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Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

 
geminilion (OP)
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06/01/2014 05:37 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Doctors only kill people , a hospital is where you go when you're ready to die
 Quoting: Anonymous Coward 58750705


I know many people that would be dead right now if it weren't for a doctor/hospital.

Thanks for your input though.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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06/01/2014 05:39 PM

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I think that sometimes people just don't know how to act, or they feel they don't know what to say. I'm like that. I feel very, very deeply for people, but feel awkward in showing that sometimes.

I also think people try to put on a brave face for others who are suffering, and maybe that can get misinterpreted. People in your life are going through a whole lot of strong emotions, and maybe some denial. It's hard to think that someone who has been there for you your entire life could actually die.

I got diagnosed with non-hodgkin's lymphoma when I was 30. Had a lymph node removed and they found an egg-sized mass in my liver. Never did find out what the mass was.

Anyway, I remember how my mom seemed to be acting as if non of it was a big deal. I told my sister that mom seemed to not be too concerned, and that got back to my mom, who was devastated to hear that I thought she didn't care. She was just trying to be strong for me but I thought that she was just was not taking it very seriously.

This thread was a great idea, Joannie. It's such a help for people to be able to talk with others about these things.
 Quoting: Paige


I agree Paige, I am sure he's having a rough time but it's hard for me not to have my feelings hurt. I'm just leaving it alone and hopefully he will be able to talk to me.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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06/01/2014 05:40 PM

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This thread was a great idea, Joannie. It's such a help for people to be able to talk with others about these things.
 Quoting: Paige


I second that. This thread actually gave me great comfort. Thank you again Joannie. hf
 Quoting: Do you see what I see


I hope you stick around...you've got a heavy load on your shoulders. You are full of so much grace and strength I just can't imagine!

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
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06/02/2014 07:38 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Do you see what I see

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06/02/2014 10:04 AM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


Same to you!!

We are heading to the hospital in a bit for a consult before my daughters mediport surgery tomorrow. Hope you are feeling well. :D

Have a wonderful day!


hf
"Things do not happen. Things are made to happen." John F. Kennedy
geminilion (OP)
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06/02/2014 12:44 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


Same to you!!

We are heading to the hospital in a bit for a consult before my daughters mediport surgery tomorrow. Hope you are feeling well. :D

Have a wonderful day!


hf
 Quoting: Do you see what I see


I know you have a lot going on but if you get the chance let me know how it goes.

Prayers and more prayers..hugs, Joannie
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Gomez

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06/02/2014 05:23 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


and a great morning to you too !
______________________________

We even take pride in our problems, because we know that trouble produces endurance, endurance produces character, and character produces hope.
Do you see what I see

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06/02/2014 07:47 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


Same to you!!

We are heading to the hospital in a bit for a consult before my daughters mediport surgery tomorrow. Hope you are feeling well. :D

Have a wonderful day!


hf
 Quoting: Do you see what I see


I know you have a lot going on but if you get the chance let me know how it goes.

Prayers and more prayers..hugs, Joannie
 Quoting: geminilion


She had a difficult evening, it's bothering her how much different she looks. Thankfully we can give the steroids a rest for a bit, and hopefully at least get rid of all the bloating.

IDK, hearing a five year old say and feel this way.... It just breaks my heart.
"Things do not happen. Things are made to happen." John F. Kennedy
Simple27

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06/02/2014 09:03 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


hi Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.

bighug

s27heart7
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Do you see what I see

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06/02/2014 10:03 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


hi Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.

bighug

s27heart7
 Quoting: Simple27


Aww, sweetheart. I'll pray for you as well.

blwkss
"Things do not happen. Things are made to happen." John F. Kennedy
tiger1

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06/02/2014 10:55 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


Same to you!!

We are heading to the hospital in a bit for a consult before my daughters mediport surgery tomorrow. Hope you are feeling well. :D

Have a wonderful day!


hf
 Quoting: Do you see what I see


I know you have a lot going on but if you get the chance let me know how it goes.

Prayers and more prayers..hugs, Joannie
 Quoting: geminilion


She had a difficult evening, it's bothering her how much different she looks. Thankfully we can give the steroids a rest for a bit, and hopefully at least get rid of all the bloating.

IDK, hearing a five year old say and feel this way.... It just breaks my heart.
 Quoting: Do you see what I see


Prayers sent up for both of you ! hf
tiger1

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06/02/2014 10:56 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


hi Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.

bighug

s27heart7
 Quoting: Simple27


Prayers for you !hf
Simple27

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06/02/2014 11:42 PM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


hi Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.

bighug

s27heart7
 Quoting: Simple27


Oh no! What is going on??

:(
 Quoting: Paige


Skin cancer. Just found out in April and the first available appointment with the oncologist was June 20th so I scheduled it. I know that was the date because my mom's birthday is June 21st and I immediately thought, it's the day before mom's b-day. They must have had a cancellation or something and sent me a letter to confirm this Thursday. 1dunno1

I would have taken June 5th if it was available at the time because I want to take care of everything sooner than later, but I just wasn't expecting that.

