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My Family could use some Spiritual support right now. - update page 85

 
bigD111

User ID: 65945302
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02/08/2020 06:39 PM

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Re: My Family could use some Spiritual support right now. - update page 85
Any news yet BBQ?
 Quoting: bigD111


Nothing, not a peep or even return phone call from anyone. Only thing definite this week is he has surgery again on the Thursday to try AGAIN to get a permanent viable access port put in. We have to be at MCG at 5:30 am.
 Quoting: BBQ BOY™


Well, I hope that goes well! You're all still in my prayers, I hope the agencies get their shit together!
deplorably republican
Anonymous Coward
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02/08/2020 08:46 PM
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Re: My Family could use some Spiritual support right now. - update page 85
bumphugsgrouphug
TheLordsServant

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02/08/2020 11:07 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Any news yet BBQ?
 Quoting: bigD111


Nothing, not a peep or even return phone call from anyone. Only thing definite this week is he has surgery again on the Thursday to try AGAIN to get a permanent viable access port put in. We have to be at MCG at 5:30 am.
 Quoting: BBQ BOY™


Well, I hope that goes well! You're all still in my prayers, I hope the agencies get their shit together!
 Quoting: bigD111


grouphug grouphug

prayers pray pry Praying Smiley

praiseGod

amen1 amen1 amen1
I am a humble Servant of the one True Living God.
akasuzanne

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02/09/2020 10:41 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Thinking about you all.... hope this week goes well. hf
Anonymous Coward
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02/09/2020 11:42 PM
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Re: My Family could use some Spiritual support right now. - update page 85
best for you & yours Soup
Anonymous Coward
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02/10/2020 05:02 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Prayers sent for Dakota & family!!
Anonymous Coward
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02/10/2020 05:03 PM
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Re: My Family could use some Spiritual support right now. - update page 85
I will send you all good vibrations! cheer
monkeyflower

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02/10/2020 09:08 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Candle still burning for Dakota my friend. Pinned for continued prayers and healing thoughts. Please update us as can.

hugskittyrose
.
Renaissance Woman

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02/10/2020 09:27 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Any news yet BBQ?
 Quoting: bigD111


Nothing, not a peep or even return phone call from anyone. Only thing definite this week is he has surgery again on the Thursday to try AGAIN to get a permanent viable access port put in. We have to be at MCG at 5:30 am.
 Quoting: BBQ BOY™


Several people have suggested contacting your congress critter. This helped my family too (and I was the hero for having made the call, ha ha!). In my case, the patient was a government employee (no such agency); I don't know if that helped light a fire with his congressional office, but they jumped on it within an hour or so. The hospital higher-ups were suddenly all in the ER with my family when I arrived an hour later, talking about options that were not on the table the previous hour.

They asked my father if he had called the congressman, and he said no, but I bet she did (pointing at me with a smile as I walked in the room). I said, "I certainly did."

Once they got the ball rolling, the head triage nurse pulled me aside and said I saved his life, he was going to die without immediate attention.

I don't know if the politicians would be as helpful for a civilian citizen, but I would assume so. Definitely give it a try.
"For with thee is the fountain of life: in thy light shall we see light."
Where Eagles Dare
Metal-American

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02/10/2020 09:43 PM

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Re: My Family could use some Spiritual support right now. - update page 85
We're all with Dakota and you in thoughts and prayers. You're a former Marine; you WILL take the objective!
Isaiah 40:31 - But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

“They’ve got us surrounded again, the poor bastards.” - U.S. Army Paratrooper at Bastogne
Deplorable Mary

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02/10/2020 09:49 PM

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Re: My Family could use some Spiritual support right now. - update page 85
Continued prayers and positive energy to you and your family.
hf
saved

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02/10/2020 09:55 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Any news yet BBQ?
 Quoting: bigD111


Nothing, not a peep or even return phone call from anyone. Only thing definite this week is he has surgery again on the Thursday to try AGAIN to get a permanent viable access port put in. We have to be at MCG at 5:30 am.
 Quoting: BBQ BOY™


5 Stars OP! And Green as well as continued prayers for God's annointing over all of your needs!hfflag waverpeace

Last Edited by saved on 02/10/2020 10:09 PM
Come And Take It!
Anonymous Coward
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02/10/2020 10:00 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Prayers for BBQ boy family and Dakota!
Penny Peppers

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02/10/2020 10:15 PM
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Re: My Family could use some Spiritual support right now. - update page 85
...


Our son is racking up 20K in bills in a week. And he is unable to work he has End Stage Renal Disease. Total cost of medical bills so far has exceeded 1.25 million dollars. That's just under 120 days of medical costs. These cost will continue for the rest of his life with the chance of a kidney transplant putting a 5 to 10 year break in there. I don't see any way of him ever paying his percentage, of that off. We have always paid our bills, but his case is different, he is terminally ill, without dialysis he will die and he is unable to work.
 Quoting: BBQ BOY™


since he is an AdULT.. why is he NOT on Medicaid... I do NOT comprehend this.
 Quoting: ALL IS ONE IS ALL


If you read back a page or so, he has applied but they have not approved him yet. They keep sending him more letters asking for more documents. First time it was CMS form, we sent a copy of that to them and a week later they requested proof of citizenship (Birth Certificate) and last years W-2 form which he just received on the 18th and mailed a copy to them on the 19th. Three days ago.

