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chronic pain everywhere, doctors have no answers. help? 7 years

 
~Bodhi
User ID: 77930780
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10/12/2019 05:10 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Have you cut out gluten for a week?

If a Vegan diet gave you some relief, then I would definitely try that.

I have worked with a woman with Fibro -

Doctors won't find it as it is primarily in the energetic fields of the body.

You will have to trust me on that one.

Find a really good Tai Chi or Qigong instructor who can take you through the whole emotional clearing process.

Fibro is common in a lot of empaths.

Cut out the Gluten, I will check back in a week.
Bodhi Sita

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10/12/2019 05:10 AM

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Re: chronic pain everywhere, doctors have no answers. help? 7 years
to keep my place
~Bodhi
the one
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10/12/2019 05:13 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Start smoking cannabis keep my back and body pain at living level and chronic cluster headache tried many drugs and therapy but cannabis work the best with no side effects.
Anonymous Coward (OP)
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10/12/2019 05:25 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Have you cut out gluten for a week?

If a Vegan diet gave you some relief, then I would definitely try that.

I have worked with a woman with Fibro -

Doctors won't find it as it is primarily in the energetic fields of the body.

You will have to trust me on that one.

Find a really good Tai Chi or Qigong instructor who can take you through the whole emotional clearing process.

Fibro is common in a lot of empaths.

Cut out the Gluten, I will check back in a week.
 Quoting: ~Bodhi 77930780


I cut out the gluten a month and a half ago. No change in pain levels
Boes

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10/12/2019 05:30 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
To much coffee messes up your insuline value
Boes
WolfpackKeeper
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10/12/2019 05:58 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Try the elimination factor diet and consumer test. Go cold turkey for two weeks on everything you eat and go organic. Use organic cleaners, soaps, lotions, perfumes, anything scented, etc. . Remove anything produced, and go back to what's natural, not pesticided, not hormoned to death, and not chemicalized. Get organic foods, healthy balance and add in each week your favorite item while maintain organic trend. Journal before, during and after on how you feel mentally and physically. Do this to note anything like mood, gas and bloat, acid reflux, odor, pain, stiffness,swelling, sweating, anxiety, dry skin, muscle aches, cramps, sleep quality, energy level, joint health that particular moment. Any negative results from a food or product should be taken out and supplemented with an organic substitute or alternative. No one ever thinks about subbing white sugar out. Did you know white sugar is really processed so much that sugar cane that it is derived from is altered so much from a natural form, its almost unnatural. Take a tour sometime of a sugar mill. It will enlighten you. You can buy organic sugar, unprocessed. Anyways,the whole elimination process can take months, but I promise you I did this and it changed my life. Everyone is different too. Its not easy. There are non fast solutions. This may help you or lead you to some better quality of life until you find what is the main cause. God speed and God Bless.
Anonymous Coward
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10/12/2019 06:11 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Doctors are terrified of prescribing pain meds because
of threats and intimidation by the DEA.
Only Me

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10/12/2019 06:30 AM

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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Doctors are terrified of prescribing pain meds because
of threats and intimidation by the DEA.
 Quoting: Anonymous Coward 76809044


Yeah, and since it sounds like inflammatory type pain, pain meds won't help much anyway. You have to reduce inflammation. That's the trouble I'm having.
Goodbye, halcyon days...

 There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable.

There is another theory mentioned, which states that this has already happened.
KELK

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10/12/2019 06:36 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Get tested for heavy metal poisoning.
Anonymous Coward
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10/12/2019 06:36 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Sure sounds like fibromyalgia to me too. New stuff being found out about it like it’s a severe brain and nervous system inflammation issue. Makes sense as to why so many other treatments over the years haven’t worked.

A family member who has suffered with fibromyalgia for 30 years is finally and greatly improving due to the following info:

[link to articles.mercola.com (secure)]

[link to www.drlamcoaching.com (secure)]
Anonymous Coward
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10/12/2019 06:43 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
been to rheumatologist and they took blood tests and ruled out arthritis
 Quoting: Anonymous Coward 78016376

Could be CHRONIC DEHYDRATION.

I have bone pain in my hands, debilitating pain in my lower waist, all gone quite fast after I started drinking cucumber juice in the morning. I blender the cucumber with water. Cucumber juice is a very hydrating drink. Sometimes I blender it with mango and it taste good. Drinking plenty of water alone may not work, but still after drinking cucumber juice in the morning or when painful, keep drinking water or juice throughout the day. In my case, my waist pain lessened a lot after I drank cucumber juice which made me realize I could have dehydration since I often get a dry mouth when waking up and feel weak and get fatigue quickly with physical work.

