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Just Diagnosed with LYME DISEASE!

 
Anonymous Coward
User ID: 1550123
United States
11/15/2012 12:09 AM
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Re: Just Diagnosed with LYME DISEASE!
Do some research on taking mangesium for Lyme Disease.

[link to www.google.com]
Anonymous Coward
User ID: 10153246
United States
11/15/2012 12:19 AM
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Re: Just Diagnosed with LYME DISEASE!
I was diagnosed in April after 12+ doctors and 3 pages of smyptoms...I am 41 and now bed ridden with it. The pain is absolutely excuriating. The dr thinks mine laid dormant for years after a tick bite.

I know of no one who has it and I am in GA...not know for lyme. What state are you in? From all my research it is NOT airborne or in saliva. If you have not seen the movie on hulu or youtube "under our skin" I highly recommend it.

I have a PICC line now. I will keep your family in my prayers.
 Quoting: Anonymous Coward 22892874


According to a few doctors I have listed to, Lyme disease can be transmitted via air, saliva or contact. It is much worse then AIDS or HIV. We are taking SAMENTO..
He got bit in RHODE ISLAND, we never got bit, unless he brought a pile of ticks back?
 Quoting: Anonymous Coward 14553694


yes... the true experts admit it can be transmitted person to person. (definitely sexually)

increase salt intake (Himalayan sea) and all but eliminate sugar from your diets. absolutely do not use sugar substitutes either. walk for 30 to 45 minutes a day. doxy seems to be the antibiotic of choice... you can spend a ton on them.. or do it cheaply.

most people that have it think it is chronic fatigue, arthritis, fibro, etc.
Squatch Hunter

User ID: 25765147
United States
11/15/2012 12:43 AM
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Re: Just Diagnosed with LYME DISEASE!
Dr Steven Harris is the President of the Lyme Disease Association of California (Redwood City) and one of the best Lyme Doctors in the Country. If I'm not mistaken his dad owns IGENICS. If any of you people live in California, he's the guy to see. Seriously.

Chronic Lyme is a bitch. Especially if its crossed the blood brain barrier. If it has, you guys have to be on and off IV antibiotics for a long time. PICC lines work but are a pain in the ass to deal with. If you're facing the prospect of long term treatment a port is better. Its a damn tough, long road but in the end you'll get better if you're able to afford the treatment.

WARNING...Most infectious disease doctors aren't lyme litterate and use CDC guidelines for treatment. One month IV antibiotics. That may work if you've recently contacted the disease but if its chronic, it could take years of that kind of treatment. Insurance companies won't fork out that kind of money. If you're disabled and can get on Medicaid, you only need a prior authorization and can get long term treatment without going bankrupt.

Good luck you guys. I know what you're going thru. Hang in there.
Squatch Hunter

User ID: 25765147
United States
11/15/2012 12:55 AM
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Re: Just Diagnosed with LYME DISEASE!
I was diagnosed in April after 12+ doctors and 3 pages of smyptoms...I am 41 and now bed ridden with it. The pain is absolutely excuriating. The dr thinks mine laid dormant for years after a tick bite.

I know of no one who has it and I am in GA...not know for lyme. What state are you in? From all my research it is NOT airborne or in saliva. If you have not seen the movie on hulu or youtube "under our skin" I highly recommend it.

I have a PICC line now. I will keep your family in my prayers.
 Quoting: Anonymous Coward 22892874


Chronic Lyme lays dormant for years than manifests itself as MS, Lupus, RA, Lou Gehrigs, Fibromyalgia etc etc. Surprisingly, the UN of all organizations, has done a lot of research on Lyme. They call it the "Great Imitator" as it pretends to be all these other diseases.