Everything happens for a reason. At least I truly believe that and always have. I consider myself lucky to be able to have my consultation this week instead of the 20th. hf

Game face time! hugs

And thank you to those who said they will pray for me. I appreciate it more than I could say. I have witnessed the power of prayer here on GLP. Amazing people here. : )

grouphug
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Simple27

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06/03/2014 12:35 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Oh, I am so sorry to hear that, sweetheart.

I'll definitely be including you in my prayers along with everyone else in this thread.
 Quoting: Paige


Thank you, Paige : )

hugs
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Anonymous Coward
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06/03/2014 12:57 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Thanks for starting this thread. I too have melanoma, I just finnished a year of interferon boy am I glad thats done. Now I'm waiting to take the CT scan to see if I'm in remission. I dont feel real good about it though. I'm still feeling really sick. Which meds are they trying now on you? And I am sorry you are ill wish noone had to suffer this.
Simple27

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06/03/2014 01:45 AM

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Thanks for starting this thread. I too have melanoma, I just finnished a year of interferon boy am I glad thats done. Now I'm waiting to take the CT scan to see if I'm in remission. I dont feel real good about it though. I'm still feeling really sick. Which meds are they trying now on you? And I am sorry you are ill wish noone had to suffer this.
 Quoting: Anonymous Coward 56148605


The interferon was awful?? I've heard this, although I've heard they updated the treatment so that it is far less pills, shots and even length of time. I believe this "updated" version is very new so I assume you had the far worse treatment. Prayers to you. Congrats for getting through that phase my friend! hf
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
geminilion (OP)
We need more cowbell!

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06/03/2014 06:03 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


Same to you!!

We are heading to the hospital in a bit for a consult before my daughters mediport surgery tomorrow. Hope you are feeling well. :D

Have a wonderful day!


hf
 Quoting: Do you see what I see


I know you have a lot going on but if you get the chance let me know how it goes.

Prayers and more prayers..hugs, Joannie
 Quoting: geminilion


She had a difficult evening, it's bothering her how much different she looks. Thankfully we can give the steroids a rest for a bit, and hopefully at least get rid of all the bloating.

IDK, hearing a five year old say and feel this way.... It just breaks my heart.
 Quoting: Do you see what I see


It's hard enough for an adult to deal with all of that never mind a child. Are there any kind of social services or a social worker available to help you help her?

This is something most of us have no experience in, the psychological part of dealing with a child that has a serious illness.

Keep us updated if you can honey. You and your family are in my thoughts and prayers. It's good to vent and let it out or just talk about your day.

Hugs and more hugs, Joannie
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
We need more cowbell!

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06/03/2014 06:11 AM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


hi Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.

bighug

s27heart7
 Quoting: Simple27


Through me for a loop there! Don't go through it alone, we're here for you honey. Do you have anyone to go with you or any support there at all?

I'm with you in prayer sending good vibes. I'll be thinking of you. If you're nervous, and who wouldn't be? You can come here and talk about it.

Some things are personal, feel free to pm me anytime.

Hugs, Joannie

red_heart
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)
We need more cowbell!

User ID: 50010568
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06/03/2014 06:18 AM

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Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

hfhappyheart
 Quoting: geminilion


hi Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.

bighug

s27heart7
 Quoting: Simple27


Oh no! What is going on??

:(
 Quoting: Paige


Skin cancer. Just found out in April and the first available appointment with the oncologist was June 20th so I scheduled it. I know that was the date because my mom's birthday is June 21st and I immediately thought, it's the day before mom's b-day. They must have had a cancellation or something and sent me a letter to confirm this Thursday. 1dunno1

I would have taken June 5th if it was available at the time because I want to take care of everything sooner than later, but I just wasn't expecting that.

Everything happens for a reason. At least I truly believe that and always have. I consider myself lucky to be able to have my consultation this week instead of the 20th. hf

Game face time! hugs

And thank you to those who said they will pray for me. I appreciate it more than I could say. I have witnessed the power of prayer here on GLP. Amazing people here. : )

grouphug
 Quoting: Simple27


Now I see this...take care of everything as soon as you can, time is of the essence here. I am guessing they did a biopsy?

My birthday is June 20th, and your mom is on the first day of Summer. Stay strong honey.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Anonymous Coward
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06/03/2014 06:41 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Because she is anorexic they had very little to work with for the reconstructive surgery.

 Quoting: AnonymousGirl


Cachexia is often confused with anorexia. Has she been "anorexic" long?
[link to www.ncbi.nlm.nih.gov]

Cancer cachexia describes a syndrome of progressive weight loss, anorexia, and persistent erosion of host body cell mass in response to a malignant growth. Although often associated with preterminal patients bearing disseminated disease, cachexia may be present in the early stages of tumor growth before any signs or symptoms of malignancy


BTW, if anyone is considering hemp oil they may do so legally in Oregon, its just taking it home that is the problem:

[link to portlandalternativeclinic.com]
Out of State Patients: patients that do not live in the state of Oregon can obtain a medical marijuana card from the Oregon Medical Marijuana Program (OMMP). Dr. Camacho provides the medical recommendation required by the OMMP. These patients may use their own out of state license, but need to have a grow site address in Oregon. This is a requirement of the OMMP.

