Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well | |
Simple27 User ID: 57832527 United States 06/05/2014 06:30 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Today, after a rough night in the ER, my daughters oncologist called and gave us the best news we could receive. Her induction chemotherapy worked and she is officially in remission. Quoting: Do you see what I see Going forward we have two years ahead of chemotherapy, but we just know that this will never, ever come back. Joannie, I am so happy for you as well. It sounds like it was a day of great news. Thank you all for your prayers for my daughter! Another miracle!! That is WONDERFUL news! I am so happy for you and your family! ~*Ride the Wave*~ |
Do you see what I see User ID: 57345073 United States 06/05/2014 06:53 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Today, after a rough night in the ER, my daughters oncologist called and gave us the best news we could receive. Her induction chemotherapy worked and she is officially in remission. Quoting: Do you see what I see Going forward we have two years ahead of chemotherapy, but we just know that this will never, ever come back. Joannie, I am so happy for you as well. It sounds like it was a day of great news. Thank you all for your prayers for my daughter! Great news! I'm so very happy for you :) Today, after a rough night in the ER, my daughters oncologist called and gave us the best news we could receive. Her induction chemotherapy worked and she is officially in remission. Quoting: Do you see what I see Going forward we have two years ahead of chemotherapy, but we just know that this will never, ever come back. Joannie, I am so happy for you as well. It sounds like it was a day of great news. Thank you all for your prayers for my daughter! Another miracle!! That is WONDERFUL news! I am so happy for you and your family! Thank you Paige and Simple! She still needs the treatment but just hearing the words "remission" brings a HUGE sense of relief. From the bottom of my heart... Thank You! You all are in my prayers. "Things do not happen. Things are made to happen." John F. Kennedy [link to www.facebook.com (secure)] |
Simple27 User ID: 57832527 United States 06/05/2014 07:00 PM Report Abusive Post Report Copyright Violation | |
Lube Job User ID: 1565088 United States 06/05/2014 08:18 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Thank you Geminilion for this thread.! I thank Lisa *Lisa also,! And to all who have added there most private thoughts and hopes. This right here is some of the best medicine. Great energy and love here. Good Luck and Bless you all ! |
tiger1 User ID: 44278049 United States 06/05/2014 09:46 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Today, after a rough night in the ER, my daughters oncologist called and gave us the best news we could receive. Her induction chemotherapy worked and she is officially in remission. Quoting: Do you see what I see Going forward we have two years ahead of chemotherapy, but we just know that this will never, ever come back. Joannie, I am so happy for you as well. It sounds like it was a day of great news. Thank you all for your prayers for my daughter! PRAISE GOD !!! Praise God from Whom all Blessings flow !!! |
WindyMind User ID: 7244814 United States 06/05/2014 09:49 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma. Quoting: geminilion ALERT: :newsflash: [link to www.ncbi.nlm.nih.gov] [link to www.ncbi.nlm.nih.gov] [link to www.ncbi.nlm.nih.gov] Please read above, consult with immunologists at a major melanoma research facility ASAP! [link to www.hopkinsmedicine.org] My oncologist at Montefiore stays on top of all of the latest studies, he's one of the tops in the field. When the chemo meds stop working, and they will, he wants to try to immunotherapy. He's actually going to some big conference next week. Not everyone can afford to go to John's Hopkins so they do make all of their studies available. Thanks for the info. And thanks to everyone who is supportive. I recovered from late stage cancer with immunotherapy. |
geminilion (OP) User ID: 50010568 United States 06/05/2014 10:56 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Today, after a rough night in the ER, my daughters oncologist called and gave us the best news we could receive. Her induction chemotherapy worked and she is officially in remission. Quoting: Do you see what I see Going forward we have two years ahead of chemotherapy, but we just know that this will never, ever come back. Joannie, I am so happy for you as well. It sounds like it was a day of great news. Thank you all for your prayers for my daughter! Thank God! That is the best news I could have gotten today! I can't imagine the relief you must be feeling right now. It will probably be hard the next two years with the continued treatments but it's working! ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
geminilion (OP) User ID: 50010568 United States 06/05/2014 10:58 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Thank you Geminilion for this thread.! I thank Lisa *Lisa also,! And to all who have added there most private thoughts and hopes. Quoting: Lube Job This right here is some of the best medicine. Great energy and love here. Good Luck and Bless you all ! There's tons of good energy and vibes here...you can just feel it! ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
