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My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.

 
Anonymous Coward
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03/15/2012 02:46 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.
Anonymous Coward
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03/15/2012 02:47 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


youre worried about possible antibiotic resistance when among the leading causes of death from connective tissue disorder is suicide?
The healthy have no idea the quality of life when one is swollen up and in constant fatigue, pain and general misery, and your body manifests all manner of rebellion that makes life seem intolerable.
Some of us dream of the occasional day or two without constant reminders of our limitations, a day of not worrying about being left alone in a pile of filth by those that dont understand, a day of attending to our normal needs as we once could without tears or frustration.
Anonymous Coward
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03/15/2012 02:50 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
should add to my last post that it is really irresponsible to cause a person to stop taking their meds without their own doctor's input**
Anonymous Coward
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03/15/2012 02:50 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
google
road back foundation,
to start.

The bottom line is treatment with either minocycline or doxycyline antibiotics seems to help quite a bit.

The good part about doxycycline is that you can by it from fish stores for cheap.

a variety of strategies that boost immune function have shown benefit in the autoimmune connective tissue disorders, and may be even more beneficial in combination, such as ldn and doxy together.
 Quoting: Anonymous Coward 11132818


We are doing this right now, with good results.

Five stars! Wish I could give you twenty!
Anonymous Coward
User ID: 11132818
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03/15/2012 02:55 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.
 Quoting: Anonymous Coward 10242376


mostly true to some degree, especially that 'cure' use, but there are no promises and no real on the horizon, the tnf meds are so dear, that almost nobody that is ill will earn the several thousand dollars per month this stuff costs, and who knows how long the various insurances will pay out the way things are going.
All the methods are, in the end, just delays, some longer and better than others.
There is no real objective test for most of this. There are multiple factors and succeptibilites.
In the end, all patients are lost by their doctors, or "doctors" just as the doctors themselves pass to what's next.
Anonymous Coward
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03/15/2012 02:55 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Thanks for the info!!!hf
Anonymous Coward
User ID: 11132818
United States
03/15/2012 02:57 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
google
road back foundation,
to start.

The bottom line is treatment with either minocycline or doxycyline antibiotics seems to help quite a bit.

The good part about doxycycline is that you can by it from fish stores for cheap.

a variety of strategies that boost immune function have shown benefit in the autoimmune connective tissue disorders, and may be even more beneficial in combination, such as ldn and doxy together.
 Quoting: Anonymous Coward 11132818


We are doing this right now, with good results.

Five stars! Wish I could give you twenty!
 Quoting: Anonymous Coward 12556002


Please take half a mo and share?
Anonymous Coward
User ID: 10242376
United States
03/15/2012 02:57 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.
 Quoting: Anonymous Coward 10242376


mostly true to some degree, especially that 'cure' use, but there are no promises and no real on the horizon, the tnf meds are so dear, that almost nobody that is ill will earn the several thousand dollars per month this stuff costs, and who knows how long the various insurances will pay out the way things are going.
All the methods are, in the end, just delays, some longer and better than others.
There is no real objective test for most of this. There are multiple factors and succeptibilites.
In the end, all patients are lost by their doctors, or "doctors" just as the doctors themselves pass to what's next.
 Quoting: Anonymous Coward 11132818


It's the difference between reactive arthritis and autoimmune disease. OP is confused. Expense is irrelevant. Antibiotics will not help someone with an autoimmune disease.
Anonymous Coward
User ID: 11132818
United States
03/15/2012 03:05 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.
 Quoting: Anonymous Coward 10242376


mostly true to some degree, especially that 'cure' use, but there are no promises and no real on the horizon, the tnf meds are so dear, that almost nobody that is ill will earn the several thousand dollars per month this stuff costs, and who knows how long the various insurances will pay out the way things are going.
All the methods are, in the end, just delays, some longer and better than others.
There is no real objective test for most of this. There are multiple factors and succeptibilites.
In the end, all patients are lost by their doctors, or "doctors" just as the doctors themselves pass to what's next.
 Quoting: Anonymous Coward 11132818


