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************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!

 
Anonymous Coward
User ID: 1433496
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06/30/2011 05:34 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Look up research done by Dr Mark Circus. He specializes in alternative therapies, which honestly is the only place you'll find relief I'm afraid. My mother has CFS and just found out about him. He has shown research relating to magnesium deficiency and CFS. The problem is, Mg testing will always show normal levels because your body will do ANYTHING to keep them there - down to removing it from your bones and teeth to keep it level, otherwise you die! Tissue levels are what you need tested. Anyway, I hope this helps.
Anonymous Coward
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06/30/2011 05:47 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Yes I've been cured from it with kinesology, allingment of my meridians, not injesting any stimulants and eating every 2 hours small meals. No sugar no starch and seeing my chiropractor 2 times a week for adjustment. Adrenal glands burnt out. No stress either. Plenty of nurtition and rest and no stress. Good luck you can heal. Healing is the body and minds job, you just have to learn how to support it.
 Quoting: finley


i don't think it can be stated better than this
 Quoting: Anonymous Coward 1372955


Thank You Just my experience.hf
 Quoting: finley



big items for me were eliminating aspartame and sugar and adding himalayan sea salt. bad bacteria feeds off of sugar.. salt kills them.

also nix fluoride!!! sounds like some thyroid issues going on there.... aspartame and fluoride really do a number on your system. doxycycline is also a great way to kill the bacteria but most doc's will not prescribe it. if you are lucky enough to find one then make sure you take a probiotic along with it.

in 2 1/2 years i have lost 60 lbs, improved my vision to normal, regained energy so i can work a full day. i also gave up caffeine as others have suggested, but that was only a month or two ago. rarely do i feel depressed now, and i believe my appearance has improved from the sickly face i had 30 months ago.

also, daily walking for 30 to 45 minutes is a must... try to work up to it if that is too much now. (its also important not to overdo it...no more than an hour)
Anonymous Coward
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06/30/2011 05:55 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Has anyone ever been cured from Chronic Fatique Syndrome?

Doctors don't seem to know anything about it. After researching on the web, it seems there are multiple symptoms associated with it. Medical science does not know what causes it & therefore don't talk about it.
 Quoting: ohhappydays


Eat a can of Spinach , you may think Im joking but Im not. I have experienced the symptoms of cronic fatigue many times and finially figured out that it was due to an Iron deficency. If that is what you have , and you eat some spinach you will know within a couple of hours you will begin to feel much better.
Anonymous Coward
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06/30/2011 06:14 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
There is a wealth of ignorance on this sight. When someone asks for help with a real (though misunderstood)DISEASE, saying oh "dandelion root, sunshine, and happy thoughts are the cure" is not helpful.
If you don't know what your talking about just don't participate. Simple. I know alot about this issue and this idea that it's not a real thing or people are just stressed etc is bs.
As far as advice I don't much. I actually think CFS is of a more spiritual nature than most other health problems ie you can't just find the problema and fix it. It mutates, adjusts, and has countermeasures to everything imaginable. It won't let you off the hook until it is time. When is it time? Idk...
Maybe there is a singular physical (viral,bacterial)cause.
I hope so and I hope it is found but until then just try different things and hang in there as best as you can..
Anonymous Coward
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06/30/2011 06:27 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
I wrote kind of a harsh post before. Everyone is free (of course) to add their input. But don't say you have a CURE unless you had this problem definitely and severely and for at least a decade. If you got mono and felt icky for a year you didn't have cfs. But its always good to have input, cuz you never know what might help someone feel better.
This attitude of "oh I cured this problem thats has perplexed millions including drs healers and scientists the world over" is unbearable. No you didn't. You helped yourself which is great but you didnt find the cure to an utterly baffling perplexing and complex disease thats all i'm saying
Anonymous Coward (OP)
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06/30/2011 10:58 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
I wrote kind of a harsh post before. Everyone is free (of course) to add their input. But don't say you have a CURE unless you had this problem definitely and severely and for at least a decade. If you got mono and felt icky for a year you didn't have cfs. But its always good to have input, cuz you never know what might help someone feel better.
This attitude of "oh I cured this problem thats has perplexed millions including drs healers and scientists the world over" is unbearable. No you didn't. You helped yourself which is great but you didnt find the cure to an utterly baffling perplexing and complex disease thats all i'm saying
 Quoting: Anonymous Coward 1334212


I call it the mystery disease. Do you have a theory as to what causes it? I wonder if chemtrails are involved, but why does not everyone become infected? Someone once said to me that they were an abductee & wondered if all abductees had this condition. Don't know if anyone is tracking any similarities between victims of this.
Anonymous Coward (OP)
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06/30/2011 11:00 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Has anyone ever been cured from Chronic Fatique Syndrome?