Most people spend about 8 years of getting misdiagnosed before catching Lyme. My advice is to get a port installed if that's possible. Your quality of life will improve.
Anonymous Coward (OP)
User ID: 14553694
Canada
11/15/2012 12:57 AM
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Re: Just Diagnosed with LYME DISEASE!
port installed..What is that??
422

User ID: 27775997
United States
11/15/2012 12:58 AM
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Re: Just Diagnosed with LYME DISEASE!
tics

you better watch out

that shit will make you CRAZY literally & permanently
 Quoting: ^TrInItY^


He came to the right place then.
“You have rights antecedent to all earthly governments; rights that cannot be repealed or restrained by human laws; rights derived from the Great Legislator of the Universe.” John Adams, Second President of the United States
Anonymous Coward
User ID: 7554855
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11/15/2012 01:04 AM
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Re: Just Diagnosed with LYME DISEASE!
OP: what type of test is done to determine if one has Lyme's? Also, did your regular GP order the test for you?
Squatch Hunter

User ID: 25765147
United States
11/15/2012 01:04 AM
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Re: Just Diagnosed with LYME DISEASE!
Going to Lyme literate doctor tomorrow to get tested. I have 95% of the symptoms.
 Quoting: Anonymous Coward 14393616


FYI....Lyme is a clinical diagnosis FIRST. If your doctor suspects Lyme may be the culprit, he shouldn't just give you a test. If he does, it may yield a false negative. After a clinical diagnosis, he should put you on heavy oral antibiotics for 45 days THAN RUN THE TEST and send the blood to IGENICS. Not only will IGENICS be able to screen for Lyme but they can also look for the Co-Infections that normally go along with the disease.
Anonymous Coward
User ID: 1302314
Australia
11/15/2012 01:07 AM
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Re: Just Diagnosed with LYME DISEASE!
I love reading threads where people are suffering,,Threads about disabled war Veterans, people who have become disabled doing stunts/sports, people who have been burned doing their job, people who are now in a wheelchair due to speeding or riding a motorbike..the list goes on.

My point is, your son probably got the tick because he had gone to some place like Thailand or India or some other third world place where the people there all have it and being the simpleton that your son is he did not think twice about the difference in hygiene practice between third and first world countries and simply assumed that he was going to have a got time if you know what I mean.

On the positive side I have now learned about the fascinating disease that is Lyme and will now learn from your mistakes
Squatch Hunter

User ID: 25765147
United States
11/15/2012 01:13 AM
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Re: Just Diagnosed with LYME DISEASE!
port installed..What is that??
 Quoting: Anonymous Coward 14553694


For people with Chronic Lyme, Oral Treatment usually won't work. They have to take IV's long term. They can get a PICC line installed in their arm but its a major pain in the ass to deal with when taking showers etc. A port can be installed in the chest under the skin. It requires surgery but is fairly easy to access and won't get in the way during daily routines. It can also be removed when treatment is finished.

If you guys recently contacted Lyme, you should be able to do heavy doses of oral antibiotics and don't have to worry about IV's. But make damn sure its gone before stopping treatment. Otherwise, 10-20 years from now, it will come back with a vengeance.
Squatch Hunter

User ID: 25765147
United States
11/15/2012 01:16 AM
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Re: Just Diagnosed with LYME DISEASE!
I love reading threads where people are suffering,,Threads about disabled war Veterans, people who have become disabled doing stunts/sports, people who have been burned doing their job, people who are now in a wheelchair due to speeding or riding a motorbike..the list goes on.

My point is, your son probably got the tick because he had gone to some place like Thailand or India or some other third world place where the people there all have it and being the simpleton that your son is he did not think twice about the difference in hygiene practice between third and first world countries and simply assumed that he was going to have a got time if you know what I mean.

On the positive side I have now learned about the fascinating disease that is Lyme and will now learn from your mistakes
 Quoting: Anonymous Coward 1302314


Wrong. Lyme disease is widespread and you don't have to be in the woods to contract it anymore.
Anonymous Coward (OP)
User ID: 14553694
Canada
11/15/2012 01:20 AM
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Re: Just Diagnosed with LYME DISEASE!
I listened to a symposium of doctors stating, you will get LYME in CUBA on the beaches as well as the Dominica Republic from the ticks in the sand. Don't lie on the beaches anymore.
Squatch Hunter

User ID: 25765147
United States
11/15/2012 01:23 AM
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Re: Just Diagnosed with LYME DISEASE!
OP: what type of test is done to determine if one has Lyme's? Also, did your regular GP order the test for you?
 Quoting: Anonymous Coward 7554855


Normally they run an Elisha Test which will yield false negatives 50% of the time if Lyme is Chronic. The correct test is a Western Blot but you must be clinically diagnosed first, than put on heavy oral antibiotics 45 days prior to testing. This will allow the antibiotics to begin killing the Lyme if its present, get it out of the tissue where its hiding and make it borne in the blood stream. At that point, the Western Blot (2 different types of tests) has a good chance of catching it.

