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Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

 
Simple27

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06/03/2014 10:38 PM

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This song seems fitting here on this thread. : )

grouphug
s27candy
tiger1

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06/03/2014 10:44 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


Hugs to you.hugs
geminilion (OP)

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06/03/2014 11:06 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I'm so sorry and I can relate, my only brother died the same way 4 years ago. Stage IV at diagnosis as was I. It is maddening and so unfair thinking they could have had a chance.

Through experience we learn. Don't take no for an answer if you feel something isn't right. How many stories have we heard like this? Doctors aren't Gods and we know our bodies.

He didn't get to stage IV overnight and the doctors will cover for each other. I really am feeling for you, only time will help with the pain..and the anger.

Sometimes legal action is warranted, money is the only thing they understand. I don't know your situation completely but it's something to think about.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/03/2014 11:08 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support. hf

hugs
 Quoting: Simple27


My mom was my best friend as well, no one will ever replace her.

You have no idea how many times I've heard stories of doctors dropping the ball leaving the mole or whatever saying it's nothing. I don't understand why they wouldn't double check just in case...so that really sucks for you and it makes me really angry.

I believe the depth (clarks level) is the main concern as far as melanoma goes. It permeates the layers of skin and then likes to travel.

Hopefully it hasn't gotten that far. It goes without saying that you have my prayers honey. I check in here every now and again to see what's going on.

red_heart

A very informative website with lots of melanoma patients who have seen it all. If nothing else it's worth browsing through.

[link to www.melanoma.org]
 Quoting: geminilion


Sorry, I should have been more specific. It's BCC, not melanoma. But I'm still going to take a look at your link, thank you. hf hugs
 Quoting: Simple27


Excuse my ignorance simple but what is BBC?
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/03/2014 11:10 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I am so sorry for your loss.

Doctors came be so frustrating. I was actually the one who demanded a blood test for my daughter. I kept looking up her symptoms and it leukemia was the number one hit every time. So believe me when I say, I understand.

I'm praying for everyone on this thread and will include you as well.

red_heart
 Quoting: Do you see what I see


Thank God you were being proactive! Imagine if you just ignored it? I am sure my cancer was sitting around for a good long time.

I hope your precious daughter is feeling well today.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/03/2014 11:11 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Basal-cell carcinoma.
 Quoting: Paige


Thanks Paige!
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Do you see what I see

User ID: 57345073
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06/03/2014 11:19 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I am so sorry for your loss.

Doctors came be so frustrating. I was actually the one who demanded a blood test for my daughter. I kept looking up her symptoms and it leukemia was the number one hit every time. So believe me when I say, I understand.

I'm praying for everyone on this thread and will include you as well.

red_heart
 Quoting: Do you see what I see


Thank God you were being proactive! Imagine if you just ignored it? I am sure my cancer was sitting around for a good long time.

I hope your precious daughter is feeling well today.
 Quoting: geminilion


Thank you Joannie. She had surgery today. It went very well and she is sleeping peacefully. We have a 10 day break now before we have to go back to the hospital so we are both feeling a sense of relief. I'm really starting to hate that place. UGH. The good news is today was her last dose of decadron, so hopefully she will be a little more comfortable in the coming days.

Does anyone know how long it takes the "moon face" to go back down to normal? She is so swollen and uncomfortable.

hf
"Things do not happen. Things are made to happen." John F. Kennedy

[link to www.facebook.com (secure)]
Simple27

User ID: 57832527
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06/03/2014 11:40 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Basal-cell carcinoma.
 Quoting: Paige


Thanks Paige!
 Quoting: geminilion


Sorry, just getting back here. Yes, what Paige said. hf
s27candy
Simple27

User ID: 57832527
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06/04/2014 12:11 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Basal-cell carcinoma.
 Quoting: Paige


Thanks Paige!
 Quoting: geminilion


Sorry, just getting back here. Yes, what Paige said. hf
 Quoting: Simple27


Do you mind saying where yours is located. I've read the 80% of them are discovered on the head or neck.

What tipped you off that something was not right?
 Quoting: Paige


It is on my right upper arm. Like the front of my right shoulder.

