My Family could use some Spiritual support right now. - update page 85

Continuing prayers for Dakota!

One day at a time BBQ, stay strong.

Say hello to your son, from all of us knuckleheads.

^^^This and continued prayers.

Yes, praying still for Dakota.

So glad he’s home!

Good to hear things are turning!!!

Wednesday update.

He had dialysis last night, it lasted for four hours they removed 1.8 kg of fluid weight from him. Got home late almost 10pm, hoping to get him into a earlier slot. Hes in good spirits today, ate well tonight and ask for seconds on mashed potatoes and cream corn. Still eating very small servings. He hooked his Laptop up to the 4K Tv and has been playing games for a few hours.

Waiting for the Doctors to call about seeing him next week, he has outpatient Dialysis again tomorrow.

First of the Bills came into today, uggh.

Not today Troll

Last Edited by BBQ BOY™ on 10/16/2019 07:58 PM

Glad to hear his appetite is better, that is a very good sign! The bills are already coming in are they? Yikes. I am sure that is extremely overwhelming as well. Hang in there! Hope he gets into an earlier slot soon. Did you call the health department yet to see if there were other cases recently in your area? They are a good starting point.

Love and hope you pass that hat around for dough. :bighugs:

Update & Rant.

Im about furious right now. When Dakota was in ICU the Doctor discussed diet with us. She said we need to change his diet and concentrate more on Frozen vegetables and Juices ect and reduce his meat intake.

Well tonight we get a different story from the dialysis people. They say NO Vegetables other than Green Beans and mixed vegetable and coleslaw.

They are recommending as first choice in foods he eat, Chicken, Turkey, Beef, Fish, Seafood and pork.

NO Milk or Dairy, Whole Grains, Cereals, Rice or Pasta.
NO Beans or Lentils or Tofu
NO Nuts or Seeds

As far as Drinks they recommend 7up Sprite Root Beer Ginger Ale and artificially flavored fruit sodas, NOT natural Fruit Drinks.

I shit you not.

That's insane. At this point I'd just use common sense
and concentrate on fresh foods, even if you have to make smoothies for him.

Most of the Fresh foods are off limits, this is based on Potassium levels. Who ever thought a Banana would be bad for you?

I don't recall what you've said about his potassium. Are they trying to raise it?

No just the opposite no potassium allowed in his diet

They need to get on the same page obviously. They have you in a tough spot. I'd be burning up the phones tomorrow.

You'll need to talk to a nephrologist and a nutritionist.

I get your anger completely.

All of the above off limit foods are high in potassium. This is a good list of foods to avoid if you are trying to lower your potassium: [link to www.webmd.com (secure)]

The biggest problem in hospitals is the lack of communication between different departments and to the patient and family members. As a nurse, I always went the extra mile to educate my patients, but not all are like that unfortunately.

For now, I would listen to the dialysis team because they are monitoring the blood work and are trained to spot problem areas.

Keeping your son, you, and your family in my prayers.

Honestly? When your son's body is changing, his food needs do as well. A biweekly nutritionist would be perfect. My diet often follows the veggies 3 days, meat 3 days, no fucking wheat, no frozen veggies, no juicing, only PH8+ water. No fucking tap water, unless it's well water.

jmho

Oh my Goodness (I feel like swearing, BBQ) throw the info you were given out the frickin window. Hell no! I think your dialysis team is out of date. It would be good to do some in depth research on this and then present the information to them. This from Dr. Axe
Edited to say - less than 20 percent article. Edited again: Make sure you read the whole article for what not to eat.
[link to draxe.com (secure)]
A kidney disease diet limits intake of certain nutrients, in order to cut down on the amount of waste in a patients blood. (1) That’s because the kidneys are needed to properly balance ratios of water, salt and other minerals (called electrolytes) in the blood — therefore, kidney dysfunction can lead to abnormal mineral levels.
What does a renal diet mean? A renal diet eating plan (also called a kidney disease diet) is one that restricts sodium, potassium and phosphorus intake, since people with kidney disease/kidney issues need to monitor how much of these nutrients they consume. These three micronutrients can accumulate in the blood and contribute to problems like high blood pressure (hypertension), swelling and fluid retention, heart arrhythmias (irregular heartbeats), bone disorders, and vascular calcifications.