It's the difference between reactive arthritis and autoimmune disease. OP is confused. Expense is irrelevant. Antibiotics will not help someone with an autoimmune disease.
 Quoting: Anonymous Coward 10242376


Do you speak from experience? My last rheumy visit, some years back, she suggested since nothing was working, she could try doxy as there is reported antiinflammatory activity in the literature.
Since I felt I knew more than she for reasons I wont go into, I've been doing for myself now for years pretty well, outside the system, doing any number of things myself.
So feel free to chime in with some experience, and not just wiki larnin..
daisey

User ID: 1478709
United States
03/15/2012 03:14 PM

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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Herbalist shows you how to make pain killing formula using foods rather than pharmaceutical drugs..

[link to youtu.be]
"On Christ the solid Rock I stand!
All other ground is sinking sand!"
Anonymous Coward
User ID: 10242376
United States
03/15/2012 03:14 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
...


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.
 Quoting: Anonymous Coward 10242376


mostly true to some degree, especially that 'cure' use, but there are no promises and no real on the horizon, the tnf meds are so dear, that almost nobody that is ill will earn the several thousand dollars per month this stuff costs, and who knows how long the various insurances will pay out the way things are going.
All the methods are, in the end, just delays, some longer and better than others.
There is no real objective test for most of this. There are multiple factors and succeptibilites.
In the end, all patients are lost by their doctors, or "doctors" just as the doctors themselves pass to what's next.
 Quoting: Anonymous Coward 11132818


It's the difference between reactive arthritis and autoimmune disease. OP is confused. Expense is irrelevant. Antibiotics will not help someone with an autoimmune disease.
 Quoting: Anonymous Coward 10242376


Do you speak from experience? My last rheumy visit, some years back, she suggested since nothing was working, she could try doxy as there is reported antiinflammatory activity in the literature.
Since I felt I knew more than she for reasons I wont go into, I've been doing for myself now for years pretty well, outside the system, doing any number of things myself.
So feel free to chime in with some experience, and not just wiki larnin..
 Quoting: Anonymous Coward 11132818


You, sir, are not getting what I am saying.

OP is talking about antibiotics for the purpose of antibiotic usage, not anti-inflammatory usage.

If someone needs and anti-inflammatory, that's what they should take.

My best friend is a walking disaster of this stuff and she was the one that mentioned the reactive arthritis thing. She would know from experience from this nightmare she's been living for so long.

However, I have an autoimmune disease book hanging out right next to my bed for the last several months. I don't go on wiki for autoimmune diseases because I don't need to and it doesn't have as much info as this book I have.

Antibiotics taken in excess are really dangerous for joints and I wouldn't want to sacrifice my joints to experiment with antibiotics.

That said, I have my own issues and take Gabapentin for it, but you are right! I am busy wiki-ing everything. I haven't even looked at wiki in the last week.
SevenThunders

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03/15/2012 03:23 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Does it work for MS?
 Quoting: JAKLAX


Here ya go. Yes it does in the right combinations. Best site ever on this topic. Helps also for Lyme which causes MS like symptoms and has a similar bacteria root cause.

[link to www.davidwheldon.co.uk]
[link to www.cpnhelp.org]

Now the trick is to find doctors willing to try it.
Anonymous Coward
User ID: 652961
United States
03/15/2012 03:26 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
One day 20 years ago, I was working out in the yard when I noticed my hand/fingers had really swollen up and become stiff. The day before, my wrist was swollen and stiff. I went to the doctor and he said it was arthritis, but I had no family history of arthritis. The doctor put me on mega doses of time release aspirin.

As things progressed, the swelling, stiffness, and pain would travel to what ever joints I had used the most the previous day. It got to the point where I would just cry because it hurt so bad to do anything and I had small children to care for so there was no way I could sit and do nothing.

I went to the library and did research with the books that were available, no internet for me back then. I found out that some arthritis symptoms can be cured by taking antibiotics. I went to my doctor and demanded some. He finally gave in and put me on tetracycline.

Within a week the arthritis symptoms were gone and have never come back.