Many people just stick around and do it here, its a lovely state.
geminilion (OP)
We need more cowbell!

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06/03/2014 06:51 AM

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Because she is anorexic they had very little to work with for the reconstructive surgery.

 Quoting: AnonymousGirl


Cachexia is often confused with anorexia. Has she been "anorexic" long?
[link to www.ncbi.nlm.nih.gov]

Cancer cachexia describes a syndrome of progressive weight loss, anorexia, and persistent erosion of host body cell mass in response to a malignant growth. Although often associated with preterminal patients bearing disseminated disease, cachexia may be present in the early stages of tumor growth before any signs or symptoms of malignancy


BTW, if anyone is considering hemp oil they may do so legally in Oregon, its just taking it home that is the problem:

[link to portlandalternativeclinic.com]
Out of State Patients: patients that do not live in the state of Oregon can obtain a medical marijuana card from the Oregon Medical Marijuana Program (OMMP). Dr. Camacho provides the medical recommendation required by the OMMP. These patients may use their own out of state license, but need to have a grow site address in Oregon. This is a requirement of the OMMP.

Many people just stick around and do it here, its a lovely state.
 Quoting: zenobiaphobia


It sucks that not everyone has access to something that can help them. Get a bottle of Jack, that'll help...makes me so mad!
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Simple27

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06/03/2014 09:05 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support. hf

hugs
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
geminilion (OP)
We need more cowbell!

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06/03/2014 09:20 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support. hf

hugs
 Quoting: Simple27


My mom was my best friend as well, no one will ever replace her.

You have no idea how many times I've heard stories of doctors dropping the ball leaving the mole or whatever saying it's nothing. I don't understand why they wouldn't double check just in case...so that really sucks for you and it makes me really angry.

I believe the depth (clarks level) is the main concern as far as melanoma goes. It permeates the layers of skin and then likes to travel.

Hopefully it hasn't gotten that far. It goes without saying that you have my prayers honey. I check in here every now and again to see what's going on.

red_heart

A very informative website with lots of melanoma patients who have seen it all. If nothing else it's worth browsing through.

[link to www.melanoma.org]

Last Edited by geminilion on 06/03/2014 09:21 AM
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Nika

User ID: 5702896
United States
06/03/2014 05:42 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
:infnty:

:ihavgsbmp:
Simple27

User ID: 57832527
United States
06/03/2014 07:28 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I'm so sorry for your loss. I couldn't even imagine the pain you're in. Stay strong and know he isn't in pain anymore.

verysad

hugs
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Simple27

User ID: 57832527
United States
06/03/2014 07:31 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support. hf

hugs
 Quoting: Simple27


My mom was my best friend as well, no one will ever replace her.

You have no idea how many times I've heard stories of doctors dropping the ball leaving the mole or whatever saying it's nothing. I don't understand why they wouldn't double check just in case...so that really sucks for you and it makes me really angry.

I believe the depth (clarks level) is the main concern as far as melanoma goes. It permeates the layers of skin and then likes to travel.

Hopefully it hasn't gotten that far. It goes without saying that you have my prayers honey. I check in here every now and again to see what's going on.

red_heart

A very informative website with lots of melanoma patients who have seen it all. If nothing else it's worth browsing through.

[link to www.melanoma.org]
 Quoting: geminilion


Sorry, I should have been more specific. It's BCC, not melanoma. But I'm still going to take a look at your link, thank you. hf hugs
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.
Do you see what I see

User ID: 57345073
United States
06/03/2014 08:17 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I am so sorry for your loss.

Doctors came be so frustrating. I was actually the one who demanded a blood test for my daughter. I kept looking up her symptoms and it leukemia was the number one hit every time. So believe me when I say, I understand.

I'm praying for everyone on this thread and will include you as well.

red_heart
"Things do not happen. Things are made to happen." John F. Kennedy
Gomez

User ID: 57785819
United States
06/03/2014 10:33 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I am sorry to hear this. I believe you are correct on your assessment, and it is sad so many have to experience this.

My prayers are with you and your broken heart.
______________________________

We even take pride in our problems, because we know that trouble produces endurance, endurance produces character, and character produces hope.
Gomez

User ID: 57785819
United States
06/03/2014 10:35 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support. hf

hugs
 Quoting: Simple27


Your strength is an inspiration.
______________________________

We even take pride in our problems, because we know that trouble produces endurance, endurance produces character, and character produces hope.
Simple27

User ID: 57832527
United States
06/03/2014 10:37 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Much, much love Gomez!

bighug
Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.

The difference between stupidity and genius is that genius has its limits.

You have to learn the rules of the game. And then you have to play better than anyone else.

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