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Thank you for the upgrade & here is my Story!!

 
Agartha Pyax

User ID: 62464084
United States
12/27/2014 08:31 PM
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Re: Thank you for the upgrade & here is my Story!!
Hi Jewelz, can I ask what state you reside in?
 Quoting: ANHEDONIC


I live in Massachusetts. Originally from California.
 Quoting: Jewelz


I too am from MA. And its odd my uncle who's in his early 60's went thru the same thing as you and opted yet for a cadaver bone and another surgery. So far so good for him. I wish you well my fellow masshole :)
Jewelz  (OP)

User ID: 47025154
United States
12/27/2014 08:44 PM

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Re: Thank you for the upgrade & here is my Story!!
Everything from screws out in and out, ankle scope, ankle replacement and fusion. After my last surgery I develop an infection in my ankle replacement and my doctor gave me the choice of redoing the replacement, complete fusion off all the bones which would also require cadaver bone, or amputation.
 Quoting: Jewelz




Hey Jewelz.

I'm looking at having both of my ankle joints replaced with the S.T.A.R. joint.
About 6 years ago I was in an accident, absolutely crushed both talus bones and destroyed all the cartilage in them.
I asked enough questions to get a little uneasy with the procedure before hand, haven't been able to talk myself into having it done yet, knowing that amputation could be the end result...

Any way to get a link to your fundraiser up here?
Leave off the .com ?...
 Quoting: Aircooled


Hi! I am very sorry to here about your accident. I couldn't imagine having to deal with both ankles at the same time. You must have pain, and for that I am very sorry. It is tough. I had the STAR ankle replacement. It did not work out for me, but it just might for you! I have heard that a ton of people have success with them. Everyone is different. I would suggest having one done at a time. Please keep me updated on your situation. I understand that it is a tough desision, try to join a group on FB. They have a wonderful group all about ankle replacements. That's only if u have an account. I know a lot of people here don't do the FB thing! But who knows you may find if you have the surgery it may help improve your life, as they say ya' can't knock it until you try it lol! Amputation happens very rarely in these situations. I was scared of the infection and really knew that I would not be able to continue on that way. I was in a lot of pain everyday. At least I know the pain now is only temporary. Keep doing your research and when you are ready you will know! I will pray for you and keep you in my thoughts!!
Thank you for the idea about posting my fundraiser. I will give it a try!
Nope tried everything spelling it out leaving the dot com off blah blah blah. Maybe if anyone wants it they can just PM me?

Last Edited by Taylor88 on 12/27/2014 11:55 PM
Pura Vida
Anonymous Coward
User ID: 49531429
United States
12/27/2014 08:47 PM
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Re: Thank you for the upgrade & here is my Story!!
Hi Jewelz, can I ask what state you reside in?
 Quoting: ANHEDONIC


I live in Massachusetts. Originally from California.
 Quoting: Jewelz


You may want to explore/research the use of cannabis as an effective treatment for neuropathic pain with minimal side effects:

Massachusetts Medical Marijuana Program
[link to www.mass.gov]

Cannabinoids & Neuropathic Pain - Research Studies
[link to www.projectcbd.org]

- Please note: they are now able to extract a certain compound from the cannabis plant that provides medicinal benefits and relief, but without the psychoactive ingredients that normally produce the 'high' when the plant is ingested whole. The extracted compound is called CBD (cannabidiol). Although it's said that the therapeutic benefits are more effective when the plant is consumed in it's natural (whole) form as there are many different cannabinoids/compounds that make up the chemistry of the plant and are said to have a synergistic effect when ingested in the human body. There are also strains available that have lower concentrations of THC (psychoactive) and higher concentrations of CDB (non-psychoactive).