What tipped me off was I had noticed what looked like 2 or 3 little tiny bubbles/blisters on that area of my arm. At first didn't think too much of it, but after a little while of them being there, I had mentioned it to a doctor I was seeing at the time. She said "oh that's nothing to be worried about, we can just freeze it right now. Nothing to worry about."

Pfft...Ugh, this frustrates me so much. That was so long ago. Years. This whole scenario could have been so much easier to handle. I mean, it's deep. It had already started to show physically 4-ish years ago (and I could be wrong, it may be longer ago). I believe it was the end of April/beginning of May that my current PCP removed the spot for the biopsy. Those same bubble/blister looking bumps are already coming back. It also kind of hurts/stings at times. I know the surgery is going to be more on the serious side because my PCP told me that the oncologist I'm seeing is really great and if need be plastic surgery can be done for the scarring...

hiding

I didn't like that. : (

But the good news is that my nanny sees the same oncologist for her recently discovered breast cancer and she loves him! Says he is great. She actually just had her surgery today and is doing fantastic!! I am so relieved and happy about this. I was heart broken when I found out she had breast cancer...for a few different reasons. But she's doing great and I am going to be seeing the same doctor she's been seeing. : )

hf

smile_kiss
s27candy
geminilion (OP)

User ID: 50010568
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06/04/2014 12:53 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.
 Quoting: Nika


I am so sorry for your loss.

Doctors came be so frustrating. I was actually the one who demanded a blood test for my daughter. I kept looking up her symptoms and it leukemia was the number one hit every time. So believe me when I say, I understand.

I'm praying for everyone on this thread and will include you as well.

red_heart
 Quoting: Do you see what I see


Thank God you were being proactive! Imagine if you just ignored it? I am sure my cancer was sitting around for a good long time.

I hope your precious daughter is feeling well today.
 Quoting: geminilion


Thank you Joannie. She had surgery today. It went very well and she is sleeping peacefully. We have a 10 day break now before we have to go back to the hospital so we are both feeling a sense of relief. I'm really starting to hate that place. UGH. The good news is today was her last dose of decadron, so hopefully she will be a little more comfortable in the coming days.

Does anyone know how long it takes the "moon face" to go back down to normal? She is so swollen and uncomfortable.

hf
 Quoting: Do you see what I see


Glad to hear all went well and you'll both get a break. I have no idea how long it will take for swelling to go down, maybe an internet search can answer your question.

Continued prayers hon.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/04/2014 12:54 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Basal-cell carcinoma.
 Quoting: Paige


Thanks Paige!
 Quoting: geminilion


How are you doing today, Joannie?
 Quoting: Paige


I'm okay, so far so good with chemo meds. I have to keep taking naps but that's no biggie. Think I have another tumor which is kind of popping out of my right side but it's not bothering me too much.

Go to Dr. tomorrow so we'll see what else has developed, hopefully nothing.

Thanks for asking Paige.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/04/2014 01:01 AM
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...


Thanks Paige!
 Quoting: geminilion


Sorry, just getting back here. Yes, what Paige said. hf
 Quoting: Simple27


Do you mind saying where yours is located. I've read the 80% of them are discovered on the head or neck.

What tipped you off that something was not right?
 Quoting: Paige


It is on my right upper arm. Like the front of my right shoulder.

What tipped me off was I had noticed what looked like 2 or 3 little tiny bubbles/blisters on that area of my arm. At first didn't think too much of it, but after a little while of them being there, I had mentioned it to a doctor I was seeing at the time. She said "oh that's nothing to be worried about, we can just freeze it right now. Nothing to worry about."

Pfft...Ugh, this frustrates me so much. That was so long ago. Years. This whole scenario could have been so much easier to handle. I mean, it's deep. It had already started to show physically 4-ish years ago (and I could be wrong, it may be longer ago). I believe it was the end of April/beginning of May that my current PCP removed the spot for the biopsy. Those same bubble/blister looking bumps are already coming back. It also kind of hurts/stings at times. I know the surgery is going to be more on the serious side because my PCP told me that the oncologist I'm seeing is really great and if need be plastic surgery can be done for the scarring...

hiding

I didn't like that. : (

But the good news is that my nanny sees the same oncologist for her recently discovered breast cancer and she loves him! Says he is great. She actually just had her surgery today and is doing fantastic!! I am so relieved and happy about this. I was heart broken when I found out she had breast cancer...for a few different reasons. But she's doing great and I am going to be seeing the same doctor she's been seeing. : )

hf

smile_kiss
 Quoting: Simple27


See, again with a missed diagnosis! Glad you like your doctor, it's so important! I'm not crazy about my oncologist and tried to switch to a new one. She wants me to keep the one I have as he is somewhat of a melanoma expert and she is more the breast cancer expert.