geminilion (OP) User ID: 50010568 United States 06/05/2014 11:00 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma. Quoting: geminilion ALERT: :newsflash: [link to www.ncbi.nlm.nih.gov] [link to www.ncbi.nlm.nih.gov] [link to www.ncbi.nlm.nih.gov] Please read above, consult with immunologists at a major melanoma research facility ASAP! [link to www.hopkinsmedicine.org] My oncologist at Montefiore stays on top of all of the latest studies, he's one of the tops in the field. When the chemo meds stop working, and they will, he wants to try to immunotherapy. He's actually going to some big conference next week. Not everyone can afford to go to John's Hopkins so they do make all of their studies available. Thanks for the info. And thanks to everyone who is supportive. I recovered from late stage cancer with immunotherapy. That again gives me renewed hope! It can be a long road but I know with God and prayer and the latest developments in medicine there's a fighting chance. So happy you recovered! ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
WindyMind User ID: 7244814 United States 06/05/2014 11:03 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well ... Quoting: Anonymous Coward 58238563 ALERT: :newsflash: [link to www.ncbi.nlm.nih.gov] [link to www.ncbi.nlm.nih.gov] [link to www.ncbi.nlm.nih.gov] Please read above, consult with immunologists at a major melanoma research facility ASAP! [link to www.hopkinsmedicine.org] My oncologist at Montefiore stays on top of all of the latest studies, he's one of the tops in the field. When the chemo meds stop working, and they will, he wants to try to immunotherapy. He's actually going to some big conference next week. Not everyone can afford to go to John's Hopkins so they do make all of their studies available. Thanks for the info. And thanks to everyone who is supportive. I recovered from late stage cancer with immunotherapy. That again gives me renewed hope! It can be a long road but I know with God and prayer and the latest developments in medicine there's a fighting chance. So happy you recovered! This is my heroine. |
geminilion (OP) User ID: 50010568 United States 06/05/2014 11:08 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Have you seen this, Joannie? Quoting: Paige I saw an article while at work the other day but I can't remember where I found it now. I think it was about the same drug. Basically (in the article I saw) the drug works by unblocking pathways that prevent the immune system from recognizing and attacking cancer cells. They were talking about melanoma cancers that had spread to other organs. One man had all trace of cancer removed from his lung after using this. I'll try to find that article, but this is a similar one. [link to www.foxbusiness.com] I use mekinist and tafinlar, both just approved by the FDA a few months ago. Treatments for melanoma have just exploded this past year. So..if I were ever to get it now isn't a bad time. My dr. told me after the meds I am using now lose effectiveness we'll do the immunotherapy. In the past 6 months two doctors have give me just months to live. Even if there are clinical trials I can use. I've gone past the six months and I am feeling better today then 4 months ago. We will keep on fighting...and that's all of us no matter what we are going through. ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
geminilion (OP) User ID: 50010568 United States 06/05/2014 11:11 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Simple I guess you got busy with things, wanted to know how it went. You said it went well and your surgery is scheduled so that sounds like a good sign. ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
Simple27 User ID: 57832527 United States 06/05/2014 11:24 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Simple I guess you got busy with things, wanted to know how it went. You said it went well and your surgery is scheduled so that sounds like a good sign. Quoting: geminilion Hi Joannie! That's all I've got. : ) My appointment today was the consultation so we just chatted and scheduled the surgery. I had him check almost my whole body so that I don't have any "whoops" in the future. He was a bit concerned about the length of time since I first noticed the spot. Thinks it might be deeper than he originally thought. But the good news is the surgery will be soon and hopefully that will be the end of it. Fingers crossed. : ) I wish I had more to share, but the appointment was mostly talking/asking questions. The ball is rolling though. Thank you so much for being you! I hope you are feeling well this evening. ~*Ride the Wave*~ |
Mr. Reality User ID: 1350479 United States 06/05/2014 11:46 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Simple I guess you got busy with things, wanted to know how it went. You said it went well and your surgery is scheduled so that sounds like a good sign. Quoting: geminilion Hi Joannie! That's all I've got. : ) My appointment today was the consultation so we just chatted and scheduled the surgery. I had him check almost my whole body so that I don't have any "whoops" in the future. He was a bit concerned about the length of time since I first noticed the spot. Thinks it might be deeper than he originally thought. But the good news is the surgery will be soon and hopefully that will be the end of it. Fingers crossed. : ) I wish I had more to share, but the appointment was mostly talking/asking questions. The ball is rolling though. Thank you so much for being you! I hope you are feeling well this evening. “When injustice becomes law, resistance becomes duty.” -- Thomas Jefferson "My 2nd Amendment will Die with Me" -- iwinallday |
