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Hospice patient. Real Time. Real World. UPDATE: Noslot Gained His Wings Last Night. pg 11
Ms Sans Serif
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[quote:Noslot:MV80MTEzNDc5Xzc0NjQyOTg1X0UxNDdDNjI5] I’ll begin. I have a life limiting illness and it doesn’t matter what it is. What matters is that it’s life limiting. I elected to receive in-home hospice care after receiving palliative care for a period of time. I wanted quality v. quantity of life. The short answer is I have a quality of life at the moment that in spite of the challenges is fulfilling, peaceful and perhaps most importantly my dignity is intact. I am in control. I elected to stop any curative treatment and opted for symptom management that allows me access to my humanity as unfettered as possible. I made this little placard for a bookcase in the room I will die in. I read it often. It comforts me. :WaitingRoom: This is what the in-home hospice agency put in that room the first day. It’s a bit more cluttered now. :hospicestuff: How I want to be remembered is probably dependent upon on my feelings in that moment. I think I will be remembered by the impact my life has had upon others and this will be the true measure of my existence. There are regrets and indeed pain they will be my companions to the end and this is as it should be. These are natural consequences for life choices. You can make amends, but you can’t unring the bell. Hopefully this gives some idea of what my intentions are with this thread. To join others in frank and candid conversations. But, as we know, once the first shot is fired all of the plans go to hell. [/quote]
I am a in-home hospice patient and this is an experiment. I’m seeking a conversation with someone currently admitted into any kind of hospice program as we live out this journey.
The only thing I’m an expert about is my experience and frankly the same goes for everyone else.
I will use whatever power I have in my role as the benevolent dictator of this thread. There will be no arguments about God, medical politics, ethics or anything else that annoys me. This is the part of being a benevolent dictator that is appealing!
Before you Post
This thread isn’t about your Aunt Mary’s or Gramps experiences or to vent your opinions about hospice, death, dying, politics of dying, medical monsters or anything else. Its about your personal experience as a real time, real world, real person hospice patient. Having said this others are welcome to ask appropriate questions, but any answer I may provide is just my personal opinion based upon my experience. This is GLP and I know a certain chaos must prevail to keep the energy here alive.
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