IGENICS studies the blood under a microscope for 8 days before confirming results.
Goldi
User ID: 8755634
United States
11/15/2012 01:25 AM
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Re: Just Diagnosed with LYME DISEASE!
I went undiagnosed for 18 years. It is transmitted via vaccines, biting insects other than just ticks, rodents, sex, blood products and during pregnancy to the fetus. I have a feeling that our food supply is contaminated as well. They also aerosol it and use it as a bioweapon. For those bible thumpers out there start considering it the plague in revelation.

Also no one gets just Lyme theses days. If you have Lyme you are coinfected as well with other bacteria and viruses. Babesia, bartonella, erlichea, Epstein Barr, mycoplasma, etc. and if you don't get with a Lyme literate doctor you will never get better.

If you need more info let me know.

hf
Anonymous Coward
User ID: 23011194
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11/15/2012 01:28 AM
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Re: Just Diagnosed with LYME DISEASE!
I know someone who they thought had Lyme disease. Turned out to be MS...
Anonymous Coward
User ID: 1302314
Australia
11/15/2012 01:29 AM
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Re: Just Diagnosed with LYME DISEASE!
I went undiagnosed for 18 years. It is transmitted via vaccines, biting insects other than just ticks, rodents, sex, blood products and during pregnancy to the fetus. I have a feeling that our food supply is contaminated as well. They also aerosol it and use it as a bioweapon. For those bible thumpers out there start considering it the plague in revelation.

Also no one gets just Lyme theses days. If you have Lyme you are coinfected as well with other bacteria and viruses. Babesia, bartonella, erlichea, Epstein Barr, mycoplasma, etc. and if you don't get with a Lyme literate doctor you will never get better.

If you need more info let me know.

hf
 Quoting: Goldi 8755634


1) How did you get it ?

2) is it painful? Does it leave any visible deformation ?

This sounds like a fascinating disease, almost as fascinating as herpes in it's ability to strike down the common simpleton
Goldi
User ID: 8755634
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11/15/2012 01:29 AM
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Re: Just Diagnosed with LYME DISEASE!
Oh and chronic Lyme doesn't alwaya have to be treated with heavy doses of IV antibiotics. There are many natural and integrative remedies that are safer and just as effective if not more so. Remember it is an individual treatment plan cause it is chronic and no two people are alike. No one size fits all with Lyme treatment.
Anonymous Coward (OP)
User ID: 14553694
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11/15/2012 01:30 AM
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Re: Just Diagnosed with LYME DISEASE!
I know someone who they thought had Lyme disease. Turned out to be MS...
 Quoting: Anonymous Coward 23011194


did they get the right blood test?
Anonymous Coward
User ID: 1302314
Australia
11/15/2012 01:31 AM
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Re: Just Diagnosed with LYME DISEASE!
CDC states that treatment is a few weeks of antibiotics so either OP is making up stories or he has a different affliction
Squatch Hunter

User ID: 25765147
United States
11/15/2012 01:33 AM
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Re: Just Diagnosed with LYME DISEASE!
I know someone who they thought had Lyme disease. Turned out to be MS...
 Quoting: Anonymous Coward 23011194