However, she is working as my pain management doctor, don't think she wants to step on toes. I like her so much better then my original doctor but she's right, I need to stick with him.

Thursday is fast approaching and I know you are getting nervous, don't blame you at all Simple, we are here for you.

Note: no longer have premium, I am more then willing to give out my email address if anyone wants it as I can't do PM's now.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/04/2014 01:20 AM
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...


Thanks Paige!
 Quoting: geminilion


How are you doing today, Joannie?
 Quoting: Paige


I'm okay, so far so good with chemo meds. I have to keep taking naps but that's no biggie. Think I have another tumor which is kind of popping out of my right side but it's not bothering me too much.

Go to Dr. tomorrow so we'll see what else has developed, hopefully nothing.

Thanks for asking Paige.
 Quoting: geminilion


You are so wonderful, Joannie. You are much loved and lot's of people are praying for you and keeping you in their thoughts.
 Quoting: Paige


Thank you so much! We have a great bunch of people contributing to this thread. I may have to pin it again tomorrow, I am sure there are others who could benefit.

You've been a great source of support and love Paige, you really are a bright soul with a bit heart. Going to bed now, I'll probably be up in an hour

Don't want to embarrass Paige but she upgraded my account for me...such a wonderful gesture..love ya girl

happyheart

Last Edited by geminilion on 06/04/2014 01:23 AM
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Simple27

User ID: 57832527
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06/04/2014 01:59 AM

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...


Sorry, just getting back here. Yes, what Paige said. hf
 Quoting: Simple27


Do you mind saying where yours is located. I've read the 80% of them are discovered on the head or neck.

What tipped you off that something was not right?
 Quoting: Paige


It is on my right upper arm. Like the front of my right shoulder.

What tipped me off was I had noticed what looked like 2 or 3 little tiny bubbles/blisters on that area of my arm. At first didn't think too much of it, but after a little while of them being there, I had mentioned it to a doctor I was seeing at the time. She said "oh that's nothing to be worried about, we can just freeze it right now. Nothing to worry about."

Pfft...Ugh, this frustrates me so much. That was so long ago. Years. This whole scenario could have been so much easier to handle. I mean, it's deep. It had already started to show physically 4-ish years ago (and I could be wrong, it may be longer ago). I believe it was the end of April/beginning of May that my current PCP removed the spot for the biopsy. Those same bubble/blister looking bumps are already coming back. It also kind of hurts/stings at times. I know the surgery is going to be more on the serious side because my PCP told me that the oncologist I'm seeing is really great and if need be plastic surgery can be done for the scarring...

hiding

I didn't like that. : (

But the good news is that my nanny sees the same oncologist for her recently discovered breast cancer and she loves him! Says he is great. She actually just had her surgery today and is doing fantastic!! I am so relieved and happy about this. I was heart broken when I found out she had breast cancer...for a few different reasons. But she's doing great and I am going to be seeing the same doctor she's been seeing. : )

hf

smile_kiss
 Quoting: Simple27


See, again with a missed diagnosis! Glad you like your doctor, it's so important! I'm not crazy about my oncologist and tried to switch to a new one. She wants me to keep the one I have as he is somewhat of a melanoma expert and she is more the breast cancer expert.

However, she is working as my pain management doctor, don't think she wants to step on toes. I like her so much better then my original doctor but she's right, I need to stick with him.

Thursday is fast approaching and I know you are getting nervous, don't blame you at all Simple, we are here for you.

Note: no longer have premium, I am more then willing to give out my email address if anyone wants it as I can't do PM's now.
 Quoting: geminilion


Hi sweetie <3

I hope you get nothing but good news at your appointment tomorrow. I'm sad to hear you think there is another tumor... : (

I feel silly even posting my issues here as there are so many others that need the prayers more than I do. I need to be at the bottom of the prayer totem pole right now. Seriously. I appreciate all of the love and support, of course, I just feel that....ahhhh, sorry, nevermind. Just thank you. Thank you all. And you all are in my prayers and constantly in my heart and thoughts.

