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Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

 
Anonymous Coward
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05/29/2014 07:49 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I hope you fight this and win. hf

My cousin goes in for at least an 8 hour surgery on her neck today. She already had surgery and was told there was a 15% chance it would come back. Well, it did..the size of golf balls she was told. The doctor told her as he was talking to her, it was growing. The last time, they removed part of her tongue, and will probably have to do the same again. She will be in ICU for 2 weeks. My cousin has also been an anorexic and alcoholic since she was 15 so she has never been healthy. I don't know how she will survive, but I pray she does. I have a lot of negative history with her, but I think it has finally hit me. She is 36.
 Quoting: AnonymousGirl


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
 Quoting: geminilion


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
Goddess of the Sea
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05/29/2014 08:05 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
 Quoting: geminilion


hugs

Sorry to hear this friend. Take the comfort medication. No need to torture yourself but it is your choice of course. I send you my love and will keep you in my prayers.

I will / do keep all of you in my prayers already.

My mother and I have been a caregiver for my dad for the last 5 years. He had a terrible, rare form of Parkinson's Disease called MSA. He also had Lewy Body Dementia.

It was rough. He was such a trooper. Never complained. Was such an example of grace under pressure. He passed into the other life (that is so much better than this one) in February.

So, I have much sympathy for all you caregivers and I thank you for being a caregiver. It is the most important job one can have and an honor.

I also am ill myself. I have suffered Liver and Kidney failure and have chronic pain due to an auto accident.

I also have an REM Sleep Disorder and other symptoms that are early symptoms of the same disease my dad had. They call these symptoms "precursors". There is no cure for this disease. No treatment other than experimental and I think it did more harm and caused more suffering through side effects. So I am not going to take any treatment for it.

I love you all and have so much compassion for you all. Live well each day and do not worry yourself. There is another life (I know because I had a Near Death Experience). Have no fear and be comforted. Praying and meditation help very much. headbang

grouphug
Anonymous Coward
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05/29/2014 08:31 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
please look up the hippo-crates institute and their protocols

you do not need to pay any money and go there you can utilise their methods at home

it's a simple change in diet but will have radical effects on your body, it's a matter of not eating this and instead eating that... nothing exotic, nothing expensive. everything still available at your grocery store.

i know someone whose best friend had a two month death sentence... 7 years ago. still alive today. no signs of cancer. the success of this simple change is unparalelled. the friend also adopted the changes as well just as a health measure and now goes around telling people about it

please look it up, please listen to me if you're going to listen to anyone!

this diet in conjunction with medicinal mushrooms such as turkey tail, as well as cannabis oil which has shown to have much success with cancer!!!!! you will likely live a longer life than you would've otherwise. if you don't live somewhere with legal medical marijuana, it might be worth it to move. there is no window. you are elligbile as soon as you "live" in the state

much love

please spread the word so we can save lives!

these are the only sure fire ways of curing cancer
 Quoting: Anonymous Coward 58650948


Of everything I've heard of the cannabis oil is the thing mentioned most. Too bad it's not readily available without knowing someone in the right state.
 Quoting: geminilion


I don't know if it is the right stuff for treatment, but you can order hemp oil and hemp seed butter on amazon. The oil has the omega 3,6, and 9. Supposed to be very nourishing, but I don't know if this is what you need for medical treatment.

Best wishes for you and for everyone with illness in their lives~
Anonymous Coward
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Hong Kong
05/29/2014 11:13 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
....
I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.....


 Quoting: geminilion


I wonder if iodine can help to some extent?

[link to science.naturalnews.com]
[link to curezone.com]
[link to curezone.org]

Anyone willing to share with your experience ?
geminilion (OP)
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05/30/2014 06:03 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I am a cancer survivor and I understand what you are going through. chemotherapy sucks, more than anything I have experienced in my life. However if the chemo was working, ramp back up and get back on. It's the most time proven and effective way to fish cancer that we know of right now. Of course you are going to get a thousand people on here telling you should try every sure they have read on natural news under the sun and I understand that want in yourself to find a cure like that but I have yet to see anything with real validity. Reservatol, Dragonfruit, Curry...I have heard it all, even Dr Brazinski with his recycled urine thing. But my recommendation is to go with what works. Surround yourself with good people and try to laugh as much as possible. You are going to make it, believe.