If you know a faster way to jump through these hoops, please do tell, because we will comprehend it.
 Quoting: BBQ BOY™


Get on the phone to your Senator's office, and maybe your House congress critter. Get them involved. Sometimes they can light a fire under these bureaucrats! That would be my recommendation!
 Quoting: bigD111


That's not a bad idea. People can literally drown in this bloated beaurocracy. Much love to your family, BBQB hf
There's never a dull moment here on planet earth, unless GLP ceased to exist...

Oh, and Biden can't dress himself....
Anonymous Coward
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02/10/2020 10:32 PM
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Re: My Family could use some Spiritual support right now. - update page 85
hugs
Anonymous Coward
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02/10/2020 10:55 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Your family is loved and thought of.

Well all you fools are prayed on too, but BBQ B gets a smidge more :p

But you are all loved.
Anonymous Coward
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02/10/2020 11:04 PM
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Re: My Family could use some Spiritual support right now. - update page 85
Any news yet BBQ?
 Quoting: bigD111


Nothing, not a peep or even return phone call from anyone. Only thing definite this week is he has surgery again on the Thursday to try AGAIN to get a permanent viable access port put in. We have to be at MCG at 5:30 am.
 Quoting: BBQ BOY™



I have been following and praying for Dakota. This frosts me.... I wish I could redirect just MY taxes to your son's medical expenses, so much fuckery!!!!



.
Anonymous Coward
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02/10/2020 11:25 PM
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Re: My Family could use some Spiritual support right now. - update page 85
So we are still in Limbo here. We heard from the Adjudicator that's reviewing Dakotas Disability case, She said she requested information from us and we did not provide it and this could result in her denying his claim.

We did provide what she requested. We provided a copy of his medical records as she requested while we were with our Attorney. 231 pages front and back were Faxed to her on the 13th of Jan. How did she not get that? 462 page fax? We have a copy of the Fax timestamp.

She ask us to call to clear this matter up. 30 voicemail messages left to her in the last 10 days. No call back from her.

Getting real aggravated with these folks. We document everything and have started recording our phone call with them. I cant blame it on the agencies we are deal with, I pretty sure its just the individuals that work there.
 Quoting: BBQ BOY™


I haven't read the entire thread so forgive me. It's late and I'm sleepy.

I lost my sister last June from cancer. Everything you're saying is exactly what she went through to get disability after being diagnosed with stage 4 breast cancer. She was relentless, God love her. They make it hard for a reason. It's almost like they want to see you die before you can collect. We had to start a Go Fund Me for her to get her thru year 1. Yes, it took an entire year to get a dime...and she was actively dying.

I'm so sorry to tell you this. Sadly, it's the state of our once rich and powerful county. Billions on war, piss on the rest of us. Be strong. Love one another. It's all you will cherish at the end of the day. The rest ...well, you can only do what you can.

hfhugs
1guynAz

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02/10/2020 11:31 PM

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Re: My Family could use some Spiritual support right now. - update page 85
Dear Father God, I know you hear us.

Please grant this mans son a blessing in the precious name

of your Son Jesus, that he may regain his health and receive

the gift of mortal life by receiving whatever he may need.

Thank you Lord for hearing us, and thank you for the

blessing he shall receive----In Jesus name I pray...Amen!

Have faith! I'm sure you will be blessed...hf
Living has taught me one thing; nothing is certain...except salvation through Jesus Christ!
Simple27

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02/10/2020 11:52 PM

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Re: My Family could use some Spiritual support right now. - update page 85
s27_heart5
~*Ride the Wave*~
thinking...

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02/11/2020 12:33 AM

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Re: My Family could use some Spiritual support right now. - update page 85
When I was 19 and my daughter was just 1 year old, she had a tumor on her foot. It had to be removed, and it needed 2 skin graft surgeries. She was at Children's Hospital of Phila, (so you know that's not cheap) for 2 weeks.

Anyway, this was before HMO's, so her bills fell under "major medical". We had our deductible, and 80% coverage. Once we hit $20K (in deductibles) we went to 100% coverage. I was 19 years old and owed $20,000!

So you know what I did? I paid it. I paid them $20 per month, because that's all I could afford. Then, when I made more money, I paid them $50/month, and so on.

My point is you can't squeeze lemon out of a turnip. You make ridiculous payment arrangements, and as long as you keep up with your payments they can't come after you.

Yes, I paid the entire thing off, eventually.

End of story.
 Quoting: Wildthing3


Our son is racking up 20K in bills in a week. And he is unable to work he has End Stage Renal Disease. Total cost of medical bills so far has exceeded 1.25 million dollars. That's just under 120 days of medical costs. These cost will continue for the rest of his life with the chance of a kidney transplant putting a 5 to 10 year break in there. I don't see any way of him ever paying his percentage, of that off. We have always paid our bills, but his case is different, he is terminally ill, without dialysis he will die and he is unable to work.
 Quoting: BBQ BOY™


since he is an AdULT.. why is he NOT on Medicaid... I do NOT comprehend this.
 Quoting: ALL IS ONE IS ALL


If you read back a page or so, he has applied but they have not approved him yet. They keep sending him more letters asking for more documents. First time it was CMS form, we sent a copy of that to them and a week later they requested proof of citizenship (Birth Certificate) and last years W-2 form which he just received on the 18th and mailed a copy to them on the 19th. Three days ago.