It wasn’t until about 10 years ago that I learned that food poisoning and/or salmonella can cause arthritis conditions as an after effect. And I did have food poisoning before this arthritic bout from eating a bad chicken sandwich.

So yeah, antibiotics can work in some circumstances
Anonymous Coward
User ID: 11132818
United States
03/15/2012 03:35 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.


mostly true to some degree, especially that 'cure' use, but there are no promises and no real on the horizon, the tnf meds are so dear, that almost nobody that is ill will earn the several thousand dollars per month this stuff costs, and who knows how long the various insurances will pay out the way things are going.
All the methods are, in the end, just delays, some longer and better than others.
There is no real objective test for most of this. There are multiple factors and succeptibilites.
In the end, all patients are lost by their doctors, or "doctors" just as the doctors themselves pass to what's next.


It's the difference between reactive arthritis and autoimmune disease. OP is confused. Expense is irrelevant. Antibiotics will not help someone with an autoimmune disease.


Do you speak from experience? My last rheumy visit, some years back, she suggested since nothing was working, she could try doxy as there is reported antiinflammatory activity in the literature.
Since I felt I knew more than she for reasons I wont go into, I've been doing for myself now for years pretty well, outside the system, doing any number of things myself.
So feel free to chime in with some experience, and not just wiki larnin..


You, sir, are not getting what I am saying.

OP is talking about antibiotics for the purpose of antibiotic usage, not anti-inflammatory usage.

If someone needs and anti-inflammatory, that's what they should take.

My best friend is a walking disaster of this stuff and she was the one that mentioned the reactive arthritis thing. She would know from experience from this nightmare she's been living for so long.

However, I have an autoimmune disease book hanging out right next to my bed for the last several months. I don't go on wiki for autoimmune diseases because I don't need to and it doesn't have as much info as this book I have.

Antibiotics taken in excess are really dangerous for joints and I wouldn't want to sacrifice my joints to experiment with antibiotics.

That said, I have my own issues and take Gabapentin for it, but you are right! I am busy wiki-ing everything. I haven't even looked at wiki in the last week.



Oh I see what you are sayin, but you dont know what you are sayin, with all due respect.
The problem for us, is there is little functional way to differentiate the various stages of articular inflammation, there is marked variability of diagnosis from doctor to doctor, so in effect youre making a distinction without a reliably provable difference. There are a variety of issues you overlook, such as potential chronic subclinical infections with obscure organisms hard to document given standard methods, and the (again) documented direct antiinfammatory actions of various antibiotics in mainstream medical literature.
I have had some notable results with recommendations using the subclinical infection theory as the basis, and know of other proofs of the theory in other conditions, (wiki bittner virus) not traditionally thought to be infections, like cancer.
Take LDN frinstance, really helped, the biochemistry is not obscure, simply the application goes against traditional therapy, as the drug acts as a supplement to the system, rather than the drugs direct effect on the problem.
The results, some of them, were almost overnight, yet, it's not an antiinflammatory, yet pain and fatigue improved, potentiated other antiinflammatories, brainfog dispersed, as did rls and xeropthalmia, and almost no more fever blisters or flares. And what was the mechanism?
Enhancing t4 lymphosite function, the very white blood cell line that improves resistance from infection by viruses, parasites and, incidentally, cancers( see bittner virus).
There are other things one can do, as a balanced protocol, so, unless you have the depth of knowledge to REALLY get into the material, dont so readily dispense with what you dont understand fully until youve spent a few years in the proper moccasins.
Best regards,
Anonymous Coward
User ID: 11132818
United States
03/15/2012 03:45 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Does it work for MS?
 Quoting: JAKLAX


Here ya go. Yes it does in the right combinations. Best site ever on this topic. Helps also for Lyme which causes MS like symptoms and has a similar bacteria root cause.