Cheers!
 Quoting: Sending good vibes your way 56305947

"Surrounding yourself with good people and laughing as much as possible"
This is most important
 Quoting: Guitarguy55


For me a sense of humor and laughing is essential in keeping your spirits up. I have a pretty morbid sense of humor.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 06:06 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Thank you for starting this thread!

I wanted to start a thread recently because my daughter was just diagnosed with Pre B Cell Leukemia. It's been a crazy month. My daughter went to the hospital with a cough and came home with cancer. She's only 5 years old and it broke my heart every day there on the oncology ward.

God Bless you all on your journeys!
 Quoting: Do you see what I see


My heartfelt sympathy goes to you and your family! I absolutely couldn't imagine having my 5 year old daughter being diagnosed with leukemia.

I almost have no words! Please stick around, we have this thread to help each other any way we can.

Hugs to you..Joannie
 Quoting: geminilion


I've added this thread to my personal pins. With all your going through yourself Thank you for your kindness. If there is anything I can do for you, please let me know.

hf
 Quoting: Do you see what I see


Honey, you have enough on your plate. I hope you reach out to any one of us because every single person on this thread are kind hearted and willing to listen or help.

I'll be fine, I assure you.

Big giant hugs to you!
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 06:10 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Pilligan and Founders Fan are my hero's and Im only to page two. What wonderful things you both said!

Gem,

Dried dog poop sifted thru a strainer during the only the summer solstice. this should be smoked with panama leaf acquired from the remote village of Coochebamba on the island of Cayo Levantado. Smoked will standing on one foot which chanting cancer go, cancer go. THIS will cure you.

Okay, Im a smart ass. Advice is great but I think someone with cancer has done their research and is making the best possible course of action for them. Thinking they aren't is sort of insulting.

I am not all pro doctor or anything but there is a reason why we are living much longer than our ancestors. Modern medicine and modern creations such as anti biotics. I am also sure that a lot of these homeopathy ideas can help and not hurt. this is why places like the cancer centers are made. for wrap around care of very sick people.

Gem you are so awesome for making this thread and I have personal pinned it so I can keep up with it. Although I have many health issues, namely ankylosing spondylitis, you have humbled me today and made me feel like my problems aren't that big.

I will pray for you and for all the others (and their sick family members)and I hope that you are at peace and having a pain free day.

RR
 Quoting: Ricky Retardo


You almost had me running for the strainer! LOL Wise words my friend. I know there are more people on GLP with serious illnesses and I really hope they join us.

I know not everyone wants to share, but you know you can always log in as an AC right?

Thanks for your kind words and I love your avatar.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 06:13 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I hope you fight this and win. hf

My cousin goes in for at least an 8 hour surgery on her neck today. She already had surgery and was told there was a 15% chance it would come back. Well, it did..the size of golf balls she was told. The doctor told her as he was talking to her, it was growing. The last time, they removed part of her tongue, and will probably have to do the same again. She will be in ICU for 2 weeks. My cousin has also been an anorexic and alcoholic since she was 15 so she has never been healthy. I don't know how she will survive, but I pray she does. I have a lot of negative history with her, but I think it has finally hit me. She is 36.
 Quoting: AnonymousGirl


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
 Quoting: geminilion


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
 Quoting: AnonymousGirl


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Anonymous Coward
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05/30/2014 07:13 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I hope you fight this and win. hf

My cousin goes in for at least an 8 hour surgery on her neck today. She already had surgery and was told there was a 15% chance it would come back. Well, it did..the size of golf balls she was told. The doctor told her as he was talking to her, it was growing. The last time, they removed part of her tongue, and will probably have to do the same again. She will be in ICU for 2 weeks. My cousin has also been an anorexic and alcoholic since she was 15 so she has never been healthy. I don't know how she will survive, but I pray she does. I have a lot of negative history with her, but I think it has finally hit me. She is 36.
 Quoting: AnonymousGirl


