Support thread for those with cancer, terminal illness, or any life altering physical ailment. For caregivers as well

This song seems fitting here on this thread. : )

Hugs to you.

I'm so sorry and I can relate, my only brother died the same way 4 years ago. Stage IV at diagnosis as was I. It is maddening and so unfair thinking they could have had a chance.

Through experience we learn. Don't take no for an answer if you feel something isn't right. How many stories have we heard like this? Doctors aren't Gods and we know our bodies.

He didn't get to stage IV overnight and the doctors will cover for each other. I really am feeling for you, only time will help with the pain..and the anger.

Sometimes legal action is warranted, money is the only thing they understand. I don't know your situation completely but it's something to think about.

Excuse my ignorance simple but what is BBC?

Thank God you were being proactive! Imagine if you just ignored it? I am sure my cancer was sitting around for a good long time.

I hope your precious daughter is feeling well today.

Thanks Paige!

Thank you Joannie. She had surgery today. It went very well and she is sleeping peacefully. We have a 10 day break now before we have to go back to the hospital so we are both feeling a sense of relief. I'm really starting to hate that place. UGH. The good news is today was her last dose of decadron, so hopefully she will be a little more comfortable in the coming days.

Does anyone know how long it takes the "moon face" to go back down to normal? She is so swollen and uncomfortable.

Sorry, just getting back here. Yes, what Paige said.

It is on my right upper arm. Like the front of my right shoulder.

What tipped me off was I had noticed what looked like 2 or 3 little tiny bubbles/blisters on that area of my arm. At first didn't think too much of it, but after a little while of them being there, I had mentioned it to a doctor I was seeing at the time. She said "oh that's nothing to be worried about, we can just freeze it right now. Nothing to worry about."

Pfft...Ugh, this frustrates me so much. That was so long ago. Years. This whole scenario could have been so much easier to handle. I mean, it's deep. It had already started to show physically 4-ish years ago (and I could be wrong, it may be longer ago). I believe it was the end of April/beginning of May that my current PCP removed the spot for the biopsy. Those same bubble/blister looking bumps are already coming back. It also kind of hurts/stings at times. I know the surgery is going to be more on the serious side because my PCP told me that the oncologist I'm seeing is really great and if need be plastic surgery can be done for the scarring...



I didn't like that. : (

But the good news is that my nanny sees the same oncologist for her recently discovered breast cancer and she loves him! Says he is great. She actually just had her surgery today and is doing fantastic!! I am so relieved and happy about this. I was heart broken when I found out she had breast cancer...for a few different reasons. But she's doing great and I am going to be seeing the same doctor she's been seeing. : )

Glad to hear all went well and you'll both get a break. I have no idea how long it will take for swelling to go down, maybe an internet search can answer your question.

Continued prayers hon.

I'm okay, so far so good with chemo meds. I have to keep taking naps but that's no biggie. Think I have another tumor which is kind of popping out of my right side but it's not bothering me too much.

Go to Dr. tomorrow so we'll see what else has developed, hopefully nothing.

Thanks for asking Paige.

See, again with a missed diagnosis! Glad you like your doctor, it's so important! I'm not crazy about my oncologist and tried to switch to a new one. She wants me to keep the one I have as he is somewhat of a melanoma expert and she is more the breast cancer expert.

However, she is working as my pain management doctor, don't think she wants to step on toes. I like her so much better then my original doctor but she's right, I need to stick with him.

Thursday is fast approaching and I know you are getting nervous, don't blame you at all Simple, we are here for you.

Note: no longer have premium, I am more then willing to give out my email address if anyone wants it as I can't do PM's now.

Thank you so much! We have a great bunch of people contributing to this thread. I may have to pin it again tomorrow, I am sure there are others who could benefit.

You've been a great source of support and love Paige, you really are a bright soul with a bit heart. Going to bed now, I'll probably be up in an hour

Don't want to embarrass Paige but she upgraded my account for me...such a wonderful gesture..love ya girl



Last Edited by geminilion on 06/04/2014 01:23 AM

Hi sweetie <3

I hope you get nothing but good news at your appointment tomorrow. I'm sad to hear you think there is another tumor... : (

I feel silly even posting my issues here as there are so many others that need the prayers more than I do. I need to be at the bottom of the prayer totem pole right now. Seriously. I appreciate all of the love and support, of course, I just feel that....ahhhh, sorry, nevermind. Just thank you. Thank you all. And you all are in my prayers and constantly in my heart and thoughts.

Joannie, I hope we will hear from you tomorrow after your appointment. Extra prayers and love and positive vibes coming your way tonight! You are an earth angel!!