[link to www.davidwheldon.co.uk]
[link to www.cpnhelp.org]

Now the trick is to find doctors willing to try it.
 Quoting: SevenThunders


Similar findings with chronic fatigue, progressive ms, crohns, even autism and others with use of ldn, maybe it's a different method for attacking the same problem, occult infection with intracellular infective agents?
There is much to implicate subclinical infection as potential causes of so-called mystery diseases
DaKine

User ID: 1528091
United States
03/15/2012 03:52 PM

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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
too lazy to read... but what is this magical low-cost therapy? i want to cure my friends and family.
 Quoting: Anonymous Coward 10951434


Guess you don't want to cure them all that badly then, do you?
 Quoting: Dr. Anomaly



why not just summarize instead of wasting peoples time?
 Quoting: Anonymous Coward 10951434


He did....you idiot!
 Quoting: Anonymous Coward 12031867


+1 ^^^^^
Anonymous Coward
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03/15/2012 03:59 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
 Quoting: Anonymous Coward 11132818


Yes, and OP probably shouldn't be using the word cure (whether directly or alluding to) on this site with the idea of a disease(s).

There are a lot of holes in OP's theory.

1) antibiotic resistance (as you mentioned)
2) once the body is attacking itself, it does not stop, it just flares up.
3) chemicals can cause these diseases too, not just bacteria (or else they would not be concentrated in some areas and not concentrated in others. contagion is contagion. it doesn't build walls around neighborhoods and/or cities the way local pollution tends to be localized)
4) OP is on anti-inflammatory even though she has been cured
5) OP is referring to reactive arthritis, but not autoimmune disease. Once it goes autoimmune, you are stuck.

OP!! I know you mean well, but this is not the way things work, and this is not how you fix health issues with people.


mostly true to some degree, especially that 'cure' use, but there are no promises and no real on the horizon, the tnf meds are so dear, that almost nobody that is ill will earn the several thousand dollars per month this stuff costs, and who knows how long the various insurances will pay out the way things are going.
All the methods are, in the end, just delays, some longer and better than others.
There is no real objective test for most of this. There are multiple factors and succeptibilites.
In the end, all patients are lost by their doctors, or "doctors" just as the doctors themselves pass to what's next.


It's the difference between reactive arthritis and autoimmune disease. OP is confused. Expense is irrelevant. Antibiotics will not help someone with an autoimmune disease.


Do you speak from experience? My last rheumy visit, some years back, she suggested since nothing was working, she could try doxy as there is reported antiinflammatory activity in the literature.
Since I felt I knew more than she for reasons I wont go into, I've been doing for myself now for years pretty well, outside the system, doing any number of things myself.
So feel free to chime in with some experience, and not just wiki larnin..


You, sir, are not getting what I am saying.

OP is talking about antibiotics for the purpose of antibiotic usage, not anti-inflammatory usage.

If someone needs and anti-inflammatory, that's what they should take.

My best friend is a walking disaster of this stuff and she was the one that mentioned the reactive arthritis thing. She would know from experience from this nightmare she's been living for so long.

However, I have an autoimmune disease book hanging out right next to my bed for the last several months. I don't go on wiki for autoimmune diseases because I don't need to and it doesn't have as much info as this book I have.

Antibiotics taken in excess are really dangerous for joints and I wouldn't want to sacrifice my joints to experiment with antibiotics.

That said, I have my own issues and take Gabapentin for it, but you are right! I am busy wiki-ing everything. I haven't even looked at wiki in the last week.



Oh I see what you are sayin, but you dont know what you are sayin, with all due respect.
The problem for us, is there is little functional way to differentiate the various stages of articular inflammation, there is marked variability of diagnosis from doctor to doctor, so in effect youre making a distinction without a reliably provable difference. There are a variety of issues you overlook, such as potential chronic subclinical infections with obscure organisms hard to document given standard methods, and the (again) documented direct antiinfammatory actions of various antibiotics in mainstream medical literature.
I have had some notable results with recommendations using the subclinical infection theory as the basis, and know of other proofs of the theory in other conditions, (wiki bittner virus) not traditionally thought to be infections, like cancer.
Take LDN frinstance, really helped, the biochemistry is not obscure, simply the application goes against traditional therapy, as the drug acts as a supplement to the system, rather than the drugs direct effect on the problem.
The results, some of them, were almost overnight, yet, it's not an antiinflammatory, yet pain and fatigue improved, potentiated other antiinflammatories, brainfog dispersed, as did rls and xeropthalmia, and almost no more fever blisters or flares. And what was the mechanism?
Enhancing t4 lymphosite function, the very white blood cell line that improves resistance from infection by viruses, parasites and, incidentally, cancers( see bittner virus).
There are other things one can do, as a balanced protocol, so, unless you have the depth of knowledge to REALLY get into the material, dont so readily dispense with what you dont understand fully until youve spent a few years in the proper moccasins.
Best regards,


