Oh, what a sad story. I really feel for you and your family.

All government programs ultimately SUCK! We have been made a bunch of false promises.

My suggestion is that you try to find a part-time sitter (not necessarily a nurse) who can stay with her to make up some of those missing hours. Perhaps a student? With the economy in the toilet you may be able to find someone very inexpensively.

She needs to stay in her own home if that's what she wants.

Take care.