Porphyria is also related to pyroluria. I have pyroluria and have a sensitivity to the sun if I havent taken B6 or Zinc ... but it does not sound as extreme as described for porphyria. In acute intermittent porphyria, both pyrroles and porphyrins are excreted in the urine to an excessive degree. Pyroluria has a link to lyme disease also ... not sure of the connections but looking into pyroluria sysmptoms also may help expand your research. I am of scandinavian descent.