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Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

 
Urolaj

User ID: 51947635
New Zealand
07/21/2014 09:52 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
oh i forgot to log in before post lol

Thank you.

Have now just got word that my partner best mate is going to be flying on Malaysian airways in very near future, just to add to my stress!!!

Last Edited by Urolaj on 07/21/2014 09:53 PM
Simple27

User ID: 57832527
United States
07/21/2014 10:03 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
oh i forgot to log in before post lol

Thank you.

Have now just got word that my partner best mate is going to be flying on Malaysian airways in very near future, just to add to my stress!!!
 Quoting: Urolaj


You've come to the right thread my friend. You will receive prayers and love from all of us here. Stay strong. : )

grouphug
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Anonymous Coward
User ID: 39726417
United States
07/21/2014 11:12 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Love you Joannie. I have not stopped thinking about you and praying for you.

~Paige
 Quoting: Anonymous Coward 39726417


Hi Paige. Welcome back!

Joannie, I too, think about you constantly. I hope you are managing pain and symptoms well.
 Quoting: Doomish


Hi Doomish!

I so wish for Joannie to be at peace and to be comfortable.

Miss all of you.
Anonymous Coward
User ID: 40647421
United States
07/21/2014 11:36 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
a few years on and my partner fell really ill with intencse ulcerative colitis so i had to quit my job to take care of her and run everyone around. all was looking on the up and up and so i started working again and furthering my studies on IT. when my parter started going down hill again but alot worse this time. going against my opinion my partner has been on drug trial after drug trial with no real let up of her situation.
 Quoting: Anonymous Coward 51947635


Has she considered experimenting with cannabis oil? It works very well for many with crohns and uc.

tiger1

User ID: 44278049
United States
07/21/2014 11:49 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Firstly my thoughts are with all of you going thru a tough time.

Well, my story is..........
Gave up my baker job of 8 years to move towns and be with my lovely partner, she already had 3 kids and i decided it was easier for me to move than to uproot the little ones.

a few years on and my partner fell really ill with intencse ulcerative colitis so i had to quit my job to take care of her and run everyone around. all was looking on the up and up and so i started working again and furthering my studies on IT. when my parter started going down hill again but alot worse this time. going against my opinion my partner has been on drug trial after drug trial with no real let up of her situation.
ontop of all that, this happened

[link to www.stuff.co.nz]

now for the last year just been dealing with test after test after test, my daughter has changed from an outgoing high achiever to a quite almost failing at school.

have tried everything i can think of but it sucks seeing my partner and girl in this way and there is nothing i can do about it.

Daily struggles of watching my partner rocking back and forth holding her stomach moaning in pain.

i now this is nothing compared to alot of posts on here but even just venting this is easing some of my mind set.

with all the doctors visits, kids stuff, daughters counciling, kids sports umongst all the household duties i am so run down and now the government has decided she is not sick enough to keep paying us and are trying to force one of us into work, more pressure on her than me for some reason which has just made me mad. until all this i have worked all my life and see all these other no-hopers on the benifit who can work but decide to milk the system.

regards
TIRED AND MAD from NZ :(
 Quoting: Anonymous Coward 51947635


Prayers sent up for you and your family ! hang in there !
Anonymous Coward
User ID: 51947635
New Zealand
07/22/2014 12:51 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
a few years on and my partner fell really ill with intencse ulcerative colitis so i had to quit my job to take care of her and run everyone around. all was looking on the up and up and so i started working again and furthering my studies on IT. when my parter started going down hill again but alot worse this time. going against my opinion my partner has been on drug trial after drug trial with no real let up of her situation.
 Quoting: Anonymous Coward 51947635


Has she considered experimenting with cannabis oil? It works very well for many with crohns and uc.


 Quoting: zenobiaphobia


As much as i would love to go down a natural road like this with her condition there is a few things that stand in the way.

A) its illegal here is NZ and the oil is a higher class drug than the leaf matter.