You are just merely bringing up anecdotal evidence, and LDN isn't listed as an antibiotic, dear. I'm not saying an antibiotic cannot have anti-inflammatory action, never once did I say *that* so you are putting words in my mouth. I'm not saying 1 drug can't have multiple uses. I'm saying antibiotics should only be used for bacteria only because of the damage they can do to one body, and to the entire population here on planet earth. I don't really want to see the results of mass-usage of antibiotics. But further to that, regardless of anti-inflammatory effect, OP STATES very directly and openly that she is still on anti-inflammatory on top of her antibiotics that supposedly fixed her ailments. So if the mechanism were even just the antimicrobial property, that alone has NOT been enough for OP, and it likely won't be enough for anyone else either.

I am saying that what OP is effectively doing is telling people what to take, which is the point of a doctor (like the one that prescribed to you that LDN fr'instance). This can lead to lawsuits and legal issues.

Let's go beyond that though, there are multiple uses for many meds but specifically, the aforementioned doxycycline and going to live feed stores to purchase this, could cause more problems than benefit in the long run. No thanks to tendon ruptures and joint ailments to cure similar pain symptoms. Those aren't flareups--that becomes permanent.

Folks, take in a dose of reality. If your doc doesn't prescribe something to you, don't go taking it without first consulting the doctor. Don't listen to people online that tell you what will cure your ails without talking to your doctor. Don't waste money on purported fix-alls and stop taking your own prescribed meds because that can cause problems in the long run.

Long term LDN usage isn't going to be half as hazardous to the body as long term antibiotic usage. Antibiotics kills natural flora. You will create issues in your bowels (and wind up with other issues) through long term usage, among other things already mentioned.

So sure, it might be great for someone with minimal autoimmune issues, but even then it probably isn't all that healthy to take for the rest of ones life. You don't agree?

OP also states to stop taking pharmaceuticals. How is an antibiotic not a pharmaceutical? :D
Anonymous Coward
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03/15/2012 04:04 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


youre worried about possible antibiotic resistance when among the leading causes of death from connective tissue disorder is suicide?
The healthy have no idea the quality of life when one is swollen up and in constant fatigue, pain and general misery, and your body manifests all manner of rebellion that makes life seem intolerable.
Some of us dream of the occasional day or two without constant reminders of our limitations, a day of not worrying about being left alone in a pile of filth by those that dont understand, a day of attending to our normal needs as we once could without tears or frustration.
 Quoting: Anonymous Coward 11132818


Yes, I am. I also have an autoimmune bomb that caused me to go on permanent disability at the age of 25, including systemic sclerosis (scleroderma - a connective tissue disease) and end-stage primary biliary cirrhosis. And, yet, I am still more worried about not screwing up my children's future world than I am about my own limitations. I am far from "the healthy". I understand the pain. But, yes, I am still worried about it and about people taking advantage of the sick and desperate and exploiting that pain for their own profit.
kfitz

User ID: 1486313
United States
03/15/2012 04:06 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


youre worried about possible antibiotic resistance when among the leading causes of death from connective tissue disorder is suicide?
The healthy have no idea the quality of life when one is swollen up and in constant fatigue, pain and general misery, and your body manifests all manner of rebellion that makes life seem intolerable.
Some of us dream of the occasional day or two without constant reminders of our limitations, a day of not worrying about being left alone in a pile of filth by those that dont understand, a day of attending to our normal needs as we once could without tears or frustration.
 Quoting: Anonymous Coward 11132818


