Thank you for the upgrade & here is my Story!!

hope your recovery continues to go well.

Thank you so much!!

Last Edited by Taylor88 on 12/27/2014 08:58 AM

HI OP! Well wishes for a speedy recovery!

What happened to your ankle in the beginning of all this?

What happened to your leg to begin with that you had to have all the surgeries?

I had a freak accident in 2008! I was getting up into my husband's lifted truck, when I slipped and fell. I came down on the curb. Basically curb stomped my ankle & it shattered. Crazy freak accident. I was a Bar Manager at the time & lost my job, because I was unable to be there due to my injury. Too many surgeries, it has been a long six years!! Thank you for asking. And thank you everyone for your support! I also want to let everyone know ... Keep the support & comments coming, it REALLY helps to keep my mind busy and help me not focus on all the nerve & phantom pain! {{{HUGS}}}

Jewelz I sent you some positive vibes for you and your family.

Expect the effect to kick in within two weeks.

Hold on until then.

Whoa....a digital blasphemy fan. Cool.

OP your av was always the desktop wallpaper on my monitors in my home office and will be again whenever it's set up again.

nice...and congrats on the gift from glp.

Thank you lol. I will hold on until then. Swans are beautiful creatures. We have over 10 pairs in our lake every Spring thru Fall.

Do you take neurontin / gabapentin for the nerve pain?
If not, it really helps when a big gun is needed.

I love purple anything!! Thank you for you for reading & your reply. It really means a lot to me!

I am currently on ... Are you ready? Lyrica 50mg 3x daily, Oxycontin 20mg 2x daily, Oxycodone 10mg every 4 hours & Ativan 1-2mg every 6 hours. Also two other meds for my stomach. Too many pills, but they help!! I still feel the pain even on all these meds. The phantoms are the worst!! Before my ampution I was on a high dose of Gabapentin which honestly didn't so a thing for me, but I really didn't have nerve pain then. My pain clinic doctor insisted that I take it along with my pain meds.

Last Edited by Taylor88 on 12/27/2014 10:25 AM

Doctor gave me Hydrocodone for my back pain several years ago. It messed with my mind...was in a daze... but didn't seem to take the pain away. Eventually, it made me nauseous. That was good because I never took it again.

Last Edited by nutmeg on 12/27/2014 10:33 AM

I hope you feel a lot better real soon, OP !!!

I don't think Lyrica is as effective as Neurontin for actual nerve pain....maybe try it again.
Also re: pain....the stuff you are on is probably knocking you out and there are pain patches which might work out for you better....less side-effects....like fentenyl...the new kind which are not dangerous, and then I think there is another one called butrans.

I am sorry to hear about your amputation, it does sound like you are blessed with a supportive husband and family and that is a blessing some people don't have. Someone who doesn't truly love you would be resentful and not supportive through all that has happened to you. I know of men like that who turned into ex-husbands bc they were not a for better or worse type of man. I'm glad you have support!

I swear by these pain patches....not all the pain is gone, but then one is supposed to know what is hurting, in my case anyway.....i am allergic to all pain meds except for dialudud and they won't rx that anymore! I have a non-@ addictive personality and took dialudid about 4 years ago for some pain and there was no problem with them rx'ing it, but now Dr's seem scared to rx it. Shame bc that is the only thing that has ever taken away pain completely and allowed me to function pretty normally. It was just a temporary thing, same as now, but no Dr will rx even though this temporary p as in is worse. *sigh*

OP I truly hope you feel better and heal soon.

Neurontin may have been rxed for you to sleep, help you get deep sleep, and move your brain waves out of the pain setting - theta waves iirc.

You are most welcome, Jewelz. :7hug-two7:

Thanks for sharing this with us. One of the hardest things to do in difficult times is just trying to hold on thru it all. Interesting how the 'getting-thru' process itself can be the most difficult, yet the most healing. Let your hubby and teens know that you need emotional support too. You guys can take turns being strong. No one can be emotionally strong all the time. As time goes by, you'll be able to look back and see the strength that each of you gained, one by one and as a family. But I know it's so hard while in the midst of it.

Please understand that we are here, just a post away. :7hug-group7:

Am keeping you in my thoughts and prayers, sending you strength and love.

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I'm an RN and have worked hospice, not anymore. Pain patches like fentanyl are dangerous though, they have a black box warning. They not the best meds for pain titration and control because they are transdermal, the absorption process, there have been accidental overdoses when the fentanyl patch.

