| Users Online Now: 2,145 (Who's On?) | Visitors Today: 2,250,580 | |
| Pageviews Today: 3,127,746 | Threads Today: 735 | Posts Today: 14,792 |
| 11:33 PM | ||
| Users Online Now: 2,145 (Who's On?) | Visitors Today: 2,250,580 | |
| Pageviews Today: 3,127,746 | Threads Today: 735 | Posts Today: 14,792 |
| 11:33 PM | ||
Chiari Malformation (update pg 2) | |
MissionInvisible  User ID: 27358843  United States04/06/2013 06:56 PM Report Abusive Post Report Copyright Violation | What's that? And yes to the Epsom salts with baking soda and lavender. I've been doing that! Oh good :) I have all kinds of weird tricks up my sleeve to help with my issues. Initial diagnosis can be very hard. It can be a blessing to finally have answers (it took a few years to diagnose my EDS), and then it can open up a whole new world of worries. I would just take a deep breathe and know there is all kinds of information/support groups out there :) You are definitely not alone. |
| Anonymous Coward User ID: 26758812 United States04/06/2013 06:56 PM Report Abusive Post Report Copyright Violation | |
| MissionInvisible User ID: 27358843 United States04/06/2013 06:57 PM Report Abusive Post Report Copyright Violation | ... Quoting: MissionInvisible Definitely get some second opinions. I saw doctor after doctor with my issues. Chiari is sometimes seen with scolisis and tethered cord syndrome. If you have tethered cord syndrome, the tethered cord release can help with pulling down on your neck...or if you have syringomyelia along with the chiari they can do some things to take the pressure off. I am not trying to scare you by listing off all these things, its just sometimes symptoms can mimic each other. My friend's daughter had the syringomyelia (cyst in the spine) but it was caused by the Chiari. The surgery resolved that as well. A good neurologist would rule out tethered cord on MRI. bleh scan after scan after scan. Its good to see all the various angles though! Actually it was ONE scan that caught all of it. I was there, and it wasn't nearly as frightening as you are making it out to be. The OP just needs an opinion from a neurologist with experience with this specific condition. Not trying to scare the OP at all |
| Anonymous Coward User ID: 36181685 United States04/06/2013 07:01 PM Report Abusive Post Report Copyright Violation | |
| Only Me (OP) Strawberry Girl User ID: 34792354 United States04/06/2013 07:14 PM  Report Abusive Post Report Copyright Violation | Yes my neck has always tilted a little to the left. I have peripheral vision loss that I was blaming on sinus surgery .... I was blaming all of it on that surgery but apparently it's not the case....it only kicked the progression of the problems into high gear. If I could just stop the dizziness and fainting, I think I'd be just fine trying to live with it. Well...and the brainfog. I feel like I see the world in Technicolor - that's what it feels like. Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
| Anonymous Coward User ID: 36181685 United States04/06/2013 07:15 PM Report Abusive Post Report Copyright Violation | |
| Only Me (OP) Strawberry Girl User ID: 34792354 United States04/06/2013 07:15 PM Report Abusive Post Report Copyright Violation | What's that? And yes to the Epsom salts with baking soda and lavender. I've been doing that! Oh good :) I have all kinds of weird tricks up my sleeve to help with my issues. Initial diagnosis can be very hard. It can be a blessing to finally have answers (it took a few years to diagnose my EDS), and then it can open up a whole new world of worries. I would just take a deep breathe and know there is all kinds of information/support groups out there :) You are definitely not alone. I'm going to join that chiari support group the anonymous poster linked. And you didn't scare me. I have scared myself! Lololol Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
| Only Me (OP) Strawberry Girl User ID: 34792354 United States04/06/2013 07:16 PM Report Abusive Post Report Copyright Violation | Hah in a way! Nothing's real...but it is....or is it.....hrmmmmm Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
| Only Me (OP) Strawberry Girl User ID: 34792354 United States04/28/2013 09:34 PM Report Abusive Post Report Copyright Violation | On top of the chiari bullshit, it turns out I have a csf leak through my nose from the sinus surgery. That's what's causing the majority my symptoms. I'm off work for awhile to get it all fixed, so get ready for LOTS of Only Me on GLP. ...sorry guys Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
| lou la belle User ID: 2328655 United States08/27/2014 06:59 PM Report Abusive Post Report Copyright Violation | |