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
 Quoting: geminilion


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
 Quoting: AnonymousGirl


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
 Quoting: geminilion


Thank you. She's my first cousin, her dad is my dad's brother. I can't even imagine if she were my sister. She got out of surgery a little after I posted my last post in here. Almost 12 hours in surgery :(I think my mom may have the ICU (2 weeks) thing mixed up. She will be in the hospital for 2 weeks. The doctors told them the cancer was massive...from the bottom of her jaw to the bottom of her neck. Because she is anorexic they had very little to work with for the reconstructive surgery.

I am just glad she made it through the surgery. We knew it was going to be intense, but because she isn't in the best of health to begin with, I didn't think she'd pull through. Thankfully, she did. Now, it's one day at a time.

I honestly don't know where people fighting this disease, like you, find the strength. And from what I read, it sounds like you don't have a lot of support which must only make it that much more difficult.

hugs
Anonymous Coward
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05/30/2014 07:19 AM
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when you can spare an hour Op. Please watch. Its not illegal because it can get you stoned.
geminilion (OP)
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05/30/2014 08:59 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
...


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
 Quoting: geminilion


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
 Quoting: AnonymousGirl


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
 Quoting: geminilion


Thank you. She's my first cousin, her dad is my dad's brother. I can't even imagine if she were my sister. She got out of surgery a little after I posted my last post in here. Almost 12 hours in surgery :(I think my mom may have the ICU (2 weeks) thing mixed up. She will be in the hospital for 2 weeks. The doctors told them the cancer was massive...from the bottom of her jaw to the bottom of her neck. Because she is anorexic they had very little to work with for the reconstructive surgery.

I am just glad she made it through the surgery. We knew it was going to be intense, but because she isn't in the best of health to begin with, I didn't think she'd pull through. Thankfully, she did. Now, it's one day at a time.

I honestly don't know where people fighting this disease, like you, find the strength. And from what I read, it sounds like you don't have a lot of support which must only make it that much more difficult.

hugs
 Quoting: AnonymousGirl


Getting through the surgery was a blessing but from what you describe she's going to have to be really proactive as far as doing what she has to do to heal.

Eating right, etc. hopefully she'll have the will to do it. No matter how much support she has at the end of the day she is going to be the one to use her last ounce of strength and will to get better.

My daughter and son are here temporarily to help but my son's leaving tomorrow and my daughter is leaving in a few weeks which leaves me with my youngest so who I hate to say it is being a little shit towards me.

I don't know if he's in denial or what but he's avoiding me and being a jack ass, just being honest here. we'll see what happens. I have family but they are kind of far from me.

I tried to have a talk with the son who is leaving tomorrow. He told me that there's no way I am going to die so he's not worried about it.

I've noticed how people react differently to my situation. I have friends that completely avoid me, or not. People either stare at me (due to baldness LOL) or avert their gaze.

It is kind of fascinating. It doesn't bother me, people handle things in different ways.

Please keep coming back to let us know how it goes. I was thinking of you and praying that the surgery would be successful.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
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05/30/2014 11:12 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
I hope you fight this and win. hf

My cousin goes in for at least an 8 hour surgery on her neck today. She already had surgery and was told there was a 15% chance it would come back. Well, it did..the size of golf balls she was told. The doctor told her as he was talking to her, it was growing. The last time, they removed part of her tongue, and will probably have to do the same again. She will be in ICU for 2 weeks. My cousin has also been an anorexic and alcoholic since she was 15 so she has never been healthy. I don't know how she will survive, but I pray she does. I have a lot of negative history with her, but I think it has finally hit me. She is 36.
 Quoting: AnonymousGirl


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
 Quoting: geminilion


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
 Quoting: AnonymousGirl


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
 Quoting: geminilion

My dermatologist examines my mouth better than my dentist. I too, had melanoma. Thank god I was demanding and had her take the little mole off. Which, by the way, was 1/4 the size of a pencil eraser. The guidelines need to change. Anyway, if I had waited 6mos, I might not be here today. God bless you, you will keep winning the good fight. :)
geminilion (OP)
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05/30/2014 11:41 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
 Quoting: geminilion


hugs

Sorry to hear this friend. Take the comfort medication. No need to torture yourself but it is your choice of course. I send you my love and will keep you in my prayers.