About CBD
[link to www.projectcbd.org]

Hope you find some relief soon on your road to recovery...

hf
Jewelz  (OP)

User ID: 47025154
United States
12/27/2014 08:48 PM

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Re: Thank you for the upgrade & here is my Story!!
Hi Jewelz, can I ask what state you reside in?
 Quoting: ANHEDONIC


I live in Massachusetts. Originally from California.
 Quoting: Jewelz


I too am from MA. And its odd my uncle who's in his early 60's went thru the same thing as you and opted yet for a cadaver bone and another surgery. So far so good for him. I wish you well my fellow masshole :)
 Quoting: Agartha Pyax


Masshole hahahaha!! I am so very glad that your uncle is doing well!! I just couldn't go through with the cadaver bone option. Sorry to say it just creeped me out. I did donate my leg to science. My surgeon teaches at Harvard & he asked if the university may have it. I said no problem, I thought maybe it will help someone one day. Who knows! Take care!
Pura Vida
Jewelz  (OP)

User ID: 47025154
United States
12/27/2014 08:52 PM

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Re: Thank you for the upgrade & here is my Story!!
Hi Jewelz, can I ask what state you reside in?
 Quoting: ANHEDONIC


I live in Massachusetts. Originally from California.
 Quoting: Jewelz


You may want to explore/research the use of cannabis as an effective treatment for neuropathic pain with minimal side effects:

Massachusetts Medical Marijuana Program
[link to www.mass.gov]

Cannabinoids & Neuropathic Pain - Research Studies
[link to www.projectcbd.org]

- Please note: they are now able to extract a certain compound from the cannabis plant that provides medicinal benefits and relief, but without the psychoactive ingredients that normally produce the 'high' when the plant is ingested whole. The extracted compound is called CBD (cannabidiol). Although it's said that the therapeutic benefits are more effective when the plant is consumed in it's natural (whole) form as there are many different cannabinoids/compounds that make up the chemistry of the plant and are said to have a synergistic effect when ingested in the human body. There are also strains available that have lower concentrations of THC (psychoactive) and higher concentrations of CDB (non-psychoactive).

About CBD
[link to www.projectcbd.org]

Hope you find some relief soon on your road to recovery...

hf
 Quoting: ANHEDONIC


Very useful information and I appreciate you sending me all the links!! If for some reason I have long term pain associated with my amputation I will most def look into this option. I have been on pills way too long & look forward to not having to take them anymore. But right now it is still very painful and I need them. I keep saying this is only temporary! Again big hugs & thank you so much for all the information!!
Pura Vida
Jewelz  (OP)

User ID: 47025154
United States
12/29/2014 12:49 AM

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Re: Thank you for the upgrade & here is my Story!!
Just a little update. I had a tough day today :( lots of pain. I am pushing through it. Tomorrow I start PT and I am scared. I don't think I am ready. It is basically just an evaluation so it shouldn't be that bad. I will update after! Thank you all for your support, it means the world to me!!
Pura Vida
Agartha Pyax

User ID: 62464084
United States
12/29/2014 09:57 PM
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Re: Thank you for the upgrade & here is my Story!!
Just a little update. I had a tough day today :( lots of pain. I am pushing through it. Tomorrow I start PT and I am scared. I don't think I am ready. It is basically just an evaluation so it shouldn't be that bad. I will update after! Thank you all for your support, it means the world to me!!
 Quoting: Jewelz


hang in there, like you stated earlier this is only temporary. you are going to have to go thru some rough days in order to get to good days again. Just take the PT very slowly. Go at your own comfortable pace. Meditate, pray or do whatever spiritually assists you in recovery. Be well.
ToBeLove

User ID: 57375556
Canada
12/29/2014 11:18 PM
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Re: Thank you for the upgrade & here is my Story!!
I will pray for you OP
Dog Wayne

User ID: 63656009
United States
12/31/2014 11:05 AM
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Re: Thank you for the upgrade & here is my Story!!
Just a little update. I had a tough day today :( lots of pain. I am pushing through it. Tomorrow I start PT and I am scared. I don't think I am ready. It is basically just an evaluation so it shouldn't be that bad. I will update after! Thank you all for your support, it means the world to me!!
 Quoting: Jewelz


Sorry to hear that...hopefully all will go good for you today!

And please PM or post the link for your donation site.