Doctors don't seem to know anything about it. After researching on the web, it seems there are multiple symptoms associated with it. Medical science does not know what causes it & therefore don't talk about it.
 Quoting: ohhappydays


Eat a can of Spinach , you may think Im joking but Im not. I have experienced the symptoms of cronic fatigue many times and finially figured out that it was due to an Iron deficency. If that is what you have , and you eat some spinach you will know within a couple of hours you will begin to feel much better.
 Quoting: Anonymous Coward 1417332


I have gone through a whole battery of tests including iron deficiency & everything shows up within normal ranges.
Anonymous Coward (OP)
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06/30/2011 11:04 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Yes I've been cured from it with kinesology, allingment of my meridians, not injesting any stimulants and eating every 2 hours small meals. No sugar no starch and seeing my chiropractor 2 times a week for adjustment. Adrenal glands burnt out. No stress either. Plenty of nurtition and rest and no stress. Good luck you can heal. Healing is the body and minds job, you just have to learn how to support it.
 Quoting: finley


i don't think it can be stated better than this
 Quoting: Anonymous Coward 1372955


Thank You Just my experience.hf
 Quoting: finley



big items for me were eliminating aspartame and sugar and adding himalayan sea salt. bad bacteria feeds off of sugar.. salt kills them.

also nix fluoride!!! sounds like some thyroid issues going on there.... aspartame and fluoride really do a number on your system. doxycycline is also a great way to kill the bacteria but most doc's will not prescribe it. if you are lucky enough to find one then make sure you take a probiotic along with it.

in 2 1/2 years i have lost 60 lbs, improved my vision to normal, regained energy so i can work a full day. i also gave up caffeine as others have suggested, but that was only a month or two ago. rarely do i feel depressed now, and i believe my appearance has improved from the sickly face i had 30 months ago.

also, daily walking for 30 to 45 minutes is a must... try to work up to it if that is too much now. (its also important not to overdo it...no more than an hour)
 Quoting: Anonymous Coward 1422418


Actually I'm somewhat of a health nut. So I would never use artificial sweeteners, only stevia. I will try adding himalayan sea salt. I currently use celtic sea salt.

Why are the doc's not willing to prescribe doxycycline????
Anonymous Coward
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06/30/2011 11:08 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
It's an imaginary disease! Get off your ass!
 Quoting: Guns n' God (redux)


Almost killed me, you dumb bastard. Wouldn't wish hospitalisation for three months and a year of intense suffering on anyone, not even you.

OP, I ended up on ADs for thirteen years. In my case, adrenal fatigue came later, which you can treat somewhat with licorice extract. Give 5-HTP and high strength B12 (1 mg) a go. Works for many.

Unfortunately, CFS is an autoimmune syndrome. Many allergies, fibromyalgia, IBS, depression ... you name it. However, different folks respond differently to different approaches. It takes time, but you WILL get better.
Anonymous Coward
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06/30/2011 11:09 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
I hear the farmers used the electric fence...no joke, it somehow zaps the body back to normal...just make sure that its not gunna kill you though, that defeats the purpose. I believe most fences will only be enough to zap you with no ill effect, but if you have a pacemaker or epilepsy or summit, then I wouldnt try it.

I have been "stung" by many many fences..im ok im ok im ok
Anonymous Coward
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06/30/2011 11:12 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
What dosage of doxycycline? I have cfs and have been taking doxycycline 100 mg twice a day for 5 years for my skin. It has not seemingly made a difference in the fatigue.

BTW, often dermatologists will prescribe doxycycline for adult acne or rosacea.

