That poor child.

Ever had a really bad burn? Imagine that over the entirety of your body, and it never feels better.

I think that may be close to what he's going through; his skin condition looks similar to a second degree burn in a way

Very sad. And there's barely any information available on it beyond the fact there is no cure and the only treatment isn't practical. I was hoping to see that this condition is something that gets better with age, but I was unable to find if his symptoms will decrease over time or if he will suffer with it and this level for the rest of his life.

Very sad.