Joannie, I hope we will hear from you tomorrow after your appointment. Extra prayers and love and positive vibes coming your way tonight! You are an earth angel!!

angel3
s27candy
geminilion (OP)

User ID: 50010568
United States
06/04/2014 07:01 AM
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...


Do you mind saying where yours is located. I've read the 80% of them are discovered on the head or neck.

What tipped you off that something was not right?
 Quoting: Paige


It is on my right upper arm. Like the front of my right shoulder.

What tipped me off was I had noticed what looked like 2 or 3 little tiny bubbles/blisters on that area of my arm. At first didn't think too much of it, but after a little while of them being there, I had mentioned it to a doctor I was seeing at the time. She said "oh that's nothing to be worried about, we can just freeze it right now. Nothing to worry about."

Pfft...Ugh, this frustrates me so much. That was so long ago. Years. This whole scenario could have been so much easier to handle. I mean, it's deep. It had already started to show physically 4-ish years ago (and I could be wrong, it may be longer ago). I believe it was the end of April/beginning of May that my current PCP removed the spot for the biopsy. Those same bubble/blister looking bumps are already coming back. It also kind of hurts/stings at times. I know the surgery is going to be more on the serious side because my PCP told me that the oncologist I'm seeing is really great and if need be plastic surgery can be done for the scarring...

hiding

I didn't like that. : (

But the good news is that my nanny sees the same oncologist for her recently discovered breast cancer and she loves him! Says he is great. She actually just had her surgery today and is doing fantastic!! I am so relieved and happy about this. I was heart broken when I found out she had breast cancer...for a few different reasons. But she's doing great and I am going to be seeing the same doctor she's been seeing. : )

hf

smile_kiss
 Quoting: Simple27


See, again with a missed diagnosis! Glad you like your doctor, it's so important! I'm not crazy about my oncologist and tried to switch to a new one. She wants me to keep the one I have as he is somewhat of a melanoma expert and she is more the breast cancer expert.

However, she is working as my pain management doctor, don't think she wants to step on toes. I like her so much better then my original doctor but she's right, I need to stick with him.

Thursday is fast approaching and I know you are getting nervous, don't blame you at all Simple, we are here for you.

Note: no longer have premium, I am more then willing to give out my email address if anyone wants it as I can't do PM's now.
 Quoting: geminilion


Hi sweetie <3

I hope you get nothing but good news at your appointment tomorrow. I'm sad to hear you think there is another tumor... : (

I feel silly even posting my issues here as there are so many others that need the prayers more than I do. I need to be at the bottom of the prayer totem pole right now. Seriously. I appreciate all of the love and support, of course, I just feel that....ahhhh, sorry, nevermind. Just thank you. Thank you all. And you all are in my prayers and constantly in my heart and thoughts.

Joannie, I hope we will hear from you tomorrow after your appointment. Extra prayers and love and positive vibes coming your way tonight! You are an earth angel!!

angel3
 Quoting: Simple27


Please don't feel that simple! It's not a matter of who's sicker, this isn't a contest honey. We all have feelings of fear of the unknown, especially regarding our health.

You have just as much right to post here as I or anyone else do. I doubt anyone here thinks any different, please continue to let us know what's going on with you, health or otherwise.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Anonymous Coward
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06/04/2014 09:16 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi there,

First of all, nice thread. Just room for stories, for whatever's the need. Everybody best of luck and lots of strenght in this crazy reality.

I too have cancer, cervixcancer in first stage (1A2 FIGO stage). I've had minor surgery to remove the suspicious cells and it turned out to be invasive cancer but the tumor was not too big and was totally removed already. However,I will be scheduled for removal of the uterus, and somehow I just didn't expect this. If the tumor is gone, the cancer is gone, I thought, but now I know I was being naive.

I am 35 years old, and thanks to God I already have a beautifull child of almost ten years old. I am dealing with Ehlers Danlos (connective tissue disease) since her birth, and thought that was my 'challenge' in health. Now I know that there's no rules to the game of health... I have severe chronic pain which isn't life-threathening, and I have a life-threathening disease which I don't feel and which is discovered by five-yearly standard test...