May also try Celery juice, harder to find for me so I do not try it. Cucumber juice and Celery juice are the idea from Medical Medium. Medical Medium wrote a book on mystery illness like autoimmune, lyme, many chronic illness.
Anonymous Coward
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10/12/2019 06:45 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Use this stuff. It's supposed to be amazing for all types of chronic pain, not just arthritis:

[link to m.youtube.com (secure)]
Anonymous Coward
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10/12/2019 06:57 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Go barefooted for a couple of weeks (outside on the earth).
We're an electrical system we need to be grounded.
Anonymous Coward
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10/12/2019 06:58 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
OP,

I went through what you are going through. It lasted from 2010 until 2017... then it started to get better and now I am 80% back to my old self.

I am not nearly as flexible as I was before I got sick and my energy is still not great.

Like you I never got a diagnosis.
I researched like crazy and considered ankylosing spondylitis, psoriatic arthritis, MS, and even Cushings Disease. I did talk my endocrinologist into a test for the latter but it was not definitive.

It was shortly after that test, though, that improvements began. Also around the time of that test I did something that I'd been wanting to do for a long time which was to tell a family secret that I'd been carrying around for 12 years.

So... I don't know if it was the test that began the improvement (because I had to take a dose of something beforehand in order for the lab to assess my blood) OR if the letting go of that secret was what did it.

Honestly I believe it was the telling of that secret.
I did it on youtube in a series of videos, actually. I told the whole story and in the months after that I got better and better and better.

Are you holding in any secrets or lies (same thing, IMO)?

............

I can give you a few of the tricks I used to survive the pain & fatigue:

1. TENS machine. Get one. $30 online, approx. SO much relief from that.

2. Beer. it's a horrible thing to be dependent on alcohol but it did numb the pain.

3. alternating heat & cold.

4. a wide, tight belt around my waist/lower back/hips. I had to make one. I tried those really tight girdle/underwear things but they were so difficult to take on and off to go to the washroom that they weren't worth it.

5. A cane to get up and down from chairs, in and out of cars.

6. Combine Advil and a tylenol 3 (which is tylenol with codiene). The pharmacist recommended this and it helped a lot.

7. stand in a door way with your back on one half of the frame. Put one foot at a time up onto the other side of the frame. Push lightly.

8. Do the same as above but facing the door frame - put your foot up behind you onto the other door frame.

9. Stand, hold on to the back of a chair. Lift leg out behind you. Try to bend knee slowly. It's really important to try and work your sacroiliac joint, IMO.


okay.. sorry this is long. That 7 years of my life was crazy and towards the end I thought I would die. I certainly believed that this was it for me. I'd never be able to live a normal life ever again. But like Isaid it all changed.. slowly but surely better

I hope the same will happen for you, OP.
I really do. :) It *can*, I am living proof.
Anonymous Coward
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Australia
10/12/2019 07:04 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
i have pain everywhere in my body almost every day for a large part of the day, it is completely debilitating. mostly in my back, neck, arms, legs and hands. gets worse at times than others, some days more than others, and some parts of those days especially bad to point of sobbing.

years ago it felt like it started in the joints but now its in the muscles too. also extremely exhausted feeling but i think its because the pain has been going on so long

because of other symptoms thought it was MS but just had MRI done last week and doesn't show MS. I am not on painkillers and I do not want to go on them, just want to figure out what it is

I am desperate and cannot function. Anyone hear of anything like this before?
 Quoting: Anonymous Coward 78016376


OP

WATCH this it's free on YouTube

Super Juice Me
Jason Vale

and

Barbara ONeill YouTube

BOTH can help
Anonymous Coward
User ID: 78075221
Australia
10/12/2019 07:14 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Do a 7 day dry diet. No food no water. Watch youtube videos on it. Your body will cure itself. Only if you have no other diagnosed health complications like kidney disease though. Maybe even try 2 weeks just drinking filtered water. Rule out all substances you put into your body. If that fails it has to be some kind of virus, infection or auto immune deficiency, blood abnormality etc
Anonymous Coward
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United States
10/12/2019 07:15 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
my doctor has said its "probably" fibro but will continue doing more and more tests to rule out other things

only thing is I absolutely need to get on some sort of disability because I can barely afford to live at all and fibro is a very difficult thing to get disability for. supposedly there is no test that can prove fibro so they class it differently.
 Quoting: Anonymous Coward 78016376