Yes, I am. I also have an autoimmune bomb that caused me to go on permanent disability at the age of 25, including systemic sclerosis (scleroderma - a connective tissue disease) and end-stage primary biliary cirrhosis. And, yet, I am still more worried about not screwing up my children's future world than I am about my own limitations. I am far from "the healthy". I understand the pain. But, yes, I am still worried about it and about people taking advantage of the sick and desperate and exploiting that pain for their own profit.
 Quoting: Anonymous Coward 12100946


exploiting the sick and disabled is what the American Medical Association does best but there are a lot of us waking up to it. vibrations and frequencies can and will lead us to longer and healthier lives. look up dr. royal rife and his wonderful invention from the 1930,s. how those monsters at the AMA have gotten away with suppressing amazing technology is beyond me.
Eagle # 1
User ID: 12496891
United States
03/15/2012 04:10 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Jaxlax Pager ONE ..... the cure for MS was posted on U-Tube by a female doctor who had it for SEVEN YEARS and finally cured herself ( WITH pictures AND cavorting about the stage microphone in hand like a TEEN ) BY EATING two or THREE salads a day, along with fruits and vitamin B-1, B-6, B-9 and B-12.

I stopped LUNG CANCER for 18 YEARS to date, by taking Flax Seed Oil in capsules from Wal Mart ( 12-1300 mgs about $11 a bottle of 250 ) three times a day, and tomorrow IS my 84th birthday ! A molecule within the oil that has cyanide and benzoaldehyde KILL the cancer cells WHEN, an enzyme from the cancer cells tries to 'uncouple' the bonds between two sugar molecules it is connected to to GET the sugar ! BUT, youiMUST cut sugar intake down to near ZERO to make it REALLY effective !

Eagle
Anonymous Coward
User ID: 12100946
Canada
03/15/2012 04:10 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


youre worried about possible antibiotic resistance when among the leading causes of death from connective tissue disorder is suicide?
The healthy have no idea the quality of life when one is swollen up and in constant fatigue, pain and general misery, and your body manifests all manner of rebellion that makes life seem intolerable.
Some of us dream of the occasional day or two without constant reminders of our limitations, a day of not worrying about being left alone in a pile of filth by those that dont understand, a day of attending to our normal needs as we once could without tears or frustration.
 Quoting: Anonymous Coward 11132818


Yes, I am. I also have an autoimmune bomb that caused me to go on permanent disability at the age of 25, including systemic sclerosis (scleroderma - a connective tissue disease) and end-stage primary biliary cirrhosis. And, yet, I am still more worried about not screwing up my children's future world than I am about my own limitations. I am far from "the healthy". I understand the pain. But, yes, I am still worried about it and about people taking advantage of the sick and desperate and exploiting that pain for their own profit.
 Quoting: Anonymous Coward 12100946


exploiting the sick and disabled is what the American Medical Association does best but there are a lot of us waking up to it. vibrations and frequencies can and will lead us to longer and healthier lives. look up dr. royal rife and his wonderful invention from the 1930,s. how those monsters at the AMA have gotten away with suppressing amazing technology is beyond me.
 Quoting: kfitz


Oh wow, I hope that's a sarcastic post.
Anonymous Coward
User ID: 10242376
United States
03/15/2012 04:19 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Also, won't long term antibiotic therapy (especially starting and stopping) cause antibiotic resistance in these bacteria?
 Quoting: Anonymous Coward 12100946


youre worried about possible antibiotic resistance when among the leading causes of death from connective tissue disorder is suicide?
The healthy have no idea the quality of life when one is swollen up and in constant fatigue, pain and general misery, and your body manifests all manner of rebellion that makes life seem intolerable.
Some of us dream of the occasional day or two without constant reminders of our limitations, a day of not worrying about being left alone in a pile of filth by those that dont understand, a day of attending to our normal needs as we once could without tears or frustration.
 Quoting: Anonymous Coward 11132818


Yes, I am. I also have an autoimmune bomb that caused me to go on permanent disability at the age of 25, including systemic sclerosis (scleroderma - a connective tissue disease) and end-stage primary biliary cirrhosis. And, yet, I am still more worried about not screwing up my children's future world than I am about my own limitations. I am far from "the healthy". I understand the pain. But, yes, I am still worried about it and about people taking advantage of the sick and desperate and exploiting that pain for their own profit.
 Quoting: Anonymous Coward 12100946