Also, I had a remission after my first pregnancy that lasted 3 years. I became ill again after the birth of my 2nd child who had wicked bad colic for 6 months. I believe the stress and exhaustion of dealing with a sick baby was the trigger.
Anonymous Coward
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06/30/2011 11:22 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Back in 1992 I got Epstean Barr virus & it disrupted my thyroid. Went to the doc who put me on thyroxine. But I have just recently discovered that there is a connection between Epstein Barr and CFS.
 Quoting: ohhappydays


Google "Ranitidine", an OTC alkalising agent. It helps many with EB-induced CFS, though I wouldn't recommend it long-term. May help you when you really need a pick-up at crucial moments.
luvbug
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06/30/2011 11:25 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Chronic Fatigue and Epsten Barre virus are also connected with Lyme disease. Lyme tests are not reliable, and many doctors are uneducated about Lyme. One doctor I heard of has had success with Z-packs for treating Lyme. Hope this helps.hf
Anonymous Coward
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06/30/2011 11:25 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Great information provided by this guy and his large knowledge on health, try this thread for starters; [link to z10.invisionfree.com]
Anonymous Coward
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06/30/2011 11:26 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
I wrote kind of a harsh post before. Everyone is free (of course) to add their input. But don't say you have a CURE unless you had this problem definitely and severely and for at least a decade. If you got mono and felt icky for a year you didn't have cfs. But its always good to have input, cuz you never know what might help someone feel better.
This attitude of "oh I cured this problem thats has perplexed millions including drs healers and scientists the world over" is unbearable. No you didn't. You helped yourself which is great but you didnt find the cure to an utterly baffling perplexing and complex disease thats all i'm saying
 Quoting: Anonymous Coward 1334212


I call it the mystery disease. Do you have a theory as to what causes it? I wonder if chemtrails are involved, but why does not everyone become infected? Someone once said to me that they were an abductee & wondered if all abductees had this condition. Don't know if anyone is tracking any similarities between victims of this.
 Quoting: ohhappydays


Yes the mystery disease indeed.
Well I almost hate to say it but I think it has to do with balancing a debt basically. Karma.
I also believe that it has to do with the "soul" and basically not living the proper type of life. I often think of it as like an unforgiving teacher. It simply won't let you "go back" to your old life. I haven't figured it all out and still have a hard time listening.
I mean I have a million theories and ideas. I don't think its all angels and karma and higher-self; there is a definite darkness that I imagine most with this condition are aware of. Is it in them? I the world? It seems like cffs affects the more empathic and sensitve people.

Ive also wondered about the abduction connection. I read somewhere that someone calculated that the same percentage of people (1% of population, 3million in US) report abduction as there are people with CFS.. Who knows? I don't.
I also wonder about the govt attitude about this. It just doesn't smell right. It's like they're scared of something.
av
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06/30/2011 11:30 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Have you ever heard of a man getting CFS? Is it hormonal then? I don't know but I get impatient with people who use this diagnosis.
Anonymous Coward
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06/30/2011 11:31 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
There are such things as spiritual illness. Depression has to be reconized by the person experiencing it before they can help themselfs.
Anonymous Coward
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06/30/2011 11:32 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Thank you all so much for the excellent feedback.

I am vegetarian & have been since 1982. I never use sugar, only stevia in tea or occasional cup of coffee. I am currently working with a Naturopath & am on a detox diet, without supplements (that comes after the detox).Also my adrenals tested very low. I was really hoping for some renewed energy from the detox but nothing. Back in 1992 I got Epstean Barr virus & it disrupted my thyroid. Went to the doc who put me on thyroxine. But I have just recently discovered that there is a connection between Epstein Barr and CFS. I have been dealing with this for many years, but it has become much more chronic now & is preventing me from going back to work.

The mycopoplasma info is new to me. Definitely will bring this up with my doc. Seems like one would have to be on the doxyclycine for a long, long time.....which I do not feel comfortable with. (side effects).
 Quoting: ohhappydays


I also developed problems in the early nineties?? Seems like there was a general cluster of this beginning in that time period..
Eagle'sWings

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06/30/2011 11:56 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
In Oz we get CFS as well as several other similar viruses (it is a virus) such as Ross River virus.

Many sufferers HAVE BEEN CURED - simply by getting a 'boot' from an Electric Fence. This cure was first found by farmers, and many have now used it. The medical folk do not believe in it, and will not even talk about it.