We’re in the same boat with my son. Can’t get disability without a diagnosis. In our case, we’ve always thought that it was caused by a medications prescribed by a psychiatrist but no doctor would entertain that theory because if we sued they would then have to testify
At any rate now I am also having the same pain and in the same places
Mom was diagnosed with fibro, so we’re thinking maybe that’s it since we all now have it, however, I am still not convinced that a move to the country away from all the wifi, etc, wouldn’t make a big difference
My son just gave up on a diagnosis after almost 4 years of trying
He started painting and is really good at it
He’s selling his work faster than he can paint it so, in our minds he took a disability and turned into something positive
Prayers for you op!
Anonymous Coward
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Australia
10/12/2019 07:16 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Try the elimination factor diet and consumer test. Go cold turkey for two weeks on everything you eat and go organic. Use organic cleaners, soaps, lotions, perfumes, anything scented, etc. . Remove anything produced, and go back to what's natural, not pesticided, not hormoned to death, and not chemicalized. Get organic foods, healthy balance and add in each week your favorite item while maintain organic trend. Journal before, during and after on how you feel mentally and physically. Do this to note anything like mood, gas and bloat, acid reflux, odor, pain, stiffness,swelling, sweating, anxiety, dry skin, muscle aches, cramps, sleep quality, energy level, joint health that particular moment. Any negative results from a food or product should be taken out and supplemented with an organic substitute or alternative. No one ever thinks about subbing white sugar out. Did you know white sugar is really processed so much that sugar cane that it is derived from is altered so much from a natural form, its almost unnatural. Take a tour sometime of a sugar mill. It will enlighten you. You can buy organic sugar, unprocessed. Anyways,the whole elimination process can take months, but I promise you I did this and it changed my life. Everyone is different too. Its not easy. There are non fast solutions. This may help you or lead you to some better quality of life until you find what is the main cause. God speed and God Bless.
 Quoting: WolfpackKeeper 78066643


Good advice. I would completely eliminate sugar though.
Dr.TwoBall

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10/12/2019 07:21 AM

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Re: chronic pain everywhere, doctors have no answers. help? 7 years
$35 per bottle

Christian Wilde's Enhanced Turmeric+ Formula
-Double dose it for the first week or two.

[link to www.amazon.com (secure)]


And 2-3 Marijuana’s per day.
I am a meat popsicle.
Vision Thing

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10/12/2019 07:22 AM

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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Sounds like vitamin D deficiency
 Quoting: Anonymous Coward 73613959


In the past we had so many good threads about vitamin d on glp. I have a lot of information saved about it. It is worth looking into megadosing for pain.

I read that extensive research says the safe upper limit should be revised upward to 10,000 IU per day but that it may really actually be much higher even 50,000 per day.

The thing is, all the nutrients work together and if you're going to take a lot of vitamin d then you ought to also take magnesium and vitamin k. And you may be calcium deficient and not know it, I've been looking into that lately. And you need vitamin a and a high quality E complex. And lots of people suggest megadosing on vit C as a first step for anything. Everyone is deficient in trace minerals and you burn all the b complex every day. You probably need b12.

You can afford to experiment at online places like Swanson Vitamins. Get there emails and stuff goes on sale all the time. Much cheaper and safer than drugs, you just have to read a lot. And don't use Google for searches, they censor natural health.
"Give thanks in all circumstances, for this is God's will for you in Christ Jesus. " (1 Thessalonians 5.18)

"Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. 7 And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."

Philippians 4:6-7
Halfbreedgal
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10/12/2019 07:35 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Fibromyalgia.

There is no treatment no cure.

Many find relief with CBD or Pot

Some use an Herb called Uva Ursi

another called Shegoi.


Alt med doctors treat it as a Herpes like virus that attacks the CNS


Even the Cleveland clinic now recommends herbal treatments

to elevate some symptoms
 Quoting: Jake


Fibro is a virus....I turned to herbs, but some very few docs treat it with antivirals...a doc that had it himself figured it out, he wrote a book about it..can't recall name...Fibro is more than pain. Extreme fatigue, brain fog, affects everything in body. Much of fibro is food allergies...follow whole 30 diet and that'll help so much alone. I've had it eighteen years...mom and son has it too. Kratom works great for pain...a true godsend. You must expierememt with it before you find the right method and dose for yourself, however. Mitragaias green maeng da kratom is excellent and affordable. Good luck. Really sounds like fibro.
Halfbreedgal
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10/12/2019 07:37 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Do a 7 day dry diet. No food no water. Watch youtube videos on it. Your body will cure itself. Only if you have no other diagnosed health complications like kidney disease though. Maybe even try 2 weeks just drinking filtered water. Rule out all substances you put into your body. If that fails it has to be some kind of virus, infection or auto immune deficiency, blood abnormality etc
 Quoting: Anonymous Coward 78075221


Don't go without water seven days! Are you kidding me? Omg
Anonymous Coward
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10/12/2019 08:04 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
FIRST, take magnesium salt baths. Epsom salts are cheap, but real good magnesium salts online would be better.