Stay Strong my friend!
"The Tree of Liberty is Thirsty and needs Watering"

-Me
Jewelz  (OP)

User ID: 47025154
United States
01/02/2015 04:34 AM

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Re: Thank you for the upgrade & here is my Story!!
Thank you!! PT was an evaluation & there really wasn't anything to be scared of. He just explained what we are going to work on and what my goals are. I have some pretty crazy goals! Lol.
My pain has been tough, but I am trying to keep it at bay as best as I can. I am excited to see what 2015 brings. I am trying to be positive. Happy New Year everyone by the way!! Things are the same financially wise. But trying to be positive about that too. Heck I guess if you dwell on the negative things, I will never get anywhere!! I really was so happy to see the posts when I logged on tonight. Made me smile. Just so caring and genuine. I will continue to update this thread every chance I get. My next thing I need to do is get a hold of my crap insurance & see if they will cover a knee ealker contraption. This will allow me to be hands free and a little more independent. Oh I forgot I did drive for the first time on Monday, even if it was less than a mile to PT. Felt awful strange!! This Monday I will be going to see my doctor so that he may remove the rest of my staples. My Prothetic guy Jason will be there to see how far along I am in my healing. Maybe we will get the green light to start the Prothetic making going?! I am worried because I still require heavy pain meds around the clock. Hopefully after I see my Pain Management doctor on the 14th my pain will have downgraded. I would love nothing more than to be pain free and medication free although I think from what I have heard from other amputees that I will still have to continue the Lyrica and some sort of narcotic pain med as needed. I heard the Prothetic leg fittings are painful. It takes time to get used to it! Please continue to pray for me. It really does help!! Happy New Year & Cheers to a healthy, pain free, positive 2015!!wave
Pura Vida
Jewelz  (OP)

User ID: 47025154
United States
01/02/2015 04:37 AM

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Re: Thank you for the upgrade & here is my Story!!
Just a little update. I had a tough day today :( lots of pain. I am pushing through it. Tomorrow I start PT and I am scared. I don't think I am ready. It is basically just an evaluation so it shouldn't be that bad. I will update after! Thank you all for your support, it means the world to me!!
 Quoting: Jewelz


Sorry to hear that...hopefully all will go good for you today!

And please PM or post the link for your donation site.

Stay Strong my friend!
 Quoting: Dog Wayne


Hi friend!
I sent you a PM hugs I am hanging in there!!
Pura Vida
Jewelz  (OP)

User ID: 47025154
United States
01/02/2015 04:38 AM

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Re: Thank you for the upgrade & here is my Story!!
I will pray for you OP
 Quoting: ToBeLove


Thank you so much! As I said in my long post, it does help!grouphug
Pura Vida
Jewelz  (OP)

User ID: 47025154
United States
01/02/2015 04:43 AM

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Re: Thank you for the upgrade & here is my Story!!
Just a little update. I had a tough day today :( lots of pain. I am pushing through it. Tomorrow I start PT and I am scared. I don't think I am ready. It is basically just an evaluation so it shouldn't be that bad. I will update after! Thank you all for your support, it means the world to me!!
 Quoting: Jewelz


hang in there, like you stated earlier this is only temporary. you are going to have to go thru some rough days in order to get to good days again. Just take the PT very slowly. Go at your own comfortable pace. Meditate, pray or do whatever spiritually assists you in recovery. Be well.
 Quoting: Agartha Pyax


I will! Gotta stay positive! There will be some good days & bad. Key is not to let the bad ones drag me down. I have to find the positive in everything now. It is very easy when one is facing what I am to slip into a depression. I don't want that. My PT Dave is wonderful. I have worked with him before. He is the only one I will trust. He will go at a comfortable pace for me. But I need to get strong and build my endurance. I have some amazing goals that I must accomplish. Thank you so much for you response. I'm so touched that my fellow GLPers care!! ura
Pura Vida
Dog Wayne

User ID: 63713396
United States
01/05/2015 11:17 PM
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Re: Thank you for the upgrade & here is my Story!!
Just a little update. I had a tough day today :( lots of pain. I am pushing through it. Tomorrow I start PT and I am scared. I don't think I am ready. It is basically just an evaluation so it shouldn't be that bad. I will update after! Thank you all for your support, it means the world to me!!
 Quoting: Jewelz


Sorry to hear that...hopefully all will go good for you today!

And please PM or post the link for your donation site.

Stay Strong my friend!
 Quoting: Dog Wayne


Where did you send it? I never received one here?
"The Tree of Liberty is Thirsty and needs Watering"

-Me





GLP