I couldn't have said it better myself.
kfitz

User ID: 1486313
United States
03/15/2012 04:19 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
...


youre worried about possible antibiotic resistance when among the leading causes of death from connective tissue disorder is suicide?
The healthy have no idea the quality of life when one is swollen up and in constant fatigue, pain and general misery, and your body manifests all manner of rebellion that makes life seem intolerable.
Some of us dream of the occasional day or two without constant reminders of our limitations, a day of not worrying about being left alone in a pile of filth by those that dont understand, a day of attending to our normal needs as we once could without tears or frustration.
 Quoting: Anonymous Coward 11132818


Yes, I am. I also have an autoimmune bomb that caused me to go on permanent disability at the age of 25, including systemic sclerosis (scleroderma - a connective tissue disease) and end-stage primary biliary cirrhosis. And, yet, I am still more worried about not screwing up my children's future world than I am about my own limitations. I am far from "the healthy". I understand the pain. But, yes, I am still worried about it and about people taking advantage of the sick and desperate and exploiting that pain for their own profit.
 Quoting: Anonymous Coward 12100946


exploiting the sick and disabled is what the American Medical Association does best but there are a lot of us waking up to it. vibrations and frequencies can and will lead us to longer and healthier lives. look up dr. royal rife and his wonderful invention from the 1930,s. how those monsters at the AMA have gotten away with suppressing amazing technology is beyond me.
 Quoting: kfitz


Oh wow, I hope that's a sarcastic post.
 Quoting: Anonymous Coward 12100946


sarcasm pertaining to what? you agree with the AMA up there in canada?
Anonymous Coward
User ID: 11132818
United States
03/15/2012 04:19 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
all I can say is I've seen it work in people and dogs, so, that is no longer anecdotal evidence to a trained observer.
In any respect nobody leaves here alive, so do your best as you see fit.
Eventually one chooses what one does, to the best of ones ability, education, and experience.
Youre correct in one thing though, ldn in the tiny doses used is probably safer than water
ParamedicUK

User ID: 9974893
United Kingdom
03/15/2012 04:22 PM

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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Look up LDN - it works!
ParamedicUK

User ID: 9974893
United Kingdom
03/15/2012 04:24 PM

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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
[link to www.ldnresearchtrust.org]
Anonymous Coward
User ID: 12572452
United States
03/15/2012 04:29 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
too lazy to read... but what is this magical low-cost therapy? i want to cure my friends and family.
 Quoting: Anonymous Coward 10951434


Guess you don't want to cure them all that badly then, do you?
 Quoting: Dr. Anomaly



why not just summarize instead of wasting peoples time?
 Quoting: Anonymous Coward 10951434


This is not a waste of people's time. This is a must read and a 5 starer!!!

I was diagnosed with RA about 3 years ago. I have stayed away from all the management drugs and I will tell you why.

After my diagnosis of RA I came down with spinal meningitis. Up to that point I was in a lot of pain. Spine, knees, feet. It was horrible in the morning trying to get out of bed. When I came down with spinal meningitis I was hospitalized and put on IV antibiotics. The pain subsided and stayed around a level 2 on the pain scale. The hugh amount of antibiotics I was given beat it down. Of course no doctor would agree with me. My common sense was telling me that this had to be it and when you read all the side effects from the RA management drugs there was no way in hell that I was going to take them.

Right now I am on 100mg antibiotics for an on going eye infection. I am on the antibiotics for 30 days. The RA pain has subsided again.

I will get on these websites and follow through. I will also pass this along to other people.
Anonymous Coward
User ID: 12572452
United States
03/15/2012 04:33 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Jaxlax Pager ONE ..... the cure for MS was posted on U-Tube by a female doctor who had it for SEVEN YEARS and finally cured herself ( WITH pictures AND cavorting about the stage microphone in hand like a TEEN ) BY EATING two or THREE salads a day, along with fruits and vitamin B-1, B-6, B-9 and B-12.