I will / do keep all of you in my prayers already.

My mother and I have been a caregiver for my dad for the last 5 years. He had a terrible, rare form of Parkinson's Disease called MSA. He also had Lewy Body Dementia.

It was rough. He was such a trooper. Never complained. Was such an example of grace under pressure. He passed into the other life (that is so much better than this one) in February.

So, I have much sympathy for all you caregivers and I thank you for being a caregiver. It is the most important job one can have and an honor.

I also am ill myself. I have suffered Liver and Kidney failure and have chronic pain due to an auto accident.

I also have an REM Sleep Disorder and other symptoms that are early symptoms of the same disease my dad had. They call these symptoms "precursors". There is no cure for this disease. No treatment other than experimental and I think it did more harm and caused more suffering through side effects. So I am not going to take any treatment for it.

I love you all and have so much compassion for you all. Live well each day and do not worry yourself. There is another life (I know because I had a Near Death Experience). Have no fear and be comforted. Praying and meditation help very much. headbang

grouphug
 Quoting: Goddess of the Sea 2275678

Thanks so much for sharing! Being a care taker is a job from God for sure. I did it for my mom and it is no easy task. You took care of your dad with grace and compassion.

So sorry to hear of your health problems. You seem to have a great attitude! I also believe that there's much more after death, no fear here either.

Stick around, I am hoping this thread can so some good and we have some really compassionate people here.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 11:45 AM

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...


Does she have melanoma? So sorry, I pray she makes it through. I had stage I melanoma 11 years ago and they told me I was cured.

Did some research and it looks like it's not all that uncommon for it to come back. Apparently the cells like to hide and pop up again.

Prayers for you and your cousin.

hf
 Quoting: geminilion


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
 Quoting: AnonymousGirl


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
 Quoting: geminilion

My dermatologist examines my mouth better than my dentist. I too, had melanoma. Thank god I was demanding and had her take the little mole off. Which, by the way, was 1/4 the size of a pencil eraser. The guidelines need to change. Anyway, if I had waited 6mos, I might not be here today. God bless you, you will keep winning the good fight. :)
 Quoting: Anonymous Coward 55079802


Please stay on top of it! I had stage I melanoma 11 years ago and here I am. I was told that the melanoma was gone and I was good to go, obviously not.

Did some research and it looks like tons of people get recurring melanoma sometime in the lifetime. Don't skip derm appts. and if a dr. says don't worry about a mole and wont biopsy it go to another doctor.

So glad you had a good outcome..you're right. If that wasn't taken care of you wouldn't be posting here right now.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 11:51 AM

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I just want to say..I global pinned this thread today to make sure that those that need to see it do. I am hoping you guys stick around.

Or, if you know someone who might benefit please send them on over.

Love you guys!

red_heart
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
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...


Thank you. And for you. hf

For the 10 months prior to her diagnosis, she had gone to the dentist several times. He said it was just a canker sore. It ended up being cancer of the tongue and neck. She went into surgery a little after 8 this morning, and is still not out. They were also going to be doing reconstructive surgery at the same time.

I was told that after she has been in ICU for 2 weeks and then recovered at home for 2 weeks, she will have to do radiation and chemo.

All I know, based on other family members who have had cancer, is once they cut you open, it seems to make everything worse...
 Quoting: AnonymousGirl


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
 Quoting: geminilion

My dermatologist examines my mouth better than my dentist. I too, had melanoma. Thank god I was demanding and had her take the little mole off. Which, by the way, was 1/4 the size of a pencil eraser. The guidelines need to change. Anyway, if I had waited 6mos, I might not be here today. God bless you, you will keep winning the good fight. :)
 Quoting: Anonymous Coward 55079802


Please stay on top of it! I had stage I melanoma 11 years ago and here I am. I was told that the melanoma was gone and I was good to go, obviously not.