Will be weird, to be without uterus, however, I do realise that I am Lucky to have such favorite (??!!??) circumstances to my cancer and that this was discovered in time to minimize the risk so many other people are facing.

First time for me, since this is on my path to write it down...
geminilion (OP)

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06/04/2014 09:58 AM
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Hi there,

First of all, nice thread. Just room for stories, for whatever's the need. Everybody best of luck and lots of strenght in this crazy reality.

I too have cancer, cervixcancer in first stage (1A2 FIGO stage). I've had minor surgery to remove the suspicious cells and it turned out to be invasive cancer but the tumor was not too big and was totally removed already. However,I will be scheduled for removal of the uterus, and somehow I just didn't expect this. If the tumor is gone, the cancer is gone, I thought, but now I know I was being naive.

I am 35 years old, and thanks to God I already have a beautifull child of almost ten years old. I am dealing with Ehlers Danlos (connective tissue disease) since her birth, and thought that was my 'challenge' in health. Now I know that there's no rules to the game of health... I have severe chronic pain which isn't life-threathening, and I have a life-threathening disease which I don't feel and which is discovered by five-yearly standard test...

Will be weird, to be without uterus, however, I do realise that I am Lucky to have such favorite (??!!??) circumstances to my cancer and that this was discovered in time to minimize the risk so many other people are facing.

First time for me, since this is on my path to write it down...
 Quoting: Anonymous Coward 58380411


Welcome to the thread my friend! Looks like they got it early and want to do the hysterectomy as a "just in case" measure which is a good idea.

Make sure you keep all of your doctors appts. in the future. I know a few people that felt that were cured and kind of forgot about their illness, be vigilant.

Chronic pain is no joke. It's hard to live a normal life when you can't sleep and are on meds, etc. This thread isn't only for those with life threatening illnesses. So please, come back and post.

hf
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
geminilion (OP)

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06/04/2014 10:00 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hey guys, just noticed my feet are almost 3x their normal size so I've got some severe swelling going on, glad I am going to my doctor.

Anyway, if you don't hear from me it's because she's put me in hospital...please I hope not!

Don't worry though, sure I'll be fine but with the blood clots they are still trying to figure out a way to treat me without using blood thinners.

Peace out!
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
Anonymous Coward
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06/04/2014 10:07 AM
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hf
davvi
Merry Christmas!

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06/04/2014 10:09 AM

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This is such a heart-warming loving thread and when ever we get down and depressed at how our society is going come here and see the real beauty of our people.

G-d bless you all, stay strong, and please know that you are all in my prayers, thoughts and heart.

Special hugs for those who are fighting this terrible disease, for our darling 5 year old honorary GLPer and Nika who is suffering a terrible loss.


1106 P
12-2 HH

A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

The history of Jewish holidays can be summed up easily: "They tried to kill us; we won, lets eat!"

In Jewish tradition, the fetus is not considered viable until after it graduates from medical school.

Goodbye sweet friend, we miss you.
davvi
Merry Christmas!

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hey guys, just noticed my feet are almost 3x their normal size so I've got some severe swelling going on, glad I am going to my doctor.

Anyway, if you don't hear from me it's because she's put me in hospital...please I hope not!

Don't worry though, sure I'll be fine but with the blood clots they are still trying to figure out a way to treat me without using blood thinners.

Peace out!
 Quoting: geminilion


hugs
12-2 HH

A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

The history of Jewish holidays can be summed up easily: "They tried to kill us; we won, lets eat!"

In Jewish tradition, the fetus is not considered viable until after it graduates from medical school.

Goodbye sweet friend, we miss you.
geminilion (OP)

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06/04/2014 10:14 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
This is such a heart-warming loving thread and when ever we get down and depressed at how our society is going come here and see the real beauty of our people.

G-d bless you all, stay strong, and please know that you are all in my prayers, thoughts and heart.

Special hugs for those who are fighting this terrible disease, for our darling 5 year old honorary GLPer and Nika who is suffering a terrible loss.


1106 P
 Quoting: davvi


Davii just want to say, you are genuinely a nice person with a big heart. I've gotten to know you better through this thread. I liked you before but like you even better now.
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
davvi
Merry Christmas!