B) just before i met and started a relationship with her, out of the kindness of her heart a friend of a friend had manipulated his way into taking up residence in the shed/garage of the house she was renting, he had leukemia and only had a year to live. turned out he was manufacturing meth in there. long story short she was convicted of supply of residence for manufacture. The guy had leukemia and died during he trial so the cops had to pin something on someone. lost her kids and had an epic battle to get the kids back after 7 months inside. i stayed with her thru all of this and helped her thru it all, So as much as i know it would help i can bring myself to bring that sort of thing into the house :(
Anonymous Coward
User ID: 40647421
United States
07/22/2014 02:14 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
, So as much as i know it would help i can bring myself to bring that sort of thing into the house :(
 Quoting: Anonymous Coward 51947635


If only they would admit that Sativex is really medicine, then she could have a fully legal alternative

[link to www.leafscience.com]

Although medical marijuana is illegal in New Zealand, a pharmaceutical cannabis extract has been available since 2008 for patients with multiple sclerosis. Other conditions may qualify, but the health ministry must approve all requests first.

Even still, only four people have an active prescription for Sativex and only 48 have ever been approved, local media TVNZ reports.
Anonymous Coward
User ID: 51947635
New Zealand
07/22/2014 03:16 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
, So as much as i know it would help i can bring myself to bring that sort of thing into the house :(
 Quoting: Anonymous Coward 51947635


If only they would admit that Sativex is really medicine, then she could have a fully legal alternative

[link to www.leafscience.com]

Although medical marijuana is illegal in New Zealand, a pharmaceutical cannabis extract has been available since 2008 for patients with multiple sclerosis. Other conditions may qualify, but the health ministry must approve all requests first.

Even still, only four people have an active prescription for Sativex and only 48 have ever been approved, local media TVNZ reports.

 Quoting: zenobiaphobia


interesting. thanks for that info.
davvi

User ID: 3677166
United States
07/22/2014 03:57 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Wanted to share this here. I just stumbled upon it, right when I needed it. hf


 Quoting: Simple27


Just beautiful and thank you so much for finding that and sharing. hugs

I think going out and living ones' life is the most difficult goal there is, but one we all have to try...

Everyone remembers learning to ride a bicycle? LOL, I had skinned knees for weeks, but no matter how many times I fell down someone was always there telling me to try again...and then finally the freedom when that damned bike was finally mastered...

Life is like that...

Kisses for you all today...hf
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.
davvi

User ID: 3677166
United States
07/22/2014 04:09 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Firstly my thoughts are with all of you going thru a tough time.

Well, my story is..........
Gave up my baker job of 8 years to move towns and be with my lovely partner, she already had 3 kids and i decided it was easier for me to move than to uproot the little ones.

a few years on and my partner fell really ill with intencse ulcerative colitis so i had to quit my job to take care of her and run everyone around. all was looking on the up and up and so i started working again and furthering my studies on IT. when my parter started going down hill again but alot worse this time. going against my opinion my partner has been on drug trial after drug trial with no real let up of her situation.
ontop of all that, this happened

[link to www.stuff.co.nz]

now for the last year just been dealing with test after test after test, my daughter has changed from an outgoing high achiever to a quite almost failing at school.

have tried everything i can think of but it sucks seeing my partner and girl in this way and there is nothing i can do about it.

Daily struggles of watching my partner rocking back and forth holding her stomach moaning in pain.

i now this is nothing compared to alot of posts on here but even just venting this is easing some of my mind set.

with all the doctors visits, kids stuff, daughters counciling, kids sports umongst all the household duties i am so run down and now the government has decided she is not sick enough to keep paying us and are trying to force one of us into work, more pressure on her than me for some reason which has just made me mad. until all this i have worked all my life and see all these other no-hopers on the benifit who can work but decide to milk the system.

regards
TIRED AND MAD from NZ :(
 Quoting: Anonymous Coward 51947635


If all we can do for you is to give you an opportunity to vent than I am glad...