Did some research and it looks like tons of people get recurring melanoma sometime in the lifetime. Don't skip derm appts. and if a dr. says don't worry about a mole and wont biopsy it go to another doctor.

So glad you had a good outcome..you're right. If that wasn't taken care of you wouldn't be posting here right now.
 Quoting: geminilion

Do you mind if I ask the details of your stage 1? Mine was 1a, no ulceration/mitosis. .35 Clark II
I recently had to see a surgeon about a groin node, and he said melanoma is in the top 5 things that scare him most as a surgeon. Basically said they are finding now even the most unassuming ones are metastasizing. Mine was in 2010.
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05/30/2014 01:37 PM
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ALERT!!!

Happening NOW

Thread: Radiationnetwork.com Radiation!!!CALIFORNIA SPIKING at 141 NOW! Someone take webshot!
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God comfort us all as we suffer and remind us of your ever vigilant presence. Prayers for you OP. Take in clean water and food and rest your self and soul. God bless you!
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05/30/2014 02:12 PM
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One word, apricot seed just look at the documentary a world without cancer and you will be on your way to recovery.

Just make sure you order non process apricot seed since pasteurized one are dead.

Best of luck
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05/30/2014 02:21 PM

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Pilligan and Founders Fan are my hero's and Im only to page two. What wonderful things you both said!

Gem,

Dried dog poop sifted thru a strainer during the only the summer solstice. this should be smoked with panama leaf acquired from the remote village of Coochebamba on the island of Cayo Levantado. Smoked will standing on one foot which chanting cancer go, cancer go. THIS will cure you.

Okay, Im a smart ass. Advice is great but I think someone with cancer has done their research and is making the best possible course of action for them. Thinking they aren't is sort of insulting.

I am not all pro doctor or anything but there is a reason why we are living much longer than our ancestors. Modern medicine and modern creations such as anti biotics. I am also sure that a lot of these homeopathy ideas can help and not hurt. this is why places like the cancer centers are made. for wrap around care of very sick people.

Gem you are so awesome for making this thread and I have personal pinned it so I can keep up with it. Although I have many health issues, namely ankylosing spondylitis, you have humbled me today and made me feel like my problems aren't that big.

I will pray for you and for all the others (and their sick family members)and I hope that you are at peace and having a pain free day.

RR
 Quoting: Ricky Retardo


^^ This minus the dog poop, LOL.

So many seem to need prayers and it warms my heart seeing how many of us turn to G-d when the burden is too heavy for us to bear alone.

G-d bless you all.

1209 Footprints
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05/30/2014 02:25 PM
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Bless you Gem, you are one of a kind. I popped in here at lunch to look at the headlines and saw you on the list.

I thank you for all you do and who you are. A lot of people do great things, so few are great people. You are in my prayers.

Gomez
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05/30/2014 02:42 PM
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i have lymphoma and breast cancer...
geminilion (OP)
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05/30/2014 03:26 PM

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You can use superantigens to destroy cancer cells, but then Cancer wouldn't be a multi-billion dollar a year income for the hospitals that have these big cancer treatment centers.
They have done enough research and spent enough money in the last 40 or so years to know what cancer is and how to destroy it, but it is big big business.
Now most of the money is spent on how to treat it, but not how to cure it.
 Quoting: Anonymous Coward 58299862


I can believe that but we either buy what they are selling or go for the other alternatives that sometimes don't have the studies to back them up to rely on for treatment.

The Cancer Center's of America have ads on all the time and I wonder what type of insurance they take.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 03:33 PM

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...


Damn dentist! They are trained to spot things like that. We have so much confidence in the medical community that we wont even question what they say.

I'll be thinking of you and your sister with lots of prayers. Poor thing is going through so much as are you. If you can please report back and let us know how it goes.