If you know a faster way to jump through these hoops, please do tell, because we will comprehend it.
 Quoting: BBQ BOY™


I just don't understand this! I have a friend who was diagnosed with Lupus and she was approved for SS disability, with Medicare, on the first try and it was fast. Does Dakota have a SS disability lawyer lined up?
In his poem Human Pride, Marx admits that his aim is not to improve the world, reform or revolutionize it, but simply to ruin it and enjoy it being ruined:

With disdain I will throw my gauntlet full in the face of the world,
And see the collapse of this pygmy giant whose fall will not stifle my ardor.
Then will I wander godlike and victorious through the ruins of the world
And, giving my words an active force, I will feel equal to the Creator.

“Looking for consciousness in the brain is like looking in the radio for the announcer.”

– Nasseim Haramein, Director of Research for the Resonance Project


Normalize every aberrant behavior, bring common all deviancy and let fly the reins of morality and reason, then welcome in that utopia that liberals embrace called communism, that which most Americans with but a shard of ethic would immediately recognize as evil.
 Quoting: judahbenhuer
Éireann

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02/11/2020 12:37 AM
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Re: My Family could use some Spiritual support right now. - update page 85
bump

Still here and following BBQ Boy. Lost the thread there for a while and couldn't remember the title so my searches came up nil.

Are we still able to repost the GoFundMe info in our posts? Y'all really need the help and support!
Eireann~

I am crucified with Christ: nevertheless I live; yet not I, but Christ liveth in me: and the life which I now live in the flesh I live by the faith of the Son of God, who loved me, and gave himself for me. - Galatians 2:20
Anonymous Coward
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02/11/2020 01:50 AM
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Re: My Family could use some Spiritual support right now. - update page 85
I'm sorry BBQ Boy I can't remember if you posted it - how old is your son?

Do you have an advocate? Anyone outside the family helping you?

What state are you in? Any chance it would be helpful if we all flooded the office of your local congressman with mail about this?
Interested_1

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02/11/2020 05:36 AM
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Re: My Family could use some Spiritual support right now. - update page 85
Any news yet BBQ?
 Quoting: bigD111


Nothing, not a peep or even return phone call from anyone. Only thing definite this week is he has surgery again on the Thursday to try AGAIN to get a permanent viable access port put in. We have to be at MCG at 5:30 am.
 Quoting: BBQ BOY™


Well, I hope that goes well! You're all still in my prayers, I hope the agencies get their shit together!
 Quoting: bigD111


I second this!
Take the red pill now...later it will come as a suppository.
Anonymous Coward
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02/11/2020 06:04 AM
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Re: My Family could use some Spiritual support right now. - update page 85
Praying for relief, respite, health, healing, and for the financial aspect to be resolved. Keep strong, you're a great dad.
curry nosher

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02/11/2020 06:17 AM

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Re: My Family could use some Spiritual support right now. - update page 85
Hey bud, just been catching up a bit, prayers done for Dakota and your family man hf
Anonymous Coward
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02/11/2020 06:26 AM
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Re: My Family could use some Spiritual support right now. - update page 85
Can’t do anything to help you other than let you know we are thinking about you and your family. It’s awful that bad things happen to good people. If good wishes help, you have all of mine
DMJ

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02/11/2020 06:42 AM

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Re: My Family could use some Spiritual support right now. - update page 85
hf
BBQ BOY™  (OP)

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02/11/2020 09:47 AM
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Re: My Family could use some Spiritual support right now. - update page 85
Candle still burning for Dakota my friend. Pinned for continued prayers and healing thoughts. Please update us as can.

hugskittyrose
 Quoting: monkeyflower


Thank you. You are in our prayers also Monkeyflower.

hugs

Not too much to update right now as the song remains the same. We are just getting ready to walk out the door to spend the day at the Dialysis clinic. Should be home around 4:30 -5:00 pm.
"Never underestimate the pain of a person. In all honesty, everyone is struggling. Just some people are better at hiding it than others."

Everyone has to work out their own salvation.

Life can only be understood backwards, but it must be lived forwards.
akasuzanne

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02/11/2020 10:40 AM
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Re: My Family could use some Spiritual support right now. - update page 85
Candle still burning for Dakota my friend. Pinned for continued prayers and healing thoughts. Please update us as can.

hugskittyrose
 Quoting: monkeyflower


Thank you. You are in our prayers also Monkeyflower.

hugs

Not too much to update right now as the song remains the same. We are just getting ready to walk out the door to spend the day at the Dialysis clinic. Should be home around 4:30 -5:00 pm.
 Quoting: BBQ BOY™


spiderman
Playing with smileys - This one for Dakota. Much love!!





GLP