Thank you everyone for your replies!! Oh my Gosh what wonderful people you all are. The meds that I am on don't really knock me out unless I am very tired. Up until two days ago, I would sleep for 1-2 hours and wake back up. Now I have been going to bed pretty late but sleep a solid 6-7 hours! Sleeping is healing!!
Yes I do have the support of my husband and children. I do not have any family other than a few cousins. My great grandma raised me and she passed in early 2008. My mother is mentally ill and my father is a dead beat. My great grandma took custody of me before I could remember. My husband's family isn't really around. They keep to themselves. So it's basically just us.
Everything is on my husband's shoulders. I feel bad for him but I know he truly loves me. We have been together for 15 years & finally got married in 2012. He has taken the responsibility of raising my daughter (from a previous relationship) since she was 1 yrs. old. My daughter doesn't have a relationship with her father, he is another deadbeat. My daughter calls my hubby dad & loves him so much. We had our son in 2001.
He is working right now to get us money so that we can eat. Before I had my amputation, about a month before, he wasn't feeling so well. He would complain of a sore stomach. He made an appointment and sure enough he has a hernia. At this time he knew I was having surgery soon and wanted me to get taken care of. The doctor said that he had time and could have his surgery sometime in January. But if it started to bother him really bad he would need to have it done right away. The week I had my surgery it began to bother him really bad. I said please get it done & his response was you are more important right now. I feel so bad because I can see him hurting. I hear him late at night throwing up and moaning. Poor thing. We talked about it last night & he was like we are so behind and if I take more time out of work we will be too behind to dig ourselves out. He said he can take the pain :( his plan is to work and get us caught up and then have it done. Pay the bills a little in advance. This is only possible if 1 nothing comes up, 2 if there is work (construction is day to day) and most importantly 3 if he is feeling ok & doesn't rupture it. I can not tell him what to do & there is no changing his mind. I just hope he knows how much I love him and appreciate him - I tell him every day. He is a good man and I am lucky to have him!! I just worry. I wish we had money so that this wouldn't be a problem and he could just get it done now. I pray every night that everything will work out. I try just to have faith!!
I started a a fundraising page & have posted it through FB. It is so that I can get my new leg so that I may be able to run and so all the things that I used to do before. My insurance will only cover the basic day to day leg. It is not the greatest but at least I have insurance. It is also for all associated costs. But unfortunately it has been up for 24 hours and has been shared and not one person has donated :( maybe people will soon. Maybe it is just after Christmas and people can't afford it. I understand. But I am going to need help. I was PM'd by a friend who wants to do a fundraiser for me so maybe that will help. It's a lot to deal with on top of healing. I just try to take it day by day. Writting helps. Getting my story out helps. It may sound ridiculous but I have some huge goals. I want to run the Boston Marathon in 2017. I am also a super fan of the TV ahow Survivor and would love to get on that show. When you go through something as traumatic as this, you must stay strong, have a good positive attitude and set goals, something you work hard for to accomplish!! Ok I think I have written enough lol. Sorry if I just babbled on and on. It is very therapeutic. Thank you everyone for your continued support. {{{{HUGE HUGS}}}} to each and everyone that posts & cares!!!!!

Both you & your hubby are an inspiration to us all. In the face of despair you both stand together & fight!

I'd love to help, but I don't do FB...is there another link to your fundraiser?

All the best to you & yours!

All I can do is say thank you so much!! It is so hard not to become emotional when someone says the sweetest things like that!! I appreciate it so much!! <3
Yes I do have a link, but unfortunately I can not post it here :( my email is public on my profile. You can contact me that way. I can't send PMs on here either because I am not a full member.
Thank you again for the kind words!! I look forward to hearing from you!!

Problem solved...enjoy!

Omg thank you!! I am so happy!!

You really are an angel Dog Wayne. :7hug-two7: So awesome to watch you in action like that!

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And this is for what?

Just a douche OP.

You're positive! That's really important. Wishing u all the best.

Hi Jewelz, can I ask what state you reside in?

Hey Jewelz.

I'm looking at having both of my ankle joints replaced with the S.T.A.R. joint.
About 6 years ago I was in an accident, absolutely crushed both talus bones and destroyed all the cartilage in them.
I asked enough questions to get a little uneasy with the procedure before hand, haven't been able to talk myself into having it done yet, knowing that amputation could be the end result...

Any way to get a link to your fundraiser up here?
Leave off the .com ?...

Thanks for having my back!!

I live in Massachusetts. Originally from California.