Can you help me GLP?? DIPG diagnosis in 8 yr old daughter.

(Many thanks for allowing this thus far, I should have sought approval)
Hello friends. I have been lurking here for ages, not much of a poster but due to circumstance I find myself in survival mode willing to try anything. I don't facebook or any of that, so really this is one of my only social outlets to try.

My 8 year old daughter Emma, has been diagnosed with Diffuse Intrinsic pontine glioma. Its a rare brain cancer which grows on the brain stem and it is inoperable. This struck her out of nowhere, we had recently been told by an optometrist and audiologist that her symptoms where due to hearing and vision loss, nothing to worry about. Glasses and hearing aids. Never trust free health care!!

Emma has been in the hospital for 2 weeks and has begun her 33 radiation treatments, which is the only treatment available due to the tumors location. She was very close to dying, but has regained some of her motor skills, and is now eating soft foods. This in itself is miraculous!!

I also have been giving her CBD oils... as I have read many scientific papers on prepping tumors for radiation with cannaboids causing a greater reduction in the tumors, as well as the anti inflammatory, anti fungal and many other positive aspects to it. I will also be preparing foods at home using honey, pineapple, carrot and other known super foods to give her every possible fighting chance.
I have not given up hope despite the prognosis, how could I? There are several clinical trials coming up which she may qualify for as well, it truely seems alot of cancer cures may be on the horizon, if they can get past the corporate interests and all that. ONC201 and ONC206 look very promising for this H3 K27M cancer in particular.

Im reaching out here on a gofundme, knowing how greedy I sound. Knowing I have seen this sort of thing before and ignored it, so please if you ignore it, do not feel bad, perhaps thats how karma works...
If anyone reading this has any information, or leads, or knowledge which may help, anything please share. I will be monitoring this thread, but probably not for a day or so as I've been up for a very long time.
Regardless of the outcome I want to thank you for reading our story.

[link to www.gofundme.com (secure)]

I also have been giving her CBD oils... as I have read many scientific papers on prepping tumors for radiation with cannaboids causing a greater reduction in the tumors, as well as the anti inflammatory, anti fungal and many other positive aspects to it.

[link to med.stanford.edu (secure)]

Glioma's growth halted by absence of protein. This in mice, but lack of this protein caused the cancer to not grow: neuroligin-3

[link to academic.oup.com (secure)]

Curcumin and I think they're talking about chemo helped in viro.

You need to research the studies and anti cancer supplements.

Go research the ketogenic diet as an adjunct with conventional treatments.

It has some support with brain tumor stabilization and shrinkage.

Eight-year-old Emma Fogarty of Waconia lost her life to Diffuse Intrinsic Pontine Glioma (DIPG), a rare tumor located at the stem of her brain. This is a story of family, appreciation for life and how Ridgeview Hospice touches lives in extraordinary ways.

[link to www.ridgeviewmedical.org (secure)]

Is Emma left connected to Emma fogarty?

Coincidence realm ?

Why do you need donations if you live in Canada?

Is the medical care not free?

Considering the ring of fire she was surrounded by, I tend to attribute the rapid recovery we are seeing to the CBD, but I must admit the radiation is also kicking some cancer ass.

I see my question was removed.

The gofundme page and the flag for OP says the location is Canada. Hamilton, Ontario on the gofundme.

I'm just asking why you need donations? Isn't her medical care free there?

did you guys not just catch this?

That's up to the site owner, not to you, fortunately!

Yeah....but OP is from Canada. Did you catch that? Waconia is in the USA.

OP's gofundme page says they are in Hamilton, Ontario with the name Josie Leet

wow thank you all for the pine!

DIPG stands for diffuse intrinsic pontine glioma. It grows on and in the brain stem. It is a tumor which spreads out like threads into the nerves. It is very smart, the more I learn about it the more it seems to be engineered. Its like a virus in the glia cells, hacking them so they mutate into cancer cells. They also grow their own blood vessels. It's only been labeled for a dozen or more years.

Here are some leads I am pursuing ...
[link to oncoceutics.com (secure)]

[link to www.ncbi.nlm.nih.gov (secure)]

There is also a kid near us that made the news because he has the measles
[link to www.ncbi.nlm.nih.gov (secure)]

desperate times call for desperate measures.

(Many thanks for allowing this thus far, I should have sought approval)
Hello friends. I have been lurking here for ages, not much of a poster but due to circumstance I find myself in survival mode willing to try anything. I don't facebook or any of that, so really this is one of my only social outlets to try.

My 8 year old daughter Emma, has been diagnosed with Diffuse Intrinsic pontine glioma. Its a rare brain cancer which grows on the brain stem and it is inoperable. This struck her out of nowhere, we had recently been told by an optometrist and audiologist that her symptoms where due to hearing and vision loss, nothing to worry about. Glasses and hearing aids. Never trust free health care!!

Emma has been in the hospital for 2 weeks and has begun her 33 radiation treatments, which is the only treatment available due to the tumors location. She was very close to dying, but has regained some of her motor skills, and is now eating soft foods. This in itself is miraculous!!

I also have been giving her CBD oils... as I have read many scientific papers on prepping tumors for radiation with cannaboids causing a greater reduction in the tumors, as well as the anti inflammatory, anti fungal and many other positive aspects to it. I will also be preparing foods at home using honey, pineapple, carrot and other known super foods to give her every possible fighting chance.
I have not given up hope despite the prognosis, how could I? There are several clinical trials coming up which she may qualify for as well, it truely seems alot of cancer cures may be on the horizon, if they can get past the corporate interests and all that. ONC201 and ONC206 look very promising for this H3 K27M cancer in particular.

Im reaching out here on a gofundme, knowing how greedy I sound. Knowing I have seen this sort of thing before and ignored it, so please if you ignore it, do not feel bad, perhaps thats how karma works...
If anyone reading this has any information, or leads, or knowledge which may help, anything please share. I will be monitoring this thread, but probably not for a day or so as I've been up for a very long time.
Regardless of the outcome I want to thank you for reading our story.

[link to www.gofundme.com (secure)]

Ok Im spent here. I want to tell everyone about the arsenic in baby foods that the hospital is trying to feed my kid, and how I have to fight them, nicely of course, to get them to look at the data. Ironically, I learned about it while watching TV in Emma's room one night.
[link to www.cbc.ca (secure)]

One of them actually said to me.....and I try to quote.
"Well we get alot of people that want to try differant foods but alot of the times it comes from alex jones and he isn't reliable"
I admit I laughed out loud when she said that.

To be continued...

While I'm extremely thankful to live in a land that has free healthcare, I can tell you I have spent nearly $1000ca dollars on hospital foods, parking and uncovered medicine in just a couple weeks. Thats after paying our whole lives in taxes.

So what about the discrepancies with your gofundme page mentioned above, OP?

So what about the discrepancies with your gofundme page mentioned above, OP?