Please don't feel that simple! It's not a matter of who's sicker, this isn't a contest honey. We all have feelings of fear of the unknown, especially regarding our health.

You have just as much right to post here as I or anyone else do. I doubt anyone here thinks any different, please continue to let us know what's going on with you, health or otherwise.

Hi there,

First of all, nice thread. Just room for stories, for whatever's the need. Everybody best of luck and lots of strenght in this crazy reality.

I too have cancer, cervixcancer in first stage (1A2 FIGO stage). I've had minor surgery to remove the suspicious cells and it turned out to be invasive cancer but the tumor was not too big and was totally removed already. However,I will be scheduled for removal of the uterus, and somehow I just didn't expect this. If the tumor is gone, the cancer is gone, I thought, but now I know I was being naive.

I am 35 years old, and thanks to God I already have a beautifull child of almost ten years old. I am dealing with Ehlers Danlos (connective tissue disease) since her birth, and thought that was my 'challenge' in health. Now I know that there's no rules to the game of health... I have severe chronic pain which isn't life-threathening, and I have a life-threathening disease which I don't feel and which is discovered by five-yearly standard test...

Will be weird, to be without uterus, however, I do realise that I am Lucky to have such favorite (??!!??) circumstances to my cancer and that this was discovered in time to minimize the risk so many other people are facing.

First time for me, since this is on my path to write it down...

Welcome to the thread my friend! Looks like they got it early and want to do the hysterectomy as a "just in case" measure which is a good idea.

Make sure you keep all of your doctors appts. in the future. I know a few people that felt that were cured and kind of forgot about their illness, be vigilant.

Chronic pain is no joke. It's hard to live a normal life when you can't sleep and are on meds, etc. This thread isn't only for those with life threatening illnesses. So please, come back and post.

Hey guys, just noticed my feet are almost 3x their normal size so I've got some severe swelling going on, glad I am going to my doctor.

Anyway, if you don't hear from me it's because she's put me in hospital...please I hope not!

Don't worry though, sure I'll be fine but with the blood clots they are still trying to figure out a way to treat me without using blood thinners.

Peace out!

This is such a heart-warming loving thread and when ever we get down and depressed at how our society is going come here and see the real beauty of our people.

G-d bless you all, stay strong, and please know that you are all in my prayers, thoughts and heart.

Special hugs for those who are fighting this terrible disease, for our darling 5 year old honorary GLPer and Nika who is suffering a terrible loss.

Davii just want to say, you are genuinely a nice person with a big heart. I've gotten to know you better through this thread. I liked you before but like you even better now.

I am so honored, thank you Gem and you already know you are my hero, the bravest person I have ever known...

Many

Just a heads up to breast cancer survivors:

[link to www.clinicalconnection.com]

More than one in 10 older breast cancer patients treated with certain chemotherapy drugs develop heart failure, but many don't get proper treatment for their heart condition, a new study suggests.

"The majority of older women who develop heart problems after their breast cancer therapy aren't treated by a cardiologist, and they had lower quality of care," study lead author Dr. Jersey Chen, a research scientist and cardiologist at Kaiser Permanente in Rockville, Md., said in an American Heart Association news release.

More prayers for you, my friend !!!

[link to www.cancertutor.com]

Try noni juice

Rats are not human and we do not live in a laboratory, pseudoscience.

Was at the doctors almost all day but I do have good news. When I went to this doctor initially she referred me to another oncologist who's specialty was melanoma.She told me she did most other kinds of cancer and didn't want me to be shortchanged on my treatment.

I agreed that was probably the smart thing to do even though I really liked her it was wise to go where the knowledge is. I kept her on for pain management.

I go in today find out on her own time she took some seminars on melanoma to see what was new and if she could help me. Really..what doctor does that?

She told me when I first went to see her months ago she thought "this poor lady had a death sentence". Now she says after learning the new info. and treatments I have a chance. She told me not to reserve my hospice be just yet, I do have a fighting chance.

She was talking specifically about the chemo meds I've been taking. They are brand new and they've had much success with them. So at least I have hope where I didn't have any before...makes a huge difference in my psych.

I am just really impressed with her that she would go to the trouble for a patient. Some doctors really are in it to help save lives and not the pay check.

Last Edited by geminilion on 06/04/2014 04:34 PM

No, it won't be weird without a uterus. I had a full hysterectomy at 33 and yes, it is a painful surgery, but you will recover and be fine. Please don't worry about it too much.

It wont be easy but at least someone has given me hope. All the dr's were telling me before is I would have a few extra months.

And I do believe in the power of prayer!