more positive. A tiny suggestion if I may.... Mind / body connection is everything. My suggestion is to start with a mental outlook that is free of doom, free of words actions and feeling that even hint at doom. I would start with your name here. Fatal Wishes is not such a good mind frame, even as joking. Perhaps something more like Non-fatal wishes... like that. I would change it altogether, but then some may not recognize you. However, you still have your avatar. Just a thought my friend... ;) Sending you a PM [/quote]
Original Message
It's Lymphoma ...the good kind that can be cured we hope.
And it's big. It's 17 cm and inside my belly. The full pathology report has not come back yet and had the needle biopsy done Friday after I was admitted into the hospital.
I appreciate pregnant women a lot more now. When you have a big mass in your belly it really is hard to get comfortable.
It hurts. It takes up a lot of room in there and takes some good meds to keep the pain back. It felt like my back was on fire and a grenade went off in my stomach. I would rather have another kidney stone this hurt so bad.
I've had to have 3 units of blood as well because my hemoglobin was down to 6.9. and 2 iron infusions.
It's too big to operate on because it's wrapped around my stomach and small intestine.....looks like I had lap band surgery to my stomach it's so small. They have to shrink it to see what is the next step.
Biggest tumor I've ever seen and many the doctors have ever seen.
I'm scared and bored and GLP has been my home for years. I've not been posting much lately because the truth is I've been sick.
Just FYI, I had been swimming for 4 months and lost 32 lbs when this came about. I eat healthy, its just one of those things I don't understand. I started my first dose of Chemo last night and didn't sleep any and feel pretty wired.
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