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CIDP

 
Anonymous Coward
User ID: 2257681
United States
11/07/2012 05:22 AM
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CIDP
Chronic inflammatory demyelinating polyneourapathy. A nerve disorder similar to MS and Lou Gehrigs combined. Been living with it for 9 years I'm in so much pain and wasting all over my body but GLP is medicine you guys keep me going! Would not wish this desease on my worst enemy. I'm going through 5 days of Ivig infusion lost all my hair I look like a cool skeleton lol! Im alive just thought I would share I'm in so much pain.pump2
Anonymous Coward (OP)
User ID: 2257681
United States
11/07/2012 05:27 AM
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Re: CIDP
CIDP sucks!rockon
goodmockingbird
Home of the EF5 Tornados, Now with Beheading!

User ID: 11364251
United States
11/07/2012 05:28 AM

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Re: CIDP
Cool you are hanging out with us!

hf
Anonymous Coward (OP)
User ID: 2257681
United States
11/07/2012 05:33 AM
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Re: CIDP
Cool you are hanging out with us!

hf
 Quoting: goodmockingbird

Thank you! Dam I bet you are a coolio type of person good mockingbird. Thanks for letting me hang with you!!hfp
dikkie

User ID: 1328988
Netherlands
11/07/2012 05:40 AM

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Re: CIDP
good morning OP. Stay strong.

hfhf
Anonymous Coward (OP)
User ID: 2257681
United States
11/07/2012 05:45 AM
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Re: CIDP
good morning OP. Stay strong.

hfhf
 Quoting: dikkie


Thank you dikkie. hf
Anonymous Coward
User ID: 25816768
United Kingdom
11/07/2012 05:47 AM
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Re: CIDP
i have never heard of your medical condition but by golly, i am counting my blessings, and sending you some hf
Jaid0gz

User ID: 2630300
Australia
11/07/2012 05:47 AM
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Re: CIDP
That sucks man! What is the determined outcome of treatment?

Have you looked at alternative medicine, including Traditional Chinese Medicine?

I have no information on this disease, but I hope your state of mind is stable.

Weed might help you take your mind off the pain :)
Anonymous Coward (OP)
User ID: 2257681
United States
11/07/2012 06:05 AM
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Re: CIDP
i have never heard of your medical condition but by golly, i am counting my blessings, and sending you some hf
 Quoting: Anonymous Coward 25816768


It's a horrible ailment on every level. I use to weigh 230 pounds, in less than 3 months I now weigh 155 with lots of muscle wasting. My hands have taken the brunt of my disease they look like small baby gorilla hands without the hand strength. Thank you for your blessingshfl
Anonymous Coward (OP)
User ID: 2257681
United States
11/07/2012 06:11 AM
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Re: CIDP
That sucks man! What is the determined outcome of treatment?

Have you looked at alternative medicine, including Traditional Chinese Medicine?

I have no information on this disease, but I hope your state of mind is stable.

Weed might help you take your mind off the pain :)
 Quoting: Jaid0gz
. I tried acupuncture not good, steroids made me worse and yes weed for awhile just made me tired no focus but I liked it, expensive after awhile. Thanks Jadehf

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