Usually, the reality is the other way around. People get misdiagnosed with MS, RA, Lupus etc before getting the correct diagnosis of Lyme. Dr. Stephan Harris told me once that 80% of his patients in Central California were diagnosed with MS before finding the Lyme.
Goldi
User ID: 8755634
United States
11/15/2012 01:33 AM
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Re: Just Diagnosed with LYME DISEASE!
Actually all the herpes virus 1-8 are very common confections in Lyme disease. Yes Lyme is easy to get and difficult to cure. Most cases of Fibromyalgia, chronic fatigue, Gulf War Syndrome, MS, ALS, Lupus and other similar conditions are undiagnosed Lyme disease and coinfections.
Anonymous Coward (OP)
User ID: 14553694
Canada
11/15/2012 01:35 AM
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Re: Just Diagnosed with LYME DISEASE!
CDC states that treatment is a few weeks of antibiotics so either OP is making up stories or he has a different affliction
 Quoting: Anonymous Coward 1302314


You have a lot of reading and research to do..
Squatch Hunter

User ID: 25765147
United States
11/15/2012 01:36 AM
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Re: Just Diagnosed with LYME DISEASE!
CDC states that treatment is a few weeks of antibiotics so either OP is making up stories or he has a different affliction
 Quoting: Anonymous Coward 1302314


That's because the CDC isn't Lyme Literate. There are approximately 200 Lyme Literate doctors in the United States. That's it. They understand Chronic Lyme and the treatment. The CDC isn't quite there yet but will be in the future.

For now, people have to be proactive if they want to get better.
Goldi
User ID: 8755634
United States
11/15/2012 01:37 AM
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Re: Just Diagnosed with LYME DISEASE!
CDC states that treatment is a few weeks of antibiotics so either OP is making up stories or he has a different affliction
 Quoting: Anonymous Coward 1302314


Actually you are just not educated enough on Lyme disease facts because OP is not making anything up. Lyme is a political cover-up. No different than gulf war illness. I suggest you watch the documentary Under Our Skin on Hulu for free. It provides a basic understanding of Lyme and the political nightmare it has become.
Anonymous Coward
User ID: 19559803
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11/15/2012 01:37 AM
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Re: Just Diagnosed with LYME DISEASE!
Here's a question for all, is Lyme disease a manufactured disease that got out????

[link to www.examiner.com]
Goldi
User ID: 8755634
United States
11/15/2012 01:39 AM
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Re: Just Diagnosed with LYME DISEASE!
High Five to all my fellow lymies out there for providing such awesome info!!!hf
422

User ID: 27775997
United States
11/15/2012 01:42 AM
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Re: Just Diagnosed with LYME DISEASE!
Here's a question for all, is Lyme disease a manufactured disease that got out????

[link to www.examiner.com]
 Quoting: Anonymous Coward 19559803


Yes and it wasn't by accident.
“You have rights antecedent to all earthly governments; rights that cannot be repealed or restrained by human laws; rights derived from the Great Legislator of the Universe.” John Adams, Second President of the United States
Goldi
User ID: 8755634
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11/15/2012 01:42 AM
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Re: Just Diagnosed with LYME DISEASE!
It is a bioweapon that was released on purpose and then the lymerix vaccine provided another means of distribution and infection. The book Lab 257 is a good read about it and plum island but doesn't tell the whole story.
422

User ID: 27775997
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11/15/2012 01:43 AM
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Re: Just Diagnosed with LYME DISEASE!
It is a bioweapon that was released on purpose and then the lymerix vaccine provided another means of distribution and infection. The book Lab 257 is a good read about it and plum island but doesn't tell the whole story.
 Quoting: Goldi 8755634


Correct and Lyme disease is by far not the only one.
“You have rights antecedent to all earthly governments; rights that cannot be repealed or restrained by human laws; rights derived from the Great Legislator of the Universe.” John Adams, Second President of the United States
Squatch Hunter

User ID: 25765147
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11/15/2012 01:44 AM
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Re: Just Diagnosed with LYME DISEASE!
As an aside, those who have Lyme Disease might consider reading a book called LAB 257. Only one chapter is devoted to Lyme but its important in my opinion. It will break down the history of the disease and discuss a possible origin.

In short, its probably a designer weapon from Plumb Island.

The UN did some testing a few years back and found it had mutated something like 18 times over a matter of days (can't remember the exact amount). Hence, one of the reasons its so hard to treat.

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