2. LOW OXALATE DIET. Look it up.

Minerals, omega3 fatty acids, and B vitamins. You will see a reduction in pain that will amaze you once you do that diet and research it. You have an oxalate problem almost certainly. Learn about it.
Anonymous Coward
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10/12/2019 08:05 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Have you cut out gluten for a week?

If a Vegan diet gave you some relief, then I would definitely try that.

I have worked with a woman with Fibro -

Doctors won't find it as it is primarily in the energetic fields of the body.

You will have to trust me on that one.

Find a really good Tai Chi or Qigong instructor who can take you through the whole emotional clearing process.

Fibro is common in a lot of empaths.

Cut out the Gluten, I will check back in a week.
 Quoting: ~Bodhi 77930780


I cut out the gluten a month and a half ago. No change in pain levels
 Quoting: Anonymous Coward 78016376


That's because you're still getting high oxalates. You'll see. I just gave you a huge key.
10822R88

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10/12/2019 08:19 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Take black seed oil and rub on your feet.
Duncan the destroyer

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10/12/2019 08:22 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
yes went vegan years ago and incorporate as much raw as possible, not 100 percent but still try to get in as much as possible. also doing all organic. still having the pain. thank you for your reply. i could probably do the raw specifically more thoroughly but it can be difficult preparing every single meal
 Quoting: Anonymous Coward 78016376


you neglected to mention that, maybe have some cheeseburgers
 Quoting: Boris the Cat


going vegan did help SOME but not a complete cure. before going vegan I had other symptoms that made things even more difficult
 Quoting: Anonymous Coward 78016376


like what symptoms?

did you try going off gluten? I had bad muscle/Joint pain from gluten.
took 3 months to start feeling better.

Last Edited by Duncan the destroyer on 10/12/2019 08:25 AM
Duncan the destroyer
Anonymous Coward
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10/12/2019 08:32 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
What did you change 8 years ago?

New mattress?
Stopped eating something? Potatoes?... Water?
Started eating something? Low Fat?...

OP You are going to have to think, you changed something that is now affecting your body

Mine was all of the above
The new Foam mattresses was poisoning my body and when I quit eating potatoes and more water my gut flora diminished. I started a low fat diet. Now I eat normal and have a different mattress. My pain was so bad I couldnt get out of bed sometimes. A grown ass man would cry just to get up and go to work. God revealed all of it to me after praying for a weeks. I had been to many many specialists that basically told me a I had Lupus... It is all BS
Anonymous Coward
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10/12/2019 08:36 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
yes went vegan years ago and incorporate as much raw as possible, not 100 percent but still try to get in as much as possible. also doing all organic. still having the pain. thank you for your reply. i could probably do the raw specifically more thoroughly but it can be difficult preparing every single meal
 Quoting: Anonymous Coward 78016376


you neglected to mention that, maybe have some cheeseburgers
 Quoting: Boris the Cat


going vegan did help SOME but not a complete cure. before going vegan I had other symptoms that made things even more difficult
 Quoting: Anonymous Coward 78016376


like what symptoms?

did you try going off gluten? I had bad muscle/Joint pain from gluten.
took 3 months to start feeling better.
 Quoting: Duncan the destroyer



Gluten is NOT the enemy. Your gut flora needs to be replenished. A normal gut with healthy flora can handle the gluten easily. These low fat low carb diets are killing people. It has to be the right fats (unsaturated fats - avocado...) and right carbs(red unpeeled chopped potatoes) to replenished the flora in your gut. The medical and diet industry should be lined up and called out on their lies
Anonymous Coward
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10/12/2019 08:39 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Doctors are terrified of prescribing pain meds because
of threats and intimidation by the DEA.
 Quoting: Anonymous Coward 76809044


Yeah, and since it sounds like inflammatory type pain, pain meds won't help much anyway. You have to reduce inflammation. That's the trouble I'm having.
 Quoting: Only Me


that's what what Ibuprofen was originally formulated for.
Anonymous Coward
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10/12/2019 08:48 AM
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Re: chronic pain everywhere, doctors have no answers. help? 7 years
Do a 7 day dry diet. No food no water. Watch youtube videos on it. Your body will cure itself. Only if you have no other diagnosed health complications like kidney disease though. Maybe even try 2 weeks just drinking filtered water. Rule out all substances you put into your body. If that fails it has to be some kind of virus, infection or auto immune deficiency, blood abnormality etc
 Quoting: Anonymous Coward 78075221


Don't go without water seven days! Are you kidding me? Omg
 Quoting: Halfbreedgal 77131582


No. The body is very resilient





GLP