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REPORT COPYRIGHT VIOLATION IN REPLY
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Message Subject
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Chiari Malformation (update pg 2)
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Poster Handle
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Anonymous Coward |
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Post Content
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I knew there would be glpers aware of this rarity!
I have type 1 and I think it's less severe than the kind that is present from birth.
As for the surgery, I was told I would spend two days in icu and another few days in the hospital, then up to three months off work. And that's if it works. If not, I'll be permanently disabled.
This is scary.
Quoting: Only Me Definitely get some second opinions. I saw doctor after doctor with my issues. Chiari is sometimes seen with scolisis and tethered cord syndrome. If you have tethered cord syndrome, the tethered cord release can help with pulling down on your neck...or if you have syringomyelia along with the chiari they can do some things to take the pressure off. I am not trying to scare you by listing off all these things, its just sometimes symptoms can mimic each other. My friend's daughter had the syringomyelia (cyst in the spine) but it was caused by the Chiari. The surgery resolved that as well. A good neurologist would rule out tethered cord on MRI. bleh scan after scan after scan. Its good to see all the various angles though! Actually it was ONE scan that caught all of it. I was there, and it wasn't nearly as frightening as you are making it out to be. The OP just needs an opinion from a neurologist with experience with this specific condition.
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