She has many, many weeks of healing in front of her. Hang tough sister.

hf
 Quoting: geminilion

My dermatologist examines my mouth better than my dentist. I too, had melanoma. Thank god I was demanding and had her take the little mole off. Which, by the way, was 1/4 the size of a pencil eraser. The guidelines need to change. Anyway, if I had waited 6mos, I might not be here today. God bless you, you will keep winning the good fight. :)
 Quoting: Anonymous Coward 55079802


Please stay on top of it! I had stage I melanoma 11 years ago and here I am. I was told that the melanoma was gone and I was good to go, obviously not.

Did some research and it looks like tons of people get recurring melanoma sometime in the lifetime. Don't skip derm appts. and if a dr. says don't worry about a mole and wont biopsy it go to another doctor.

So glad you had a good outcome..you're right. If that wasn't taken care of you wouldn't be posting here right now.
 Quoting: geminilion

Do you mind if I ask the details of your stage 1? Mine was 1a, no ulceration/mitosis. .35 Clark II
I recently had to see a surgeon about a groin node, and he said melanoma is in the top 5 things that scare him most as a surgeon. Basically said they are finding now even the most unassuming ones are metastasizing. Mine was in 2010.
 Quoting: Anonymous Coward 55079802


I didn't get much more info. except stage 1, I know it didn't permeate a deep layer. They did the wide local incision and sentinel node biopsy and everything turned out clear.

The mole was on my right collarbone. Now my Dr. says that even though they thought they got it all one or two cells went rogue and just kind of hid in my body and his words "exploded and just went crazy attacking my organs"

So, it wasn't due to anything I might or might not have done. No visible, suspicious moles, nothing except being really tired all the time.

I couldn't give my brother a kidney, give blood or tissue to anyone due to my just having melanoma in the past. I know there were some Swedish studies that prompted the medical community to exclude those with a history of melanoma from donating anything.

They found cases where there were organ transplants that made the beneficiary of organ, tissue, blood actually get melanoma and die...that's really something to look at right there.

So my friend, I hate to say it, but don't ever get too comfortable with this. Feel free to pm me with any questions.

Last Edited by geminilion on 05/30/2014 03:34 PM
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 03:38 PM

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Bless you Gem, you are one of a kind. I popped in here at lunch to look at the headlines and saw you on the list.

I thank you for all you do and who you are. A lot of people do great things, so few are great people. You are in my prayers.

Gomez
 Quoting: Gomez 12852453


You and guitarguy made me want to start a thread like this. I hope you can contribute when you can. I know it's hard being sick and just taking care of business, never mind finding the time or energy to post here but it would be nice.

And I'm happy that the finest, most generous, people on any website came together to help you in your time of need.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 03:40 PM

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i have lymphoma and breast cancer...
 Quoting: Anonymous Coward 39220861


So sorry! If you don't feel comfortable sharing please, PM me..I am more then willing to "talk" or just be an ear to listen.

God bless and prayers for you and your family.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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05/30/2014 03:47 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Pilligan and Founders Fan are my hero's and Im only to page two. What wonderful things you both said!

Gem,

Dried dog poop sifted thru a strainer during the only the summer solstice. this should be smoked with panama leaf acquired from the remote village of Coochebamba on the island of Cayo Levantado. Smoked will standing on one foot which chanting cancer go, cancer go. THIS will cure you.

Okay, Im a smart ass. Advice is great but I think someone with cancer has done their research and is making the best possible course of action for them. Thinking they aren't is sort of insulting.

I am not all pro doctor or anything but there is a reason why we are living much longer than our ancestors. Modern medicine and modern creations such as anti biotics. I am also sure that a lot of these homeopathy ideas can help and not hurt. this is why places like the cancer centers are made. for wrap around care of very sick people.

Gem you are so awesome for making this thread and I have personal pinned it so I can keep up with it. Although I have many health issues, namely ankylosing spondylitis, you have humbled me today and made me feel like my problems aren't that big.

