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Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

 
geminilion
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05/29/2014 05:28 AM

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Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
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05/29/2014 05:30 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Prayer and fasting!
indiandave

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05/29/2014 05:38 AM

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bump
geminilion (OP)
We need more cowbell!

User ID: 50010568
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05/29/2014 05:47 AM

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bump
 Quoting: indiandave


Thanks buddy!
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
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05/29/2014 05:56 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Quercetin, when it is tested with melanoma tumor-cell cultures, the tumor cells die. This happens because the melanoma enzyme is tricked into stimulating so much quercetin that it changes and sensitizes the cancerous melanoma cells to the chemotherapy drug and dies. In this situation, quercetin is acting as a biological response modifier. A response modifier is a drug or a chemical compound acting to change the function of tumor cells to make them more responsive to chemotherapy or radiation.

A 2005 study published in the journal, Biochemical and Biophysical Research Communications, for instance, found that grape-derived resveratrol has an anti-proliferative effect on melanoma cancer cells -- anti-proliferative means that it blocks tumor cells from growing and spreading.
geminilion (OP)
We need more cowbell!

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05/29/2014 05:56 AM

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Will be back later, need a snooze :)
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
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05/29/2014 06:35 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I hope you fight this and win. hf

My cousin goes in for at least an 8 hour surgery on her neck today. She already had surgery and was told there was a 15% chance it would come back. Well, it did..the size of golf balls she was told. The doctor told her as he was talking to her, it was growing. The last time, they removed part of her tongue, and will probably have to do the same again. She will be in ICU for 2 weeks. My cousin has also been an anorexic and alcoholic since she was 15 so she has never been healthy. I don't know how she will survive, but I pray she does. I have a lot of negative history with her, but I think it has finally hit me. She is 36.
Alternative Universe

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05/29/2014 07:39 AM
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Bless you OP. Prayers were said for you today. hf
geminilion (OP)
We need more cowbell!

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05/29/2014 08:31 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Quercetin, when it is tested with melanoma tumor-cell cultures, the tumor cells die. This happens because the melanoma enzyme is tricked into stimulating so much quercetin that it changes and sensitizes the cancerous melanoma cells to the chemotherapy drug and dies. In this situation, quercetin is acting as a biological response modifier. A response modifier is a drug or a chemical compound acting to change the function of tumor cells to make them more responsive to chemotherapy or radiation.

A 2005 study published in the journal, Biochemical and Biophysical Research Communications, for instance, found that grape-derived resveratrol has an anti-proliferative effect on melanoma cancer cells -- anti-proliferative means that it blocks tumor cells from growing and spreading.
 Quoting: Anonymous Coward 58605905


Thanks..worth looking into and readily available.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
We need more cowbell!

User ID: 50010568
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05/29/2014 08:34 AM

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I hope you fight this and win. hf

My cousin goes in for at least an 8 hour surgery on her neck today. She already had surgery and was told there was a 15% chance it would come back. Well, it did..the size of golf balls she was told. The doctor told her as he was talking to her, it was growing. The last time, they removed part of her tongue, and will probably have to do the same again. She will be in ICU for 2 weeks. My cousin has also been an anorexic and alcoholic since she was 15 so she has never been healthy. I don't know how she will survive, but I pray she does. I have a lot of negative history with her, but I think it has finally hit me. She is 36.
 Quoting: AnonymousGirl


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
We need more cowbell!

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05/29/2014 08:34 AM

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Bless you OP. Prayers were said for you today. hf
 Quoting: Alternative Universe


Thanks..I am going to global pin this so more people see it.

will have to wait for later, too many pins going right now.

Last Edited by geminilion on 05/29/2014 09:03 AM
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Simple27

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05/29/2014 10:40 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
s27heart7 bump s27heart7
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Alpacalips

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05/29/2014 10:55 AM

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blwkss
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05/29/2014 11:01 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
had kidney failure at 22, 5 years of dialysis later and i got a transplant, you will not die medicine will prolong your life. happy days
Marisol

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05/29/2014 11:17 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Dichloroacetate Acid (DCA)

"DCA’s anti-cancer properties were discovered in 2007 by Evangelos Michelakis of the University of Alberta. In experiments on rats, Michelakis showed that DCA demonstrated dramatic action against a wide variety of cancers. He experienced a “eureka moment” when he saw that tumors of various types had been dramatically reduced over the course of a few short weeks.

Moreover, DCA showed very minimal disruption to healthy cells. “This is the so-called Holy Grail of cancer treatment,” remarked Michelakis at the time. But Michelakis, along with a host of other medical professionals, warned patients against self-medicating despite a spate of nascent websites offering the product.

