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Do you have or know anyone who has Sickle Cell Disease?

 
»Subtle
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User ID: 432360
United States
06/12/2009 07:21 AM
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Do you have or know anyone who has Sickle Cell Disease?
My wifey has the trait, from her father. Apparently I think she went through a pretty painful sickle crisis during the night. Back pain, chest/rib pain, nausea, arm pain (long bone).

Was merely dehydration and stress so water and a painkiller fixed it right up.

But I'm just curious if anyone here has it or knows someone who does? How do you/they deal with it? Preventive measures that are successful and proven (to prevent sickle cell crisis).

Thank you peeps.
The blackening of roses will send you to the edges of the land/
The emerald tablets of Thoth the Atlantean/
The hands of the mighty Lion of Judah/
Will throw you through the triangular portals of Bermuda/
Exploring the Hologramic aspects of consciousness/
Aussie Jeff

User ID: 700775
Australia
06/12/2009 07:52 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
Sorry, i wasn't even aware of it until i saw the thread title. For those who don't know about it, here is some info.
All the best with the wife.

What is Sickle Cell Disease?

Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin* S, an abnormal type of hemoglobin. Sometimes these red blood cells become sickle-shaped (crescent shaped) and have difficulty passing through small blood vessels.
Normal red
blood cell Sickle-shaped
red blood cell

When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.

Hemoglobin – is the main substance of the red blood cell. It helps red blood cells carry oxygen from the air in our lungs to all parts of the body. Normal red blood cells contain hemoglobin A. Hemoglobin S and hemoglobin C are abnormal types of hemoglobin. Normal red blood cells are soft and round and can squeeze through tiny blood tubes (vessels). Normally, red blood cells live for about 120 days before new ones replace them.

People with sickle cell conditions make a different form of hemoglobin A called hemoglobin S (S stands for sickle). Red blood cells containing mostly hemoglobin S do not live as long as normal red blood cells (normally about 16 days). They also become stiff, distorted in shape and have difficulty passing through the body’s small blood vessels. When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease.
ETC

[link to www.sicklecelldisease.org]
mysticalamber

User ID: 507424
United States
06/12/2009 08:33 AM

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Re: Do you have or know anyone who has Sickle Cell Disease?
hello OP .........folic acid helps ............
Anonymous Coward
User ID: 700970
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06/12/2009 08:48 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
It's a mycoplasma infection.
Anonymous Coward
User ID: 566027
Netherlands
06/12/2009 08:52 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
My little son has it, but thank God it seems to have worn off or at least not affecting him anymore. (He was very tired and slept a lot, but he just needs to take vitamins and another little pill and everything seems fine- no more blood transfusions, like he had when he was _just_ born.)
Anonymous Coward (OP)
User ID: 432360
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06/12/2009 08:55 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
Sorry, I should mention that it's just a Sickle Cell trait. I'm worried about it developing into the actual disease. :/

Sickle cell trait (or sicklemia) describes the way a person can inherit one of the genes of sickle cell disease, but not develop recurrent symptoms. Sickle cell disease is a blood disorder in which the body produces an abnormal type of the oxygen-carrying substance hemoglobin in the red blood cells. Sickling and sickle cell disease is an adaptive evolutionary response to reduce malaria parasitization of red blood cells.

This can develop from all the information I know first hand. How to prevent a *Sickle cell crisis* from occurring though?

I already recommended lots of water to prevent dehydration in the 1st place.

Folic acid helps even those with just the trait?

Thank you all.
»Subtle  (OP)

User ID: 432360
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06/12/2009 11:35 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
bump
The blackening of roses will send you to the edges of the land/
The emerald tablets of Thoth the Atlantean/
The hands of the mighty Lion of Judah/
Will throw you through the triangular portals of Bermuda/
Exploring the Hologramic aspects of consciousness/
whoopty_woop

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United States
04/18/2016 04:57 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
I know this is old but from all I've read regarding college athletes with the trait needing a less rigorous exercise routine...if/when somebody with the trait goes into a crisis they are to be treated with IV fluids to alleviate pain and red blood cell sickling.

Most doctors don't know their asses from a hole in the ground as it relates to pain crises associated with just the TRAIT...

Many people of all ethnicities and races with the trait can suffer mild crises and some have died after exertion or extremely high/low altitudes.

There was the recent case of the NFL player who suffered a ruptured spleen from exercising befoe a game in Denver...the altitude change caused a crisis and he nearly died.

The research is out there, just do a search for trait symptoms and crisis.

Also if you are white and of Mediterranean descent, get checked. This isn't just a black person's disease. Same with Hispanics of Iberian (Spanish Arab) descent.

bump
Anonymous Coward
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06/28/2020 12:10 AM
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Re: Do you have or know anyone who has Sickle Cell Disease?
Good info.

Many white people have the trait via hidden sephardic juu ancestry who were mixed races with the Arab and North Africans who had black ancestors.

Racial bias that only blacks and black hispanics have the sickle cell disease or the genetic trait for it prevents whites from getting the simple test.

They'd rather suffer from unexplained ailments their whole life than accept they may have a non-white ancestor in the last 400 years.
Anonymous Coward
User ID: 73895190
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10/07/2020 01:03 PM
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Re: Do you have or know anyone who has Sickle Cell Disease?
No but, all of us know a whole sector (13 puhsint), of the population that we wish had it.





GLP