I will pray for you and for all the others (and their sick family members)and I hope that you are at peace and having a pain free day.

RR
 Quoting: Ricky Retardo


^^ This minus the dog poop, LOL.

So many seem to need prayers and it warms my heart seeing how many of us turn to G-d when the burden is too heavy for us to bear alone.

G-d bless you all.

1209 Footprints
 Quoting: davvi


You really are a sweetheart davii.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
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05/30/2014 04:38 PM
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...

My dermatologist examines my mouth better than my dentist. I too, had melanoma. Thank god I was demanding and had her take the little mole off. Which, by the way, was 1/4 the size of a pencil eraser. The guidelines need to change. Anyway, if I had waited 6mos, I might not be here today. God bless you, you will keep winning the good fight. :)
 Quoting: Anonymous Coward 55079802


Please stay on top of it! I had stage I melanoma 11 years ago and here I am. I was told that the melanoma was gone and I was good to go, obviously not.

Did some research and it looks like tons of people get recurring melanoma sometime in the lifetime. Don't skip derm appts. and if a dr. says don't worry about a mole and wont biopsy it go to another doctor.

So glad you had a good outcome..you're right. If that wasn't taken care of you wouldn't be posting here right now.
 Quoting: geminilion

Do you mind if I ask the details of your stage 1? Mine was 1a, no ulceration/mitosis. .35 Clark II
I recently had to see a surgeon about a groin node, and he said melanoma is in the top 5 things that scare him most as a surgeon. Basically said they are finding now even the most unassuming ones are metastasizing. Mine was in 2010.
 Quoting: Anonymous Coward 55079802


I didn't get much more info. except stage 1, I know it didn't permeate a deep layer. They did the wide local incision and sentinel node biopsy and everything turned out clear.

The mole was on my right collarbone. Now my Dr. says that even though they thought they got it all one or two cells went rogue and just kind of hid in my body and his words "exploded and just went crazy attacking my organs"

So, it wasn't due to anything I might or might not have done. No visible, suspicious moles, nothing except being really tired all the time.

I couldn't give my brother a kidney, give blood or tissue to anyone due to my just having melanoma in the past. I know there were some Swedish studies that prompted the medical community to exclude those with a history of melanoma from donating anything.

They found cases where there were organ transplants that made the beneficiary of organ, tissue, blood actually get melanoma and die...that's really something to look at right there.

So my friend, I hate to say it, but don't ever get too comfortable with this. Feel free to pm me with any questions.
 Quoting: geminilion


...

My dermatologist examines my mouth better than my dentist. I too, had melanoma. Thank god I was demanding and had her take the little mole off. Which, by the way, was 1/4 the size of a pencil eraser. The guidelines need to change. Anyway, if I had waited 6mos, I might not be here today. God bless you, you will keep winning the good fight. :)
 Quoting: Anonymous Coward 55079802


Please stay on top of it! I had stage I melanoma 11 years ago and here I am. I was told that the melanoma was gone and I was good to go, obviously not.

Did some research and it looks like tons of people get recurring melanoma sometime in the lifetime. Don't skip derm appts. and if a dr. says don't worry about a mole and wont biopsy it go to another doctor.

So glad you had a good outcome..you're right. If that wasn't taken care of you wouldn't be posting here right now.
 Quoting: geminilion

Do you mind if I ask the details of your stage 1? Mine was 1a, no ulceration/mitosis. .35 Clark II
I recently had to see a surgeon about a groin node, and he said melanoma is in the top 5 things that scare him most as a surgeon. Basically said they are finding now even the most unassuming ones are metastasizing. Mine was in 2010.
 Quoting: Anonymous Coward 55079802


I didn't get much more info. except stage 1, I know it didn't permeate a deep layer. They did the wide local incision and sentinel node biopsy and everything turned out clear.

The mole was on my right collarbone. Now my Dr. says that even though they thought they got it all one or two cells went rogue and just kind of hid in my body and his words "exploded and just went crazy attacking my organs"

So, it wasn't due to anything I might or might not have done. No visible, suspicious moles, nothing except being really tired all the time.