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06/04/2014 10:18 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
This is such a heart-warming loving thread and when ever we get down and depressed at how our society is going come here and see the real beauty of our people.

G-d bless you all, stay strong, and please know that you are all in my prayers, thoughts and heart.

Special hugs for those who are fighting this terrible disease, for our darling 5 year old honorary GLPer and Nika who is suffering a terrible loss.


1106 P
 Quoting: davvi


Davii just want to say, you are genuinely a nice person with a big heart. I've gotten to know you better through this thread. I liked you before but like you even better now.
 Quoting: geminilion


I am so honored, thank you Gem and you already know you are my hero, the bravest person I have ever known...

Many hugs
12-2 HH

A Jewish mother dreams that her son will grow up to be a doctor or, if retarded, a lawyer." --Jackie Mason

I never give RED karma, only GREEN for great posters. If you give me red or green please leave your name, I like to say thank you...

The history of Jewish holidays can be summed up easily: "They tried to kill us; we won, lets eat!"

In Jewish tradition, the fetus is not considered viable until after it graduates from medical school.

Goodbye sweet friend, we miss you.
Anonymous Coward
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06/04/2014 11:51 AM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Just a heads up to breast cancer survivors:

[link to www.clinicalconnection.com]

More than one in 10 older breast cancer patients treated with certain chemotherapy drugs develop heart failure, but many don't get proper treatment for their heart condition, a new study suggests.

"The majority of older women who develop heart problems after their breast cancer therapy aren't treated by a cardiologist, and they had lower quality of care," study lead author Dr. Jersey Chen, a research scientist and cardiologist at Kaiser Permanente in Rockville, Md., said in an American Heart Association news release.
tiger1

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06/04/2014 11:59 AM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hey guys, just noticed my feet are almost 3x their normal size so I've got some severe swelling going on, glad I am going to my doctor.

Anyway, if you don't hear from me it's because she's put me in hospital...please I hope not!

Don't worry though, sure I'll be fine but with the blood clots they are still trying to figure out a way to treat me without using blood thinners.

Peace out!
 Quoting: geminilion


More prayers for you, my friend !!! hfhfhf
Anonymous Coward
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06/04/2014 12:16 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
After reading this thread last night:

Thread: Hit the end of my rope, need some hope.

I felt there was a need/want for a thread for those of us who are seriously ill, caring for a loved one, or those whose health has changed their way of life.

I have seen in random threads that there are more of us that are fighting and I would like to see a thread where we can support others and get support in return, good news, bad news, whatever.

I am trying to include all. This thread can be a place to vent, share treatment options, cry, tell stories, etc.

There's also those of us who don't have a lot of support from family or friends who need us.

I'll start:

I have Stage IV melanoma, terminal. I am in the phase of care which is supposed to give me comfort and keep me free from pain as there is no cure for melanoma.

I started taking chemo meds which have just been approved by the FDA a few months ago. They helped to shrink my brain tumors and eradicate most of the lesions in my brain but they were making me feel terrible. So much so I had to go into the hospital 2 weeks ago.

Doctors advised I stop them or just take one at night..still on the fence as to whether I want to go back on them..quality of life vs quantity.

Then last week I had severe pain in my right flank and wound up at ER with internal bleeding, had to have 4 blood transfusions.

I wont go into extreme detail, just want us to be able to share with each other. Hope I didn't muck this up too much.
 Quoting: geminilion


[link to www.cancertutor.com]

Try noni juice
Anonymous Coward
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06/04/2014 12:20 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Dichloroacetate Acid (DCA)

"DCA’s anti-cancer properties were discovered in 2007 by Evangelos Michelakis of the University of Alberta. In experiments on rats, Michelakis showed that DCA demonstrated dramatic action against a wide variety of cancers. He experienced a “eureka moment” when he saw that tumors of various types had been dramatically reduced over the course of a few short weeks.

Moreover, DCA showed very minimal disruption to healthy cells. “This is the so-called Holy Grail of cancer treatment,” remarked Michelakis at the time. But Michelakis, along with a host of other medical professionals, warned patients against self-medicating despite a spate of nascent websites offering the product.

In medical research the gold standard of acceptability of a treatment is a phase III clinical trial. There is only one problem: DCA is not patentable. It has already been used at least since the 1970’s in the treatment of a rare metabolic disorder and is generally well tolerated. Moreover, the chemical is simple and dirt cheap."