In medical research the gold standard of acceptability of a treatment is a phase III clinical trial. There is only one problem: DCA is not patentable. It has already been used at least since the 1970’s in the treatment of a rare metabolic disorder and is generally well tolerated. Moreover, the chemical is simple and dirt cheap."

Check it out on the web; great information and it could be worth a try.

hf

Last Edited by Marisol on 05/29/2014 11:21 AM
Anonymous Coward
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05/29/2014 11:19 AM
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The one is still alive " targeted" but never destroyed
eekers
GLP Tard

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05/29/2014 11:21 AM

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hugs, tard!

I love you

smile_hearsmile_kiss
"We shall not cease from exploration, and the end of all our exploring will be to arrive where we started and know the place for the first time." - T. S. Eliot
Tell Me Lies
Tell me sweet little lies..

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05/29/2014 11:21 AM

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I wish I had some good medical advice, all I can offer is my thoughts and prayers to those who are ailing.

Stay positive!

heartcloud
Joannie/Gem.. rose
KO~PH
62|47
Anonymous Coward
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05/29/2014 11:29 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.


 Quoting: geminilion



ALERT: :newsflash:

[link to www.ncbi.nlm.nih.gov]

[link to www.ncbi.nlm.nih.gov]

[link to www.ncbi.nlm.nih.gov]

Please read above, consult with immunologists at a major melanoma research facility ASAP!

[link to www.hopkinsmedicine.org]
davvi

User ID: 3677166
United States
05/29/2014 11:32 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
 Quoting: geminilion


G-d Bless you, Gem. You and other members of our GLP family are in my thoughts and prayers.

1106 P
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.

"White Democrats sold away tomorrow for their own power today."
whiteangel

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05/29/2014 11:37 AM

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whiteangelbump
"If voting made a difference they wouldn't let us do it" -Mark Twain

Thread: Being Prepared - Updated Basic Food List On Page One
beebee

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05/29/2014 11:44 AM

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hfhfhf May all of you find the support you deserve. hfhfhf
beebee
W#orried Grammie
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05/29/2014 11:44 AM
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For those suffering with cancer, start drinking a glass of water with a big spoonful of bicarbonate of soda in it a couple of times a day. Cancer cells cannot live in an alkaline environment. Do some online searches. There are testimonials from many who said this made their cancer disappear. Good luck.
Rachael123

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05/29/2014 11:44 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
 Quoting: geminilion


Wow,What a strong and caring Lady you are.(((((Hugs)))))
davvi

User ID: 3677166
United States
05/29/2014 11:53 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
 Quoting: geminilion


Wow,What a strong and caring Lady you are.(((((Hugs)))))
 Quoting: Rachael123


I think so too.... clappa
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.

"White Democrats sold away tomorrow for their own power today."
Anonymous Coward
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05/29/2014 11:56 AM
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I read your name as Gemillion, like one in a million! Seriously, you are incredibly brave in your fight.

I'm reluctant to share what's ailing me (im shy that way) but all who post in this thread that need prayer or support...I got your back.
Shoot-Straight Johnny

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United Kingdom
05/29/2014 12:00 PM

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flower
union

The chariots of God are tens of thousands, and thousands of thousands.
Anonymous Coward
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05/29/2014 12:13 PM
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My advice to anyone who is ill ? Stay away from doctors , they are only good at one thing? " ending lives "

Natural remedies will prolong the quality of life you have in your battle , I would rather die on my feet than flat on my back in a hospital bed

I wish you all the very best yoda
davvi

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05/29/2014 12:28 PM

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I read your name as Gemillion, like one in a million! Seriously, you are incredibly brave in your fight.

I'm reluctant to share what's ailing me (im shy that way) but all who post in this thread that need prayer or support...I got your back.
 Quoting: Anonymous Coward 24962785


Some people find strength in sharing and others do not...neither is right or wrong and one must do what is best for them.

I don't know you as anyone other than AC, but know that you are thought of and prayed for...

hugs
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.

"White Democrats sold away tomorrow for their own power today."
Anonymous Coward
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Canada
05/29/2014 01:03 PM
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Thanks for this thread, OP. I'm sorry you're going through this in your life. Damned hard, I know.

I am siting here right now waiting for word from my mother about the results of her bone marrow test. She was in remission with Acute Myeloid Leukemia. After a bad blood count test, we fear relapse. She will most likely chose not to fight on if this is the case, giving her a few month or weeks to live.

Hoping for the best for you and everybody else going through terminal health issues.
LisaDiane

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05/29/2014 01:12 PM

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Gemillion, I am sorry to have not connected with you in awhile.

My thoughts and prayers are with you
LisaDiane

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