Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

Doctors only kill people , a hospital is where you go when you're ready to die

I think that sometimes people just don't know how to act, or they feel they don't know what to say. I'm like that. I feel very, very deeply for people, but feel awkward in showing that sometimes.

I also think people try to put on a brave face for others who are suffering, and maybe that can get misinterpreted. People in your life are going through a whole lot of strong emotions, and maybe some denial. It's hard to think that someone who has been there for you your entire life could actually die.

I got diagnosed with non-hodgkin's lymphoma when I was 30. Had a lymph node removed and they found an egg-sized mass in my liver. Never did find out what the mass was.

Anyway, I remember how my mom seemed to be acting as if non of it was a big deal. I told my sister that mom seemed to not be too concerned, and that got back to my mom, who was devastated to hear that I thought she didn't care. She was just trying to be strong for me but I thought that she was just was not taking it very seriously.

This thread was a great idea, Joannie. It's such a help for people to be able to talk with others about these things.

I second that. This thread actually gave me great comfort. Thank you again Joannie.

Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

Same to you!!

We are heading to the hospital in a bit for a consult before my daughters mediport surgery tomorrow. Hope you are feeling well. :D

Have a wonderful day!

Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

I know you have a lot going on but if you get the chance let me know how it goes.

Prayers and more prayers..hugs, Joannie

Good morning my lovely peeps! Just checking in to say hello and wish you all a lovely day!

Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.



:s27heart7:

She had a difficult evening, it's bothering her how much different she looks. Thankfully we can give the steroids a rest for a bit, and hopefully at least get rid of all the bloating.

IDK, hearing a five year old say and feel this way.... It just breaks my heart.

Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.



:s27heart7:

Oh no! What is going on??

:(

Oh, I am so sorry to hear that, sweetheart.

I'll definitely be including you in my prayers along with everyone else in this thread.

Thanks for starting this thread. I too have melanoma, I just finnished a year of interferon boy am I glad thats done. Now I'm waiting to take the CT scan to see if I'm in remission. I dont feel real good about it though. I'm still feeling really sick. Which meds are they trying now on you? And I am sorry you are ill wish noone had to suffer this.

She had a difficult evening, it's bothering her how much different she looks. Thankfully we can give the steroids a rest for a bit, and hopefully at least get rid of all the bloating.

IDK, hearing a five year old say and feel this way.... It just breaks my heart.

Hiya Sweetie! <3

I found out on Saturday that my appointment with my oncologist is on Thursday. It was scheduled for the 20th so I was a bit shocked to find out it is this Thursday. They sent me a lovely surgery pamphlet with the confirmation letter. So I was not mentally prepared for this week. I try to push all of the bad news in my life aside for as long as possible so I don't worry for too long. This was one of those situations where I wanted to forget it existed until last minute. No such luck now. Panic mode, lol. Just kidding (kinda). Lol. The surgery scares me more than anything. I didn't chime in earlier about my own situation because, like I said, I try to pretend it doesn't exist until I HAVE to. Well, now I have to. So there it is.



:s27heart7:

Skin cancer. Just found out in April and the first available appointment with the oncologist was June 20th so I scheduled it. I know that was the date because my mom's birthday is June 21st and I immediately thought, it's the day before mom's b-day. They must have had a cancellation or something and sent me a letter to confirm this Thursday.

I would have taken June 5th if it was available at the time because I want to take care of everything sooner than later, but I just wasn't expecting that.

Everything happens for a reason. At least I truly believe that and always have. I consider myself lucky to be able to have my consultation this week instead of the 20th.

Game face time!

And thank you to those who said they will pray for me. I appreciate it more than I could say. I have witnessed the power of prayer here on GLP. Amazing people here. : )

Because she is anorexic they had very little to work with for the reconstructive surgery.

Cachexia is often confused with anorexia. Has she been "anorexic" long?
[link to www.ncbi.nlm.nih.gov]

Cancer cachexia describes a syndrome of progressive weight loss, anorexia, and persistent erosion of host body cell mass in response to a malignant growth. Although often associated with preterminal patients bearing disseminated disease, cachexia may be present in the early stages of tumor growth before any signs or symptoms of malignancy


BTW, if anyone is considering hemp oil they may do so legally in Oregon, its just taking it home that is the problem:

[link to portlandalternativeclinic.com]
Out of State Patients: patients that do not live in the state of Oregon can obtain a medical marijuana card from the Oregon Medical Marijuana Program (OMMP). Dr. Camacho provides the medical recommendation required by the OMMP. These patients may use their own out of state license, but need to have a grow site address in Oregon. This is a requirement of the OMMP.

Many people just stick around and do it here, its a lovely state.

Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support.

Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.

My mom was my best friend as well, no one will ever replace her.

You have no idea how many times I've heard stories of doctors dropping the ball leaving the mole or whatever saying it's nothing. I don't understand why they wouldn't double check just in case...so that really sucks for you and it makes me really angry.

I believe the depth (clarks level) is the main concern as far as melanoma goes. It permeates the layers of skin and then likes to travel.

Hopefully it hasn't gotten that far. It goes without saying that you have my prayers honey. I check in here every now and again to see what's going on.



A very informative website with lots of melanoma patients who have seen it all. If nothing else it's worth browsing through.

[link to www.melanoma.org]

Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.

Although I do not have cancer or any terminal illness, I lost my only brother to cancer just yesterday.
I never have felt so much pain and anger before in my life. My heart is so broken right now and I just want to scream and cry and hit something.

I hate the doctors so much because when we found out almost 1 year ago, he was already at stage 4 and they believed that the cancer had been there for several years! He was often setting up appointments with his doctor because of bad pain and symptoms and telling them something was up. But like all doctors, they didn't fucking care! All they care about is sending their patients home with a prescription instead of trying to find the cause.

Hi Joannie,

My family is very supportive and I've been dragging my mom around with me lately to any appointments with a specialist. Lol. She's a trooper. She's also my best friend. : )

However I don't always feel comfortable enough to talk about how I'm feeling. With anyone. Oddly enough I feel much more comfortable talking to my GLP friends than I do ANY of my "real life" friends. Pfft, my real friends are here. <3

Yes, a biopsy was done. My PCP removed what she thought was all of it, but after the biopsy she told me that the cancer had gotten so deep into my skin that it would require surgery.

Before I switched my PCP to this current one, I had shown the spot to my previous doctor (maybe 3-4 years ago) and was told it was nothing and not to worry about it. So I didn't. But it just wasn't looking right to me so I showed my PCP at my physical and she immediately said "that's skin cancer." So it's just been doing it's thing for all these years and got deeper and deeper.

Probably could've avoided surgery 3-4 years ago. But it is what it is. I'm glad I have you all for support.