Check it out on the web; great information and it could be worth a try.

hf
 Quoting: Marisol


Rats are not human and we do not live in a laboratory, pseudoscience.
geminilion (OP)

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06/04/2014 04:31 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Was at the doctors almost all day but I do have good news. When I went to this doctor initially she referred me to another oncologist who's specialty was melanoma.She told me she did most other kinds of cancer and didn't want me to be shortchanged on my treatment.

I agreed that was probably the smart thing to do even though I really liked her it was wise to go where the knowledge is. I kept her on for pain management.

I go in today find out on her own time she took some seminars on melanoma to see what was new and if she could help me. Really..what doctor does that?

She told me when I first went to see her months ago she thought "this poor lady had a death sentence". Now she says after learning the new info. and treatments I have a chance. She told me not to reserve my hospice be just yet, I do have a fighting chance.

She was talking specifically about the chemo meds I've been taking. They are brand new and they've had much success with them. So at least I have hope where I didn't have any before...makes a huge difference in my psych.

I am just really impressed with her that she would go to the trouble for a patient. Some doctors really are in it to help save lives and not the pay check.

Last Edited by geminilion on 06/04/2014 04:34 PM
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus
BunBun

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06/04/2014 04:44 PM

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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Hi there,

First of all, nice thread. Just room for stories, for whatever's the need. Everybody best of luck and lots of strenght in this crazy reality.

I too have cancer, cervixcancer in first stage (1A2 FIGO stage). I've had minor surgery to remove the suspicious cells and it turned out to be invasive cancer but the tumor was not too big and was totally removed already. However,I will be scheduled for removal of the uterus, and somehow I just didn't expect this. If the tumor is gone, the cancer is gone, I thought, but now I know I was being naive.

I am 35 years old, and thanks to God I already have a beautifull child of almost ten years old. I am dealing with Ehlers Danlos (connective tissue disease) since her birth, and thought that was my 'challenge' in health. Now I know that there's no rules to the game of health... I have severe chronic pain which isn't life-threathening, and I have a life-threathening disease which I don't feel and which is discovered by five-yearly standard test...

Will be weird, to be without uterus, however, I do realise that I am Lucky to have such favorite (??!!??) circumstances to my cancer and that this was discovered in time to minimize the risk so many other people are facing.

First time for me, since this is on my path to write it down...
 Quoting: Anonymous Coward 58380411


No, it won't be weird without a uterus. I had a full hysterectomy at 33 and yes, it is a painful surgery, but you will recover and be fine. Please don't worry about it too much.
geminilion (OP)

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06/04/2014 04:50 PM
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Re: Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well
Was at the doctors almost all day but I do have good news. When I went to this doctor initially she referred me to another oncologist who's specialty was melanoma.She told me she did most other kinds of cancer and didn't want me to be shortchanged on my treatment.

I agreed that was probably the smart thing to do even though I really liked her it was wise to go where the knowledge is. I kept her on for pain management.

I go in today find out on her own time she took some seminars on melanoma to see what was new and if she could help me. Really..what doctor does that?

She told me when I first went to see her months ago she thought "this poor lady had a death sentence". Now she says after learning the new info. and treatments I have a chance. She told me not to reserve my hospice be just yet, I do have a fighting chance.

She was talking specifically about the chemo meds I've been taking. They are brand new and they've had much success with them. So at least I have hope where I didn't have any before...makes a huge difference in my psych.

I am just really impressed with her that she would go to the trouble for a patient. Some doctors really are in it to help save lives and not the pay check.
 Quoting: geminilion



That is wonderful news! What an amazing doctor.

The power of prayer and positive thinking really can do anything. Nothing is impossible!

I am so glad you got a bit of good news for a change!
 Quoting: Paige


It wont be easy but at least someone has given me hope. All the dr's were telling me before is I would have a few extra months.

And I do believe in the power of prayer!
..."The soul is dyed the color of its thoughts. Think only on those things that are in line with your principles and can bear the light of day. The content of your character is your choice. Day by day, what you choose, what you think, and what you do is who you become. Your integrity is your destiny ... it is the light that guides your way."
Heraclitus

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