The other thing you can do for your health is helping your own body heal itself. This is done by boosting your own Stem Cells (no transplants or medicines) with a very simple natural product. More details can be found at [link to stemcellnutritionforyou.com]

I should know, as I did have Ross River virus, and for a few weeks, I could not even get out of bed without help. I am now nealry back to my old self of 15-20 years ago, and getting younger by the day.

hfhfhf
Anonymous Coward
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06/30/2011 11:59 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
there are plenty of doctors around who specialize in CFS, it can be caused by a shitload of things, Whoever is suggesting taking those antibiotics for cfs has no idea, that stuff works only if u have some kind of bacterial infection thats dug in. Good for Ricksettsial infections etc

Go get blood tests done and get your homocystine levels checked - good indicator if u are very low on b12...And instead of going through the hassles of getting a b12 shot once a week - Buy Jarrows formula sublingual b12 tabs and let 3 a day disolve under your tongue each day. U must take folic acid with that though

Get your Vit-d levels checked

Get your hormones checked

As hard as is it - fresh fruit and exercise and 2-3 litres of water a day should have you back on your feet within no time
Anonymous Coward
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07/01/2011 12:01 AM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Has anyone ever been cured from Chronic Fatique Syndrome?

Doctors don't seem to know anything about it. After researching on the web, it seems there are multiple symptoms associated with it. Medical science does not know what causes it & therefore don't talk about it.
 Quoting: ohhappydays


My theory is that you've been exposed to too much fluoride! Fluoride interfers with the thyroid gland which completely destroys your energy levels. It also fucks up your joints which makes you achey.

Here is a simple test:

Find yourself a iodine supplement at a health food or nutrition store. Take the recommended dose.

Cut out tap water if your local water is fluoridated. Drink bottled water like Cyrstal geyser (don't drink Dasani which is made by Coca Cola, or other cheap brands).

NEVER EVER swallow toothpaste, and better yet buy a non-fluoride one like Tom's of Maine.

Avoid antibiotics with "flox" in the name, like:

ciprofloxacin (also known as CIPRO)

Also avoid the antibiotic "levaquin"

Do these things for one month. Your energy levels should improve.

GOOD LUCK1
Anonymous Coward
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07/01/2011 12:02 AM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Has anyone ever been cured from Chronic Fatique Syndrome?

Doctors don't seem to know anything about it. After researching on the web, it seems there are multiple symptoms associated with it. Medical science does not know what causes it & therefore don't talk about it.
 Quoting: ohhappydays


My theory is that you've been exposed to too much fluoride! Fluoride interfers with the thyroid gland which completely destroys your energy levels. It also fucks up your joints which makes you achey.

Here is a simple test:

Find yourself a iodine supplement at a health food or nutrition store. Take the recommended dose.

Cut out tap water if your local water is fluoridated. Drink bottled water like Cyrstal geyser (don't drink Dasani which is made by Coca Cola, or other cheap brands).

NEVER EVER swallow toothpaste, and better yet buy a non-fluoride one like Tom's of Maine.

Avoid antibiotics with "flox" in the name, like:

ciprofloxacin (also known as CIPRO)

Also avoid the antibiotic "levaquin"

Do these things for one month. Your energy levels should improve.

GOOD LUCK1
 Quoting: Anonymous Coward 1422475


Also, if you can afford it take calcium and magnesium supplements, as well as a multivitamin.
Anonymous Coward (OP)
User ID: 1170246
Canada
07/02/2011 03:33 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Have you ever heard of a man getting CFS? Is it hormonal then? I don't know but I get impatient with people who use this diagnosis.
 Quoting: av 506919


This question has also come up for me. I have not heard of any men with this condition? Is anyone here a male that has had full-blown CFS??????

The label of CFS is used as a catch-all for the one main symptom we have which is chronic exhaustion or fatique. Its very debilitating & no matter how much exercise or healthy eating we do, it seems to make no difference.
Anonymous Coward (OP)
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07/02/2011 03:40 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
In Oz we get CFS as well as several other similar viruses (it is a virus) such as Ross River virus.