I couldn't give my brother a kidney, give blood or tissue to anyone due to my just having melanoma in the past. I know there were some Swedish studies that prompted the medical community to exclude those with a history of melanoma from donating anything.

They found cases where there were organ transplants that made the beneficiary of organ, tissue, blood actually get melanoma and die...that's really something to look at right there.

So my friend, I hate to say it, but don't ever get too comfortable with this. Feel free to pm me with any questions.
 Quoting: geminilion

That is so damn scary. They did nothing except wide local excision. No node mapping, nothing. I think I have has about 5 MRIs in the last year for mysterious lumps appearing dipping the tissue on my leg. Same leg as the beast. It was on my foot. I can actually be over zealous, but I figure it's my life right?
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05/30/2014 04:40 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Quoting OP:

I didn't get much more info. except stage 1, I know it didn't permeate a deep layer. They did the wide local incision and sentinel node biopsy and everything turned out clear.

The mole was on my right collarbone. Now my Dr. says that even though they thought they got it all one or two cells went rogue and just kind of hid in my body and his words "exploded and just went crazy attacking my organs"

So, it wasn't due to anything I might or might not have done. No visible, suspicious moles, nothing except being really tired all the time.

I couldn't give my brother a kidney, give blood or tissue to anyone due to my just having melanoma in the past. I know there were some Swedish studies that prompted the medical community to exclude those with a history of melanoma from donating anything.

They found cases where there were organ transplants that made the beneficiary of organ, tissue, blood actually get melanoma and die...that's really something to look at right there.

So my friend, I hate to say it, but don't ever get too comfortable with this. Feel free to pm me with any questions.

I do have a question.. How did you find out it had metastized?
geminilion (OP)
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05/30/2014 06:31 PM

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Quoting OP:

I didn't get much more info. except stage 1, I know it didn't permeate a deep layer. They did the wide local incision and sentinel node biopsy and everything turned out clear.

The mole was on my right collarbone. Now my Dr. says that even though they thought they got it all one or two cells went rogue and just kind of hid in my body and his words "exploded and just went crazy attacking my organs"

So, it wasn't due to anything I might or might not have done. No visible, suspicious moles, nothing except being really tired all the time.

I couldn't give my brother a kidney, give blood or tissue to anyone due to my just having melanoma in the past. I know there were some Swedish studies that prompted the medical community to exclude those with a history of melanoma from donating anything.

They found cases where there were organ transplants that made the beneficiary of organ, tissue, blood actually get melanoma and die...that's really something to look at right there.

So my friend, I hate to say it, but don't ever get too comfortable with this. Feel free to pm me with any questions.

I do have a question.. How did you find out it had metastized?
 Quoting: Anonymous Coward 55079802


I went to the dr. for an unrelated problem and he mentioned it was time for my yearly check-up. He always sends me for a chest x-ray so that's what I did.

He called me into his office a few days later and told me that there was an abnormality in my right lung. He suggested we wait four months to see if it was just scar tissue as I just got over a bad cough.

Four months later abnormality is still there. Now he suggests waiting six months and I told him hell to the no. I had to remind him that I had melanoma years back and I didn't want to take any chances.

So, he sends me for a Pet and a few spots in my lung and mediastinal lymph nodes lit up stating that there was a chance of metastisis.

I went to NYU for biopsy and yes indeed, it was recurrent melanoma stage IV. So now there's CAT scans, MRI of brain, all the fun stuff.

At this point the melanoma had reached my brain. Two large tumors and a bunch of small ones. The radiation really shrunk the tumors. Once there's brain involvement it's even harder to treat because of the blood/brain barrier.

I hope this helps. PM me any time if you have more questions or just post in thread.

hf

Just want to add...I didn't have any major symptoms, not even a headache. So, thankfully I had that chest x-ray. Not trying to scare you, just want you to be aware.

Last Edited by geminilion on 05/30/2014 06:33 PM
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus

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