Retinitis Pigmentosa

Vitamin A , cannabis, bilberry, and dandelion tea. Or go see that doctor in Jersey. Andy Rosenfarb he was in the clinical trial for temp and showed imporovement using acupuncture.

Is it autosomal or dominant?

Thank you, I will tell her about them.

How do I find her? I will talk to her through it. There are groups on F book...tell her to join and I will find her. Retinitis pigmentosa faith group as well as the marijuana group fo RP. I help with both groups :-)

It's not the end of the world. Doctors can not predict when it will happen or how fast. Trust me it will be ok. My name is Crystal. Tell her to look out for me on those groups ;-)

I don't know. I know that she can only see me if I am right next to her. I have to wear black or she cant see. She can read very large print and see sign language if the person is very close.

Very sorry not curable at all, in some cases it can progress more slowly than others. They have tunnel vision and the tunnel gets narrower and narrower as time goes on, but in some cases they can retain site for quite a few years.

They will usually pull driver license early on as without side vision, they can have lots of accidents.

There are very good blind association you can go to with your friend, they are usually very helpful to learn to cope with blindness and make friends. I have been several times with my family member who has this disease.

I see. Well I have connections in this department so the fact you posted was a sign in itself. I'm very familiar with the eye disease. I've been where she is. I want to help her. I can hook her up with groups in almost all the states and even the U.K. I'm here to help.

I don't know if she has face book. I will look you up and print things out for her. I have to be careful, I am her therapist. I really want to help her in any way that I can. She is so nice and sweet. I feel so bad for her situation.

That is amazing! How can I get a hold of you?

Rpers with faith on F book. Leave a post and I'll find you :-)

It is said going blind is the same emotions as dying and they have to go through the mourning, but once accepted they can be very happy and live very fulfilling lives. I am speaking as someone who grew up watching this happen to a VERY close relative.

She went through morning period and is a very happy person now and many people meet her and don't realize she is even blind as she does a lot and doesn't let it get in her way.

It's good you want to be supportive, but better to help her get help to move forward in life than to look for magical cures, trust me there are none with this disease. The cones and rods deteriorate and become destroyed you can't magically fix it with cannabis or vitamins.

I have ERG results that show different.

She is also deaf...she was born that way. She is a part of the Helen Keller institute.

I am so glad that you found help and hope, thank you for spreading that!

She has ushers syndrom then

I always stay hopeful! No place I would rather be. :-)

OP, Wealthy casino owner Mr. Steve Wynn has the same inherited disease. If you can contact his assistant at Wynn Casino stating the reason for your call you may be able to find a source for the latest developments.

My former, strictly platonic roommate essentially committed suicide as he could not cope with the increasing loss of his independence due to the disease destroying his eyesight.