Many sufferers HAVE BEEN CURED - simply by getting a 'boot' from an Electric Fence. This cure was first found by farmers, and many have now used it. The medical folk do not believe in it, and will not even talk about it.

The other thing you can do for your health is helping your own body heal itself. This is done by boosting your own Stem Cells (no transplants or medicines) with a very simple natural product. More details can be found at [link to stemcellnutritionforyou.com]

I should know, as I did have Ross River virus, and for a few weeks, I could not even get out of bed without help. I am now nealry back to my old self of 15-20 years ago, and getting younger by the day.

hfhfhf
 Quoting: Eagle'sWings


Never heard of Ross River virus? Sounds like you were sick for a short period of time, whereas I've been going through this since at least 2006.

Think I'll pass up on the electric fence though.
Anonymous Coward (OP)
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07/02/2011 03:43 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
There are such things as spiritual illness. Depression has to be reconized by the person experiencing it before they can help themselfs.
 Quoting: Anonymous Coward 1432472


This is not depression. I know the difference.....my moods are fine & I am not isolating myself from people, which is typical of clinical depression. I am however frustrated that this fatique is having a major impact on my ability to do everyday things. Some days after the slightest activity, I come home exhausted & crash.
Anonymous Coward (OP)
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07/02/2011 03:48 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
I wrote kind of a harsh post before. Everyone is free (of course) to add their input. But don't say you have a CURE unless you had this problem definitely and severely and for at least a decade. If you got mono and felt icky for a year you didn't have cfs. But its always good to have input, cuz you never know what might help someone feel better.
This attitude of "oh I cured this problem thats has perplexed millions including drs healers and scientists the world over" is unbearable. No you didn't. You helped yourself which is great but you didnt find the cure to an utterly baffling perplexing and complex disease thats all i'm saying
 Quoting: Anonymous Coward 1334212


I call it the mystery disease. Do you have a theory as to what causes it? I wonder if chemtrails are involved, but why does not everyone become infected? Someone once said to me that they were an abductee & wondered if all abductees had this condition. Don't know if anyone is tracking any similarities between victims of this.
 Quoting: ohhappydays


Yes the mystery disease indeed.
Well I almost hate to say it but I think it has to do with balancing a debt basically. Karma.
I also believe that it has to do with the "soul" and basically not living the proper type of life. I often think of it as like an unforgiving teacher. It simply won't let you "go back" to your old life. I haven't figured it all out and still have a hard time listening.
I mean I have a million theories and ideas. I don't think its all angels and karma and higher-self; there is a definite darkness that I imagine most with this condition are aware of. Is it in them? I the world? It seems like cffs affects the more empathic and sensitve people.

Ive also wondered about the abduction connection. I read somewhere that someone calculated that the same percentage of people (1% of population, 3million in US) report abduction as there are people with CFS.. Who knows? I don't.
I also wonder about the govt attitude about this. It just doesn't smell right. It's like they're scared of something.
 Quoting: Anonymous Coward 1334212


Tks for your thoughts on the subject. I also find it interesting that no research or studies has been done on this. Its just not being taken seriously. So we are on our own, getting tests done & our dollars spent and getting nowhere in the end.
Nam Marine
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07/02/2011 04:57 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
I would help you, but I'm too tired!zzzz
Anonymous Coward
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07/02/2011 05:01 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
cfs means you either need more b12 or more being outside or both. get out of your house. every day. for at least a couple hours. enjoy the whole wide creation you were born a part of.
Euphraties
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07/02/2011 05:33 PM
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Re: ************CHRONIC FATIQUE SYNDROME********** HELP NEEDED!
Had it, Killed it...

Detox with citric acid 5 tsp per 2 liters...
Noni juice...
Gogie juice...
A good full regiment sports protein powder...

Had it for 2yrs after massive sickness...
Then after sickness completely disintegrated a disc in spine doctors could not find it at all with ct scan...
I was really down and out big time...

The detox is really important...
When i first took citric it blew me away...
Tasted like crap I was puttin 7 tsp per 2 liters and I felt really really weird after the fist 2 ltrs...
Had to sit down, felt things in my blood actin out big time...
And the protein powder even fixed my lactose intolerance...

It took a few weeks to get right but i just persevered and here i am all good...
Peace to u and many blessings hope you kill it the way i did best of luck to you... E