Based on the latest research, here are renal diet foods to eat: (11)
A variety of vegetables, including leafy greens, raw veggies and cooked veggies (aim for variety). Beets/beet juice, greens like spinach, tomatoes, purple potatoes, seaweeds and celery are some of the best choices. However be aware that depending on the severity of your condition, your doctor might advise that you avoid veggies and fruits that are very high in potassium (for example, avocado, cantaloupe, honeydew, bananas, oranges, fruit juices, tomatoes, beans, etc.)
A variety of fruits, especially those high in antioxidants like cranberries, black cherries and blueberries. These dark “superfruits” are nutrient-dense and may help fight kidney infections. Drinking cranberry-lingonberry juice concentrate is another option. Consuming lemon/lime juice is also helpful for its cleansing effects.
100% whole grains, although fortified grains may contribute too many minerals to your diet
Organic milk and dairy products, including yogurt, kefir and aged cheeses
Grass-fed, quality meats, poultry, and fish. Protein powder, such as collagen powder or protein powder made from bone broth, are also good options.
Eggs
Nuts, seeds, and legumes (4–5 servings per week)
Healthy fats and oils, including coconut oil, olive oil, grass-fed butter and ghee
Foods to shown to help lower blood pressure, including: pomegranate juice, greens, coriander, beetroot juice, dark chocolate, flax seed, sesame oil and hibiscus tea
Fresh herbs and spices, including: oregano, turmeric, ginger, cinnamon, parsley, rosemary, etc.
Also be sure to drink enough water and hydrating fluids, including herbal tea, sparkling water or fruit-infused water

Last Edited by akaSuzanne on 10/18/2019 02:29 PM

To clarify a little bit, I know it is overwhelming. Bannanas are high in potassium so not good. The doc. said frozen veges but means fresh are ok as well. Canned veges are very high in sodium. You need to be cautions of sodium, potassium, phosphorus and too much protein. Printing out some food charts, maybe from the kidney association website would be helptul. I really don't mind if you would like me to send you some charts or other info. I just don't want to overstep my bounds. (I do that a lot. I am a bossy Leo, in real life as well as online. When it comes to medical issues anyway. LOL)

The following website breaks down the information so that you understand why you need to make certain adjustments. It isn't so much about completely avoiding fresh fruit and vegetables, it is about monitoring how much you take in so that you don't get too much potassium, phosphorus or sodium. The good news is his body needs more protein while on dialysis, so, no need to toss the grill.

[link to www.kidney.org (secure)]

All vegetables have some potassium, but certain vegetables have more than others and should be limited or totally avoided. Limiting potassium intake protects your heart.

Eat 2-3 servings of low-potassium vegetables each day. One serving = ½-cup.
Choose:
Broccoli (raw or cooked from frozen)
Cabbage
Carrots
Cauliflower
Celery
Cucumber
Eggplant
Garlic
Green and Wax beans (“string beans”)
Lettuce-all types (1 cup)
Onion
Peppers-all types and colors
Radishes
Watercress
Zucchini and Yellow squash
Limit or avoid:
Potatoes (including French Fries, potato chips and sweet potatoes)
Tomatoes and tomato sauce
Winter squash
Pumpkin
Asparagus (cooked)
Avocado
Beets
Beet greens
Cooked spinach
Parsnips and rutabaga

Eat 2-3 servings of low potassium fruits each day.
One serving = ½-cup or 1 small fruit or 4 ounces of juice.
Choose:
Apple (1)
Berries (½ cup)
Cherries (10)
Fruit cocktail, drained (½ cup)
Grapes (15)
Peach (1 small fresh or canned, drained)
Pear, fresh or canned, drained (1 halve)
Pineapple (½ cup canned, drained)
Plums (1-2)
Tangerine (1)
Watermelon (1 small wedge)
Drinks:
Apple cider
Cranberry juice cocktail
Grape juice
Lemonade
Vegetables/Salads

Sample Menu
Breakfast
Cranberry Juice, 4 ounces
Eggs (2) or ½-cup egg substitute
Toasted white or whole wheat bread (2 slices)
Butter or tub margarine or fruit spread
Coffee, 6 ounces
Lunch
Tuna salad sandwich made with 3 ounces tuna on a hard roll with lettuce and mayonnaise.
(Other good choices for sandwiches include egg and chicken salad, lean roast beef, low salt ham and turkey breast.)
Coleslaw, ½-cup
Pretzels (low salt)
Canned and drained peaches, ½-cup
Ginger Ale, 8 ounces
(Cola drinks are high in phosphorus. Choose ginger ale or lemon-lime beverages instead.)
Dinner
Hamburger patty, 4 ounces on a bun with 1-2 teaspoons ketchup
Salad (1 cup): lettuce, cucumber, radishes, peppers, with olive oil and vinegar dressing
Lemonade, 8 ounces
Aim for at least 2-3 “fish” meals each week. Many fish are rich in heart-healthy “omega-3” fats. Tuna and salmon (rinsed or canned without salt) and shellfish are excellent heart healthy protein choices.
Snack/Dessert
Milk, 4 ounces
Slice of apple pie

This meal plan provides 2150 Calories, 91 grams protein, 2300 mg sodium, 1800 mg potassium, 950 mg phosphorus. 38 fluid ounces.

The recommendations on what to avoid are a bummer because potatoes have a lot of potassium. I did see a technique to reduce the amount of potassium by cutting them very small and soaking them. I am not recommending this because I don't know what his specific dietary guidelines are. If you are desperate here are the instructions. [link to blogs.davita.com (secure)]

Last Edited by akaSuzanne on 10/18/2019 03:06 PM