Simple27 User ID: 57832527 United States 06/06/2014 12:25 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Simple I guess you got busy with things, wanted to know how it went. You said it went well and your surgery is scheduled so that sounds like a good sign. Quoting: geminilion Hi Joannie! That's all I've got. : ) My appointment today was the consultation so we just chatted and scheduled the surgery. I had him check almost my whole body so that I don't have any "whoops" in the future. He was a bit concerned about the length of time since I first noticed the spot. Thinks it might be deeper than he originally thought. But the good news is the surgery will be soon and hopefully that will be the end of it. Fingers crossed. : ) I wish I had more to share, but the appointment was mostly talking/asking questions. The ball is rolling though. Thank you so much for being you! I hope you are feeling well this evening. Love you Mr. R ~*Ride the Wave*~ |
Anonymous Coward User ID: 56148605 United States 06/06/2014 02:18 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well |
Face Palmer User ID: 58898212 Germany 06/06/2014 03:43 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Thread: Fasting triggers stem cell regeneration of damaged, old immune system - Protection from chemotherapy immunosuppression... "The world will soon wake up to the reality that everyone is broke and can collect nothing from the bankrupt, who are owed unlimited amounts by the insolvent, who are attempting to make late payments on a bank holiday in the wrong country, with an unacceptable currency, against defaulted collateral, of which nobody is sure who holds title." Never attribute to malice that which is adequately explained by stupidity. The woman who is not pursued sets up the doctrine that pursuit is offensive to her sex, and wants to make it a felony. No genuinely attractive woman has any such desire. - H.L. Mencken, In Defense Of Women |
geminilion (OP) User ID: 50010568 United States 06/06/2014 04:04 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Simple I guess you got busy with things, wanted to know how it went. You said it went well and your surgery is scheduled so that sounds like a good sign. Quoting: geminilion Hi Joannie! That's all I've got. : ) My appointment today was the consultation so we just chatted and scheduled the surgery. I had him check almost my whole body so that I don't have any "whoops" in the future. He was a bit concerned about the length of time since I first noticed the spot. Thinks it might be deeper than he originally thought. But the good news is the surgery will be soon and hopefully that will be the end of it. Fingers crossed. : ) I wish I had more to share, but the appointment was mostly talking/asking questions. The ball is rolling though. Thank you so much for being you! I hope you are feeling well this evening. Right! The ball is rolling..I have good feelings that you'll be fine. The road sure is scary though isn't it? Hugs.. ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
geminilion (OP) User ID: 50010568 United States 06/06/2014 04:06 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well You guys are in good hands and you have lot's of people praying for all of you. Quoting: Paige When you get better, I am going to send each one of you a custom set of these babies. Nothing will be screwing with you again, I assure you! :) Funny! ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
geminilion (OP) User ID: 50010568 United States 06/06/2014 04:08 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Thanks FP! That's easy for me, all I want to eat is ice cream. But not too much of it. It was weird after my whole brain radiation I didn't want to eat anything. All of the things I used to love to eat were disgusting to me. ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
Anonymous Coward User ID: 12852453 United States 06/06/2014 09:19 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well I hope the trend continues especially for those who have found doctors that are interested in helping. They are rare these days. Bless You All, I hope today treats you as well. |
Anonymous Coward User ID: 55852890 United States 06/06/2014 09:30 AM Report Abusive Post Report Copyright Violation | |
Anonymous Coward User ID: 58922499 United States 06/06/2014 10:55 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well [It was weird after my whole brain radiation I didn't want to eat anything. All of the things I used to love to eat were disgusting to me. Quoting: geminilion One of the patients here got a bone marrow transplant and found themselves with a severe peanut allergy. They used to eat peanut butter and jelly every day, now they have someone else's immune system. |
Anonymous Coward User ID: 12852453 United States 06/06/2014 11:42 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well [It was weird after my whole brain radiation I didn't want to eat anything. All of the things I used to love to eat were disgusting to me. Quoting: geminilion One of the patients here got a bone marrow transplant and found themselves with a severe peanut allergy. They used to eat peanut butter and jelly every day, now they have someone else's immune system. Is that common ? I had to have some blood pumped in me when I was in for pneumonia a couple of months ago. I have been eating peanut butter sandwiches for lunch for 20 years. Now I have issues with my tongue swelling up and throat doing the same after I eat a couple of them. |
geminilion (OP) User ID: 50010568 United States 06/06/2014 11:47 AM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well [It was weird after my whole brain radiation I didn't want to eat anything. All of the things I used to love to eat were disgusting to me. Quoting: geminilion One of the patients here got a bone marrow transplant and found themselves with a severe peanut allergy. They used to eat peanut butter and jelly every day, now they have someone else's immune system. I believe it! It was so strange! All of a sudden I didn't want to eat the things I usually like. I had all kinds of food aversions. It's a little better now but I never know from day to day what I might like. About a week after my radiation was done a bunch of my teeth fell out. I can just imagine what those rays did to my brain. ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |
Anonymous Coward User ID: 58922499 United States 06/06/2014 12:00 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Is that common ? Quoting: Gomez I had to have some blood pumped in me when I was in for pneumonia a couple of months ago. I have been eating peanut butter sandwiches for lunch for 20 years. Now I have issues with my tongue swelling up and throat doing the same after I eat a couple of them. It is surprisingly common to pick up somebody else's allergies after tissue transplants. I'm not sure about large scale blood volume replacement, but its a new ish discovery so you may be on to something. Avoid peanuts. [link to www.ncbi.nlm.nih.gov] The estimated prevalence of TAFA among young children in the literature has been documented in various studies ranging from 6% to 57%. Although TAA is mostly found to be associated with liver transplantation; it has been recently reported to be related with heart, intestinal, lung and even renal transplantations in adults |
Simple27 User ID: 2026470 United States 06/06/2014 12:46 PM Report Abusive Post Report Copyright Violation | |
davvi User ID: 3677166 United States 06/06/2014 12:55 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Was at the doctors almost all day but I do have good news. When I went to this doctor initially she referred me to another oncologist who's specialty was melanoma.She told me she did most other kinds of cancer and didn't want me to be shortchanged on my treatment. Quoting: geminilion I agreed that was probably the smart thing to do even though I really liked her it was wise to go where the knowledge is. I kept her on for pain management. I go in today find out on her own time she took some seminars on melanoma to see what was new and if she could help me. Really..what doctor does that? She told me when I first went to see her months ago she thought "this poor lady had a death sentence". Now she says after learning the new info. and treatments I have a chance. She told me not to reserve my hospice be just yet, I do have a fighting chance. She was talking specifically about the chemo meds I've been taking. They are brand new and they've had much success with them. So at least I have hope where I didn't have any before...makes a huge difference in my psych. I am just really impressed with her that she would go to the trouble for a patient. Some doctors really are in it to help save lives and not the pay check. How wonderful... |
Do you see what I see User ID: 57345073 United States 06/06/2014 01:32 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Today, after a rough night in the ER, my daughters oncologist called and gave us the best news we could receive. Her induction chemotherapy worked and she is officially in remission. Quoting: Do you see what I see Going forward we have two years ahead of chemotherapy, but we just know that this will never, ever come back. Joannie, I am so happy for you as well. It sounds like it was a day of great news. Thank you all for your prayers for my daughter! Thank God! That is the best news I could have gotten today! I can't imagine the relief you must be feeling right now. It will probably be hard the next two years with the continued treatments but it's working! I just pray, pray, pray it never returns. Thank you SO MUCH for holding my hand even if it is virtually. I can't explain how much it means to me. I'm praying so hard for you Joannie and Simple and everyone on this thread. "Things do not happen. Things are made to happen." John F. Kennedy [link to www.facebook.com (secure)] |
geminilion (OP) User ID: 50010568 United States 06/06/2014 07:00 PM Report Abusive Post Report Copyright Violation | Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well Is that common ? Quoting: Gomez I had to have some blood pumped in me when I was in for pneumonia a couple of months ago. I have been eating peanut butter sandwiches for lunch for 20 years. Now I have issues with my tongue swelling up and throat doing the same after I eat a couple of them. It is surprisingly common to pick up somebody else's allergies after tissue transplants. I'm not sure about large scale blood volume replacement, but its a new ish discovery so you may be on to something. Avoid peanuts. [link to www.ncbi.nlm.nih.gov] The estimated prevalence of TAFA among young children in the literature has been documented in various studies ranging from 6% to 57%. Although TAA is mostly found to be associated with liver transplantation; it has been recently reported to be related with heart, intestinal, lung and even renal transplantations in adults It happened with melanoma as well. Swedish doctors had to stop giving organs, blood, tissue, etc. from anyone who's had melanoma due to the fact that the person receiving would develop melanoma. Just like the melanoma cell can sit in my body and wait to makes it's appearance known I can also give it to. I couldn't give my brother a kidney when he needed one. ..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way." Heraclitus |