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Wife just found out she has rheumatoid arthritis and lupus. Anyone deal with these?
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[quote:Anonymous Coward 47643906:MV8zNDgwNjI5XzYyMTAzNDA4X0UwM0E4MERC] I lost my wife in 2013 to complications associated with Lupus. Yes, listen to the doctors, but don't be afraid to try alternative medicine. Step one, Both of you should bone up in knowledge of the condition, and you should strive to become as knowledgable of the subject even more so than your doctor. If a recommended treatment doesn't feel right to the two of you, seek another opinion. One thing we learned during this ordeal is the fact that doctors, even specialist can't get on the same page in regards to proper treatment for this condition. Trust her instincts first, yours secondly, and bring God into every decision before acting. Depending on how far advanced she is, a very normal life expectancy can be had, but it will require an ongoing lifetime effort from both of you to have it. Love her, hold her like there is no tomorrow, because as my wife and I found out, there wasn't much of a tomorrow. Normally, Lupus is not fatal, but the complications associated with it is where the danger problems can began... Remain aware of this. My wife passed from hepatic cirrhosis of the liver directly associated to the Lupus. She never touched alcohol in her entire life! Praying for you and her, I know the fear and sadness you both are facing., but rejoice in the fact that God is in the drivers seat and you are along for the ride as to where he's taking the both of you.. Also, don't ride with this yet. GET A SECOND OPINION! After two other doctors confirm these two conditions, it's a safe bet they are all correct. The absolute worse thing that could happen is they began treating her for lupus, and the rheumatoid problem, and that not being the proper treatment for her condition. Lupus and Rheumatoid Arthritis are often mimicked by other conditions. Go back in thirty days to another specialist, don't tell them what you've already been told, and see if they can confirm the same diagnosis. This will give you assurance of the condition, or take you down another road. One maybe not so bad as what you are currently being told. You are not alone in this. I know every feeling you and she are living. Praying for the two of you.... [/quote]
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Both of us almost 40. She is sad and scared. It would appear that medication and diet can basically keep these conditions in check. Kind of a shock to our system as we got together in our 20's and now it feels to both of us that she is almost old overnight, my heart hurts for her.
Anyone here have any tips or deal with either of these conditions?
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