I stopped LUNG CANCER for 18 YEARS to date, by taking Flax Seed Oil in capsules from Wal Mart ( 12-1300 mgs about $11 a bottle of 250 ) three times a day, and tomorrow IS my 84th birthday ! A molecule within the oil that has cyanide and benzoaldehyde KILL the cancer cells WHEN, an enzyme from the cancer cells tries to 'uncouple' the bonds between two sugar molecules it is connected to to GET the sugar ! BUT, youiMUST cut sugar intake down to near ZERO to make it REALLY effective !

Eagle
 Quoting: Eagle # 1 12496891


Did you go through chemo and radiation? What stage lung cancer. I ask because my husband has been diagnosed with stage 3 lung cancer. Not small cell. He is going through chemo and rad. I will supplement this with flaxseed oil if this works.
Anonymous Coward
User ID: 12572452
United States
03/15/2012 04:34 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
Jaxlax Pager ONE ..... the cure for MS was posted on U-Tube by a female doctor who had it for SEVEN YEARS and finally cured herself ( WITH pictures AND cavorting about the stage microphone in hand like a TEEN ) BY EATING two or THREE salads a day, along with fruits and vitamin B-1, B-6, B-9 and B-12.

I stopped LUNG CANCER for 18 YEARS to date, by taking Flax Seed Oil in capsules from Wal Mart ( 12-1300 mgs about $11 a bottle of 250 ) three times a day, and tomorrow IS my 84th birthday ! A molecule within the oil that has cyanide and benzoaldehyde KILL the cancer cells WHEN, an enzyme from the cancer cells tries to 'uncouple' the bonds between two sugar molecules it is connected to to GET the sugar ! BUT, youiMUST cut sugar intake down to near ZERO to make it REALLY effective !

Eagle
 Quoting: Eagle # 1 12496891


Did you go through chemo and radiation? What stage lung cancer. I ask because my husband has been diagnosed with stage 3 lung cancer. Not small cell. He is going through chemo and rad. I will supplement this with flaxseed oil if this works.
Anonymous Coward
User ID: 10242376
United States
03/15/2012 04:34 PM
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Re: My story and the incredible, little-known-of treatment - for Lupus, Rheumatoid Arthritis, Ankylosing Spondylitis, Scleroderma, etc.
all I can say is I've seen it work in people and dogs, so, that is no longer anecdotal evidence to a trained observer.
In any respect nobody leaves here alive, so do your best as you see fit.
Eventually one chooses what one does, to the best of ones ability, education, and experience.
Youre correct in one thing though, ldn in the tiny doses used is probably safer than water
 Quoting: Anonymous Coward 11132818


I don't live by just "what gets me by happily"...I have to think about the generations after me because I plan to reincarnate. Ok, so maybe that is a little selfish, but even if I move on to another planet in some other solar system elsewhere in the universe, it is still the right thing to do to not abuse this planet for those that come after me. Antibiotics are really dangerous for all creatures of the planet. I care, in a silly hippy sort of way.

Further, medical advice from online people is not doctor advice. Can you get better on just antibiotics? Even OP still takes anti-inflammatories, or else she would just be on said antibiotics. It's deductive reasoning here. Certainly wouldn't work for my friend. She has issues in pretty much every joint of her body and took antibiotics for pretty long term and it didn't help her symptoms at all. She wasn't taking it for that though, but either way it didn't help. As I said, sure, might help someone with a really limited autoimmune issue, but not when it's full-fledged all-over-the-body pain.

To what you said about diagnostics, I do understand there are different measures and nothing set in stone. It's a timing thing. One precedes the other. If a doc prescribes antibiotics and it works, well then, there ya go. But if it doesn't work, I wouldn't continue taking it because that's just putting the body through hell. Key point here: at a minimum see a doc before putting a medicine in your body. Too many meds when mixed can be dangerous and/or allergic reactions...if you don't have a prescription and have a terrible reaction at some point and wind up in an ER unable to talk, and the only thing that talks is your medical history, you are screwered.

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