I am sure you have tried probiotics? Perhaps homeopathic therapy would help?

[link to www.onlinehomeopathictreatment.com]


Is there any kind of work you can do at home?

Good luck and best wishes to you, your partner and of course the children. hugs
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.
Do you see what I see

User ID: 57345073
United States
07/22/2014 04:31 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Here is the supplement list I was talking about. It comes from someone who has been through it and what worked for them. The PDF is at the bottom of the page.

[link to completeautosp.com]
 Quoting: Gomez


Thank you so much! This is a great help :D
"Things do not happen. Things are made to happen." John F. Kennedy
Urolaj

User ID: 51947635
New Zealand
07/23/2014 10:04 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Firstly my thoughts are with all of you going thru a tough time.

Well, my story is..........
Gave up my baker job of 8 years to move towns and be with my lovely partner, she already had 3 kids and i decided it was easier for me to move than to uproot the little ones.

a few years on and my partner fell really ill with intencse ulcerative colitis so i had to quit my job to take care of her and run everyone around. all was looking on the up and up and so i started working again and furthering my studies on IT. when my parter started going down hill again but alot worse this time. going against my opinion my partner has been on drug trial after drug trial with no real let up of her situation.
ontop of all that, this happened

[link to www.stuff.co.nz]

now for the last year just been dealing with test after test after test, my daughter has changed from an outgoing high achiever to a quite almost failing at school.

have tried everything i can think of but it sucks seeing my partner and girl in this way and there is nothing i can do about it.

Daily struggles of watching my partner rocking back and forth holding her stomach moaning in pain.

i now this is nothing compared to alot of posts on here but even just venting this is easing some of my mind set.

with all the doctors visits, kids stuff, daughters counciling, kids sports umongst all the household duties i am so run down and now the government has decided she is not sick enough to keep paying us and are trying to force one of us into work, more pressure on her than me for some reason which has just made me mad. until all this i have worked all my life and see all these other no-hopers on the benifit who can work but decide to milk the system.

regards
TIRED AND MAD from NZ :(
 Quoting: Anonymous Coward 51947635


If all we can do for you is to give you an opportunity to vent than I am glad...

I am sure you have tried probiotics? Perhaps homeopathic therapy would help?

[link to www.onlinehomeopathictreatment.com]


Is there any kind of work you can do at home?

Good luck and best wishes to you, your partner and of course the children. hugs
 Quoting: davvi


Thanks :)
Am currently fixing computers and stuff thru word of mouth and frequently buying and selling stuff online to make some extra cash just for a "do for now"
Simple27

User ID: 57832527
United States
07/23/2014 10:12 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Wanted to share this here. I just stumbled upon it, right when I needed it. hf


 Quoting: Simple27


Just beautiful and thank you so much for finding that and sharing. hugs

I think going out and living ones' life is the most difficult goal there is, but one we all have to try...

Everyone remembers learning to ride a bicycle? LOL, I had skinned knees for weeks, but no matter how many times I fell down someone was always there telling me to try again...and then finally the freedom when that damned bike was finally mastered...

Life is like that...


Kisses for you all today...hf
 Quoting: davvi


Love this! So true. hf

Hope everyone is doing well.

grouphug

Joannie you are missed and always in my thoughts & heart.

cubhugs
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Anonymous Coward
User ID: 25390980
Canada
07/25/2014 07:51 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
red_heart
~KPM~

User ID: 34763230
United States
07/25/2014 08:40 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Firstly my thoughts are with all of you going thru a tough time.

Well, my story is..........
Gave up my baker job of 8 years to move towns and be with my lovely partner, she already had 3 kids and i decided it was easier for me to move than to uproot the little ones.

a few years on and my partner fell really ill with intencse ulcerative colitis so i had to quit my job to take care of her and run everyone around. all was looking on the up and up and so i started working again and furthering my studies on IT. when my parter started going down hill again but alot worse this time. going against my opinion my partner has been on drug trial after drug trial with no real let up of her situation.
ontop of all that, this happened

[link to www.stuff.co.nz]

now for the last year just been dealing with test after test after test, my daughter has changed from an outgoing high achiever to a quite almost failing at school.

have tried everything i can think of but it sucks seeing my partner and girl in this way and there is nothing i can do about it.

Daily struggles of watching my partner rocking back and forth holding her stomach moaning in pain.

i now this is nothing compared to alot of posts on here but even just venting this is easing some of my mind set.

with all the doctors visits, kids stuff, daughters counciling, kids sports umongst all the household duties i am so run down and now the government has decided she is not sick enough to keep paying us and are trying to force one of us into work, more pressure on her than me for some reason which has just made me mad. until all this i have worked all my life and see all these other no-hopers on the benifit who can work but decide to milk the system.

regards
TIRED AND MAD from NZ :(
 Quoting: Anonymous Coward 51947635


Hi, I'm so sorry to hear what you are going through.

Has your partner ever had a serotonin test done?

If not she should, high serotonin levels in blood and 24 urine tests are indicative of carcinoid cancer. CC is often misdiagnosed as IBS, UC, Crohns, etc.

While CC is very rare it often is over looked for many years and a simple blood and 24 urine test should be done if she has suffered for so long.

Some signs and symptoms include:

Flushing of the face and neck (appearance of deep red color, usually with sudden onset)
Diarrhea, nausea, vomiting
Rapid heart rate
Wheezing, coughing, difficulty breathing



I would check all medication she is on and google search to see if they raise serotonin levels, when they are high a patient experiences severe gastro upset....

Good luck to both of you, I hope this can help!


This site explains the blood and 24 hour urine test:

[link to labtestsonline.org]

This site is about carcinoid cancer:

[link to www.carcinoid.org]

This site is Diagnosing and Monitoring Carcinoid Syndrome:

[link to www.carcinoid.com]

This site is serotonin syndrome:

[link to www.webmd.com]

These sites are foods and meds that can cause serotonin syndrome or false positives:

[link to panicdisorder.about.com]

[link to www.livestrong.com]

Many people with gastro issue are given proton pump inhibitors, there drugs can raise serotonin and actually cause worse gastro issues and pain, check to see if she is taking and of these:

[link to www.medicinenet.com]

Last Edited by ~kpm~ on 07/25/2014 08:43 AM
~kpm~
tiger1

User ID: 44278049
United States
07/25/2014 11:25 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
BUMP for prayers for Joannie.
Do you see what I see

User ID: 57345073
United States
07/25/2014 11:28 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
BUMP for prayers for Joannie.
 Quoting: tiger1


red_heart

Here's hoping we get a new update soon. Much Love to Joannie and her family.
"Things do not happen. Things are made to happen." John F. Kennedy
davvi

User ID: 3677166
United States
07/27/2014 01:05 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi, I'm so sorry to hear what you are going through.

Has your partner ever had a serotonin test done?

If not she should, high serotonin levels in blood and 24 urine tests are indicative of carcinoid cancer. CC is often misdiagnosed as IBS, UC, Crohns, etc.

While CC is very rare it often is over looked for many years and a simple blood and 24 urine test should be done if she has suffered for so long.

Some signs and symptoms include:

Flushing of the face and neck (appearance of deep red color, usually with sudden onset)
Diarrhea, nausea, vomiting
Rapid heart rate
Wheezing, coughing, difficulty breathing



I would check all medication she is on and google search to see if they raise serotonin levels, when they are high a patient experiences severe gastro upset....

Good luck to both of you, I hope this can help!


This site explains the blood and 24 hour urine test:

[link to labtestsonline.org]

This site is about carcinoid cancer:

[link to www.carcinoid.org]

This site is Diagnosing and Monitoring Carcinoid Syndrome:

[link to www.carcinoid.com]

This site is serotonin syndrome:

[link to www.webmd.com]

These sites are foods and meds that can cause serotonin syndrome or false positives:

[link to panicdisorder.about.com]

[link to www.livestrong.com]

Many people with gastro issue are given proton pump inhibitors, there drugs can raise serotonin and actually cause worse gastro issues and pain, check to see if she is taking and of these:

[link to www.medicinenet.com]
 Quoting: ~KPM~


What great information and thanks so much for taking the time to share it...I pray it helps.


happyheart

Sunday afternoon hugs for everyone...
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.
Alpacalips

User ID: 57210108
United States
07/27/2014 01:06 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Gem hasn't logged on in a month. I hope she is doing OK.

verysad
~KPM~

User ID: 34763230
United States
07/27/2014 02:05 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi, I'm so sorry to hear what you are going through.

Has your partner ever had a serotonin test done?

If not she should, high serotonin levels in blood and 24 urine tests are indicative of carcinoid cancer. CC is often misdiagnosed as IBS, UC, Crohns, etc.

While CC is very rare it often is over looked for many years and a simple blood and 24 urine test should be done if she has suffered for so long.

Some signs and symptoms include:

Flushing of the face and neck (appearance of deep red color, usually with sudden onset)
Diarrhea, nausea, vomiting
Rapid heart rate
Wheezing, coughing, difficulty breathing



I would check all medication she is on and google search to see if they raise serotonin levels, when they are high a patient experiences severe gastro upset....

Good luck to both of you, I hope this can help!


This site explains the blood and 24 hour urine test:

[link to labtestsonline.org]

This site is about carcinoid cancer:

[link to www.carcinoid.org]

This site is Diagnosing and Monitoring Carcinoid Syndrome:

[link to www.carcinoid.com]

This site is serotonin syndrome:

[link to www.webmd.com]

These sites are foods and meds that can cause serotonin syndrome or false positives:

[link to panicdisorder.about.com]

[link to www.livestrong.com]

Many people with gastro issue are given proton pump inhibitors, there drugs can raise serotonin and actually cause worse gastro issues and pain, check to see if she is taking and of these:

[link to www.medicinenet.com]
 Quoting: ~KPM~


What great information and thanks so much for taking the time to share it...I pray it helps.


happyheart

Sunday afternoon hugs for everyone...
 Quoting: davvi



Thanks Davvi,

I'm just learning about this as I spent a week in the hospital a few months ago.....they could not figure out what was wrong so it was just labeled IBS.

I went to an endocrinologist because I have thyroid symptoms and this new IBS problem....well my first blood test showed I had extremely high serotonin so I had to have the 24 hour urine done and that was normal, but now we have to figure out why its in the blood.....I am positive it's because they had me on Prilosec for way too long!

They found thyroid nodules that have to be removed as they are undetermined yet they display all the characteristics of cancer....yahoo!

So I started researching if the thyroid nodules could cause the serotonin level to rise....only one thyroid cancer can and it tested negative thank goodness!

Needless to say, I found all the sites I posted....I hope it can help anyone else, even though it's very rare, it still might help someone with earlier diagnosis....most people are told IBS, UC, etc., and by the time you have carcinoid syndromes it can be kinda too late to do much......

We must all be proactive because it's too easy to just accept what a doctor tells you....research everything!

My mom was diagnosed with throat cancer, she had chemo and radiation for 9 weeks, they did a pet scan and gave her clean bill oh health. Four months later she had a bump on her arm and new pet scan shows cancer everywhere in her soft tissues....radiologist missed two huge spots on her previous pet....I read them the riot act when I discovered them on my own....

Be vigilant, get all your records and ask questions!

hf
~kpm~
davvi

User ID: 3677166
United States
07/27/2014 02:26 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Gem hasn't logged on in a month. I hope she is doing OK.

verysad
 Quoting: Alpacalips


We are all praying for her and we hope so too...

hugs
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.
davvi

User ID: 3677166
United States
07/27/2014 02:37 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Thanks Davvi,

I'm just learning about this as I spent a week in the hospital a few months ago.....they could not figure out what was wrong so it was just labeled IBS.

I went to an endocrinologist because I have thyroid symptoms and this new IBS problem....well my first blood test showed I had extremely high serotonin so I had to have the 24 hour urine done and that was normal, but now we have to figure out why its in the blood.....I am positive it's because they had me on Prilosec for way too long!

They found thyroid nodules that have to be removed as they are undetermined yet they display all the characteristics of cancer....yahoo!

So I started researching if the thyroid nodules could cause the serotonin level to rise....only one thyroid cancer can and it tested negative thank goodness!

Needless to say, I found all the sites I posted....I hope it can help anyone else, even though it's very rare, it still might help someone with earlier diagnosis....most people are told IBS, UC, etc., and by the time you have carcinoid syndromes it can be kinda too late to do much......

We must all be proactive because it's too easy to just accept what a doctor tells you....research everything!

My mom was diagnosed with throat cancer, she had chemo and radiation for 9 weeks, they did a pet scan and gave her clean bill oh health. Four months later she had a bump on her arm and new pet scan shows cancer everywhere in her soft tissues....radiologist missed two huge spots on her previous pet....I read them the riot act when I discovered them on my own....

Be vigilant, get all your records and ask questions!

hf
 Quoting: ~KPM~


Oh my heavens, I am so sorry...but glad that you have found this thread and we offer you our prayers and best wishes. hugs

Do you think that Prilosec could have contributed to your condition? My father has been on Nexium for at least ten years now and has asked his doctor for a stronger dose which the doctor refused...My dad was angry and ready to find a new doctor, but I think he needs to stop it altogether as after awhile like nasal sprays the more you use it the more you need it...

I am going to show him your research and I thank you so much for it...

Many hugs for you and your mom. X
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.
Simple27

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07/27/2014 02:54 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
s27flower
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
~KPM~

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07/27/2014 03:31 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Thanks Davvi,

I'm just learning about this as I spent a week in the hospital a few months ago.....they could not figure out what was wrong so it was just labeled IBS.

I went to an endocrinologist because I have thyroid symptoms and this new IBS problem....well my first blood test showed I had extremely high serotonin so I had to have the 24 hour urine done and that was normal, but now we have to figure out why its in the blood.....I am positive it's because they had me on Prilosec for way too long!

They found thyroid nodules that have to be removed as they are undetermined yet they display all the characteristics of cancer....yahoo!

So I started researching if the thyroid nodules could cause the serotonin level to rise....only one thyroid cancer can and it tested negative thank goodness!

Needless to say, I found all the sites I posted....I hope it can help anyone else, even though it's very rare, it still might help someone with earlier diagnosis....most people are told IBS, UC, etc., and by the time you have carcinoid syndromes it can be kinda too late to do much......

We must all be proactive because it's too easy to just accept what a doctor tells you....research everything!

My mom was diagnosed with throat cancer, she had chemo and radiation for 9 weeks, they did a pet scan and gave her clean bill oh health. Four months later she had a bump on her arm and new pet scan shows cancer everywhere in her soft tissues....radiologist missed two huge spots on her previous pet....I read them the riot act when I discovered them on my own....

Be vigilant, get all your records and ask questions!

hf
 Quoting: ~KPM~


Oh my heavens, I am so sorry...but glad that you have found this thread and we offer you our prayers and best wishes. hugs

Do you think that Prilosec could have contributed to your condition? My father has been on Nexium for at least ten years now and has asked his doctor for a stronger dose which the doctor refused...My dad was angry and ready to find a new doctor, but I think he needs to stop it altogether as after awhile like nasal sprays the more you use it the more you need it...

I am going to show him your research and I thank you so much for it...

Many hugs for you and your mom. X
 Quoting: davvi


Thank you for your kind words for me and my mom....

Yes, I think the Prilosec exacerbated the IBS symptoms after I was on it for 3 months....I never had used it before my hospital stay and it worked well for those 3 months until I had a set back.....protein pump inhibitors can raise serotonin levels that can cause serotonin syndrome....it's kind of a vicious cycle....protein pump inhibitors should be two weeks on four months off, something like that.......

I hope you dad can find some relief!

So glad I found the thread too, such nice people!

hf
~kpm~
davvi

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07/27/2014 03:37 PM

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Thank you for your kind words for me and my mom....

Yes, I think the Prilosec exacerbated the IBS symptoms after I was on it for 3 months....I never had used it before my hospital stay and it worked well for those 3 months until I had a set back.....protein pump inhibitors can raise serotonin levels that can cause serotonin syndrome....it's kind of a vicious cycle....protein pump inhibitors should be two weeks on four months off, something like that.......

I hope you dad can find some relief!

So glad I found the thread too, such nice people!

hf
 Quoting: ~KPM~


Thank you so much. We will look forward to seeing you here again and thank you.

hugs
A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

"I knew I was an unwanted baby when my bath toys were a toaster and a radio." --Joan Rivers

"When the law no longer protects you from the corrupt, but protects the corrupt from you - you know your nation is doomed." --Ayn Rand

Goodbye sweet friend, we miss you.
Anonymous Coward
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07/27/2014 03:53 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
red_heart

Some positive thoughts being sent Joannie's way. I hope she gets them!
Anonymous Coward
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07/27/2014 06:28 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I just met somebody who's brother went on hospice with the usual six months to live, stopped all the drugs they had been on to treat his cancer....perked right up and lived for five more years, comfortable, eventually dying of a heart attack while gardening.

The surviving brother is not a big fan of chemo for some reason.
Simple27

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07/27/2014 07:02 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I just met somebody who's brother went on hospice with the usual six months to live, stopped all the drugs they had been on to treat his cancer....perked right up and lived for five more years, comfortable, eventually dying of a heart attack while gardening.

The surviving brother is not a big fan of chemo for some reason.
 Quoting: zenobiaphobia


Amazing!

hugs
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Doomish
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User ID: 8052347
United States
07/27/2014 09:21 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I just met somebody who's brother went on hospice with the usual six months to live, stopped all the drugs they had been on to treat his cancer....perked right up and lived for five more years, comfortable, eventually dying of a heart attack while gardening.

The surviving brother is not a big fan of chemo for some reason.
 Quoting: zenobiaphobia


Great story. Reminds me of the Greek man Stamatis.

[link to greece.greekreporter.com]
Fun Fact for the Week: The drug ecstasy is produced from a tree. In Cambodia, a tree known as “mreah prew phnom,” which has no common English name, has become critically endangered due to the illegal drug trade.

Trying to bring GLP together. I'm still collecting flags from posters all over the world. Thread: Official "Flags from around the world" thread. Hoping to get posts from all countries that frequent GLP.

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Doomish
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07/27/2014 09:28 PM

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Joannie, I still think of you daily.

I hope, at the bare minimum, you are free of pain, discomfort, and fear.

You are surrounded by love, both at home and here.

And someday, when you're ready, you'll be surrounded by God's love. Whether it's in one day or 20 years.

And we'll all be together again in the blink of an eye.

sunset
Fun Fact for the Week: The drug ecstasy is produced from a tree. In Cambodia, a tree known as “mreah prew phnom,” which has no common English name, has become critically endangered due to the illegal drug trade.

Trying to bring GLP together. I'm still collecting flags from posters all over the world. Thread: Official "Flags from around the world" thread. Hoping to get posts from all countries that frequent GLP.

cocolicious15
Signature